Find research datasets worth reusing
Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
236
datasets available to search
ShareScore release 0.9.0
Dataset results
236 results for “patient-reported outcomes”
The Potential of Patient-reported Outcome Measures in Detection of Relapse in Diffuse Large B-cell Lymphoma
ClinicalTrials.gov study NCT04695366. IPD Sharing: NO. Countries: 1. Publications: 0.
Study of Clinical and Patient-reported Outcomes in Adults With Moderate to Severe COPD Treated With Breztri/Trixeo
ClinicalTrials.gov study NCT07069829. IPD Sharing: YES. Countries: 1. Publications: 0.
Developing and Validating a Patient-reported Outcome Instrument to Monitor Symptom Management in Pulmonary Exacerbation in CF
ClinicalTrials.gov study NCT02464267. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-Reported Outcome Study of Project ECHO for ILD
ClinicalTrials.gov study NCT05450276. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-reported Outcome After Sling Insertion Using the Incontinence Outcome Questionnaire (IOQ)
ClinicalTrials.gov study NCT01042275. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Real World Patient-Reported Outcomes in Chinese Her2+ EBC Patients Receiving (Neo) Adjuvant Anti-Her2 Based Therapy
ClinicalTrials.gov study NCT06161922. IPD Sharing: NO. Countries: 1. Publications: 0.
Patient-Reported Outcomes Version of Common Terminology Criteria (CTCPRO) Cognitive Debriefing
ClinicalTrials.gov study NCT00909207. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Development of CELIAC-Q KIDS: A Patient-Reported Outcome Measure for Pediatric Celiac Disease
ClinicalTrials.gov study NCT05548166. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Non-interventional Study to Collect Real-world Clinical and Patient-reported Outcomes in Ovarian Cancer
ClinicalTrials.gov study NCT04830709. IPD Sharing: YES. Countries: 1. Publications: 0.
Patient-Reported Outcomes as an Indicator of Disease Transitions in Heart Failure
ClinicalTrials.gov study NCT04264845. IPD Sharing: Not stated. Countries: 1. Publications: 0.
A 3D-Printed External Breast Prosthesis for the Improvement of Patient-reported Outcomes Among Breast Cancer Patients That Underwent a Mastectomy Without Reconstruction
ClinicalTrials.gov study NCT07047872. IPD Sharing: NO. Countries: 1. Publications: 0.
Finnish Patient-Reported Outcomes Initiative for Shoulder and Elbow
ClinicalTrials.gov study NCT05598541. IPD Sharing: NO. Countries: 1. Publications: 0.
Study Investigating Patient-Reported Outcomes in Lower-risk MDS Patients
ClinicalTrials.gov study NCT05582902. IPD Sharing: Not stated. Countries: 2. Publications: 0.
A Feasibility Study Investigating Chemotherapy-induced Neuropathy Using Multi-frequency Tactilometry and Patient-reported Outcomes (PRO)
ClinicalTrials.gov study NCT04167319. IPD Sharing: NO. Countries: 1. Publications: 0.
Patient-reported Outcome Measures (PROMs) in Patients With Bodily Stress Syndrome: Protocol for a Prospective Cohort Study
ClinicalTrials.gov study NCT04667611. IPD Sharing: NO. Countries: 1. Publications: 0.
A Study to Assess Real-World Patient-Reported Outcomes With Fedratinib for Myelofibrosis Post-Ruxolitinib
ClinicalTrials.gov study NCT05665192. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient-reported Outcomes in the Bergen Early Cardiac Rehabilitation Study
ClinicalTrials.gov study NCT03810599. IPD Sharing: NO. Countries: 1. Publications: 0.
Development of a Patient-reported Outcome Measure for Chiari Malformation and Syringomyelia
ClinicalTrials.gov study NCT06011226. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Pyruvate Kinase (PK) Deficiency Global Longitudinal Registry: Patient-Reported Outcomes (PRO)
ClinicalTrials.gov study NCT04964323. IPD Sharing: NO. Countries: 5. Publications: 0.
OGSA-PROMs-2023, a collection of musculoskeletal disorders' public open datasets of patient-reported outcome measures (PROMs)
<p>The datasets in this archive are three patient-reported outcome measure (PROM) musculoskeletal disorders' registry datasets, derived from the knee, hip and spine pathology registries developed and managed since 2018 at the IRCCS Ospedale Galeazzi--Sant'Ambrogio (OGSA) hospital, located in Milan (Italy, EU), one of the major orthopedics research hospitals within the European Union.</p> <p><br>The three datasets describe around 15 thousand surgical events, corresponding to more than 13 thousand unique patients whose health and quality of life has been monitored across a period of more than years, starting from the preoperatory stage, through a variety of general and pathology-specific PROM' questionnaires.</p> <p> </p> <p>Each record in the datasets represent a surgical event, and a single patient can be associated with multiple surgical events: the complete surgical history of a patient can be reconstructed by matching on the uid column. The datasets contain three main different types of data, collected at different times during the patient surgical and rehabilitation journey and through different acquisition modalities:</p> <ul> <li>Clinical and demographical data;</li> <li>Surgical event data;</li> <li>PROM data, including both individual PROM questionnaire items as well as calculated PROM scores.</li> </ul> <p>PROM data are collected at pre-operatory time as well as at different follow-ups, namely 3, 6, 12, 24, 60 months after surgery. </p> <p>The data have been pseudo-anonymized by removing potentially identifying fields, including all text fields (except for the operator name, which has been hashed using SHAKE-128).</p>
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.