Find research datasets worth reusing
Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
236
datasets available to search
ShareScore release 0.9.0
Dataset results
236 results for “patient-reported outcomes”
Wearable and Patient-reported Outcome-based Continuous Assessment and Support Alerts in Palliative Care
ClinicalTrials.gov study NCT05273580. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Patient-Reported Outcome Questionnaire for Systemic Mastocytosis
ClinicalTrials.gov study NCT02380222. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-Reported Outcome Version of the Common Criteria for Adverse Events
ClinicalTrials.gov study NCT04050072. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Pre-Implementation Study of Improving Thoracic Surgical Care Using Electronic Patient-Reported Outcomes (ePROS)
ClinicalTrials.gov study NCT05311670. IPD Sharing: NO. Countries: 1. Publications: 0.
Patient-Reported Outcomes in Head and Neck Cancer
ClinicalTrials.gov study NCT03918382. IPD Sharing: NO. Countries: 1. Publications: 0.
Assessing Patient Care Through Routine Use of Patient-Reported Outcomes
ClinicalTrials.gov study NCT01008579. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-reported Outcome Questionnaire for Women With Metastatic Breast Cancer
ClinicalTrials.gov study NCT01282931. IPD Sharing: Not stated. Countries: 1. Publications: 0.
A Study to Evaluate the Effectiveness and Patient-Reported Outcome of Adalimumab in Patients With Moderate to Severe Plaque Psoriasis in China
ClinicalTrials.gov study NCT03236870. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Validation Study of Pediatric Patient-Reported Outcomes
ClinicalTrials.gov study NCT03229837. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Impact of Intensive Outpatient Rehabilitation on Non-Motor Patient-Reported Outcomes in Parkinson's Disease (INTENSO)
ClinicalTrials.gov study NCT06695286. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-Reported OUTcomes of Benralizumab in Real-World Use in Severe EosiNophilic Asthma Patients
ClinicalTrials.gov study NCT05603845. IPD Sharing: YES. Countries: 8. Publications: 0.
A Prospective, Observational Study of Clinician and Patient-reported Outcomes in Patients With Dermatological Conditions
ClinicalTrials.gov study NCT05084417. IPD Sharing: NO. Countries: 1. Publications: 0.
Patient-reported and Clinical Outcomes in Adults With Relapsed or Refractory Hodgkin's Lymphoma Receiving Brentuximab Vedotin
ClinicalTrials.gov study NCT03440788. IPD Sharing: Not stated. Countries: 1. Publications: 0.
PROMBot-HSM-FA: Protocol for a Feasibility Study of a Chatbot Platform to Collect Patient-reported Outcomes After AF Ablation
ClinicalTrials.gov study NCT07237178. IPD Sharing: UNDECIDED. Countries: 0. Publications: 0.
Evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS)-29 v2.1 for Postpartum Women
ClinicalTrials.gov study NCT06002763. IPD Sharing: NO. Countries: 1. Publications: 0.
PROVIDENCE - Prospective Non-interventional Study (NIS) to Examine Patient-reported Outcomes and Real-world Clinical Data in Patients With HER2-positive, HER2-low or HER2-ultralow Unresectable or Meta
ClinicalTrials.gov study NCT05573893. IPD Sharing: YES. Countries: 1. Publications: 0.
Patient-Reported Outcomes (PRO)-Based Palliative and Hospice Care Practice: A Qualitative Study
ClinicalTrials.gov study NCT00878267. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-reported Outcome After Status Epilepticus
ClinicalTrials.gov study NCT05491590. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Development of a Cloud-Based PRO (Patient-Reported Outcome) Management Program for Home-Based Cancer Pain Care
ClinicalTrials.gov study NCT07308223. IPD Sharing: NO. Countries: 1. Publications: 0.
Nurse-Led Electronic Patient-Reported Outcome System to Improve Quality of Life in Chemotherapy Patients
ClinicalTrials.gov study NCT07144449. IPD Sharing: Not stated. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.