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272 results for “childhood cancer”
Hungarian Childhood Cancer Registry
Since 1973, the Hungarian Pediatric Oncology Network has operated the Childhood Cancer Registry, summarizing data on the epidemiology, treatment methods, outcomes, and long-term follow-up of childhood cancer cases. The Registry is located at the Pediatric Center of Semmelweis University. A significant shift occurred in data collection and reporting, transitioning to an online reporting system in April 2010, replacing the previous paper-based system. Data sources include the National Health Insurance Fund and the centers of the Hungarian Pediatric Oncology Network. The Registry includes all Hungarian children aged 0 to 18 years with a social security card, focusing on online data entry, with data verification and registry completeness monitored through strict written procedures. Data publication occurs in various forms, including annual reports, scientific publications, and presentations.
Epidemiology and geographical patterns of common childhood cancers in Iran: Evidence from the National Cancer Registry
The objective of this study is to examine the geographical spread of childhood cancer incidence in Iranian provinces by utilizing data from the National Registry collected between 2014 and 2018, thus presenting up-to-date statistics about childhood cancer in Iran.
MicroRNA Childhood Cancer Catalog Version 2.0
The principle of this platform is, based on the translational bioinformatics spectrum, to bring miRNA research into clinical validity then clinical utility in both patient care and drug discovery using digital innovation and health informatics in childhood cancer diseases. M3Cs version 2.0 seeks to contribute to the achievement of SDG Goal 3: 'Ensure healthy lives and promote well-being for all at all ages', and SDG Goal 9 'Innovation and infrastructure' especially Target 9.5, as well as SDG Goal 17 'Partnership'.
Norwegian Childhood Cancer Biobank
The childhood cancer biobanking started at Oslo University Hospital in March 2017 and was from 2019 run as a national Norwegian Childhood Cancer Biobank. Informed consent and biological samples are collected regionally and stored centrally. Approximately 12,000 samples from 510 patients and have been included by January 1, 2021, representing a 96% consent and participation rate among our newly diagnosed patients.
Beat Childhood Cancer
The Beat Childhood Cancer research consortium is a group of 40+ universities and children's hospitals that offer a worldwide network of childhood cancer clinical trials coordinated by Levine Children's Hospital in Charlotte, North Carolina. These trials are based on the research from a group of closely collaborating investigators who are linked with laboratory programs developing novel therapies for high-risk pediatric cancers. Our mission is to continue to use precision medicine to bring forward new therapies for children with cancer with the goal of finding a cure for these patients.
Childhood Cancer Registry 2021 Annual Report
This is the fourth annual childhood cancers report using the International Classification of Childhood Cancers Third Edition (ICCC-3) by the NCR. This 2021 report includes the age-group 15-19 years old for the first time. The inclusion of adolescents aged 15 - 19 aligns with international childhood classification standards; and also due to the need to know more about cancers in this age group within the South African context. A total of 1,378 cancers were diagnosed in children aged 0 - 19 years old in South Africa in 2021.
Genomic Profiling of Relapsed and Refractory Childhood Cancers
Through clinical trials focused on molecularly guided therapy in pediatric cancers (NCT01355679, NCT01802567, NCT02162732), the Beat Childhood Cancer Consortium performed paired tumor/normal whole exome sequencing and/or tumor mRNA sequencing for 202 pediatric or adolescent young adult patients with rare, relapsed and refractory cancers (including neuroblastoma, Ewing sarcoma, osteosarcoma, rhabdomyosarcoma, ependymoma, glioma, and other rare solid tumors). A subset of these patients had multiple biopsies sequenced, including longitudinal profiling.
Gabriella Miller Kids First Pediatric Research Program in Genetics at the Intersection of Childhood Cancer and Birth Defects
Birth defects and childhood cancer share biological pathways that are important for cell growth and division. We propose that sequencing pediatric patients suffering both conditions will allow us to discover the underlying genes and in turn advance our understanding of the causes of these devastating diseases.
Gabriella Miller Kids First Pediatric Research Program in Genetics at the Intersection of Childhood Cancer and Birth Defects
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Childhood Cancer Data Initiative (CCDI): Admixture Analysis of Acute Lymphoblastic Leukemia in African American Children - The ADMIRAL Study
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METRONOMIC TOPOTECAN CAUSES THERAPY-INDUCED TUMOR CELL SENESCENCE AND LOSS OF AGGRESSIVE PROPERTIES IN MYCN-AMPLIFIED CHILDHOOD CANCER [IN VIVO]
GEO Series GSE59297. Homo sapiens. 6 samples. Type: Expression profiling by array.
National Childhood Cancer Registry Data Platform
The NCCR Data Platform includes data from individuals diagnosed with an initial cancer under age 40 residing in any 18 NCCR registry for cancers reported from 1995 to 2021 from the following Central Cancer Registries: California (Greater Bay, Greater California, Los Angeles), Colorado, Connecticut, Georgia, Hawai'i, Idaho, Illinois, Iowa, Kentucky, Louisiana, Massachusetts, Michigan, New Jersey, New Mexico, New York, Seattle-Puget Sound, Tennessee, Texas, Utah, and Wisconsin. These NCCR registries represent 58% of all U.S. children, adolescents, and young adults aged 0-39 based on the 2020 U.S. population. In addition to registry data, the Data Platform supports exploration of data from other sources like pharmacy and medical claims, social drivers of health, Children's Oncology Group, Virtual Pooled Registry, and electronic health record systems and other clinical information systems from treating facilities that provide more in-depth information on the patient's cancer journey and survivorship. Researchers can use the Data Platform to submit requests for custom datasets for analysis and visualize aggregate statistics about available data for hypothesis generation and planning study designs. An individual person may have multiple cancers over their life course. For this reason, the total Case Age at Diagnosis and Case Disease Diagnosis counts are greater than the case count. The Case Age at Diagnosis count greater than 39 years represent subsequent diagnoses.
National Childhood Cancer Registry Explorer
NCCR*Explorer provides incidence, survival, and prevalence statistics for cancers in children and adolescent and young adults ages 0-39, using data from the National Childhood Cancer Registry (NCCR). It provides detailed statistics for a cancer site by sex, race/ethnicity, and age, and allows for comparison across cancer sites and subsites. Data from Cancer in North America (CiNA) (North American Association of Central Cancer Registries (NAACCR) 1995-2020 and the NCI's Surveillance, Epidemiology and End Results (SEER) Registries), submitted December 2022). Registries include: Arkansas, California (Greater Bay, Greater California, Los Angeles), Connecticut, Florida, Georgia, Hawaii, Idaho, Illinois, Iowa, Kentucky, Louisiana, Massachusetts, Michigan, New Jersey, New Mexico, New York, Ohio, Pennsylvania, Seattle (Puget Sound), Tennessee, Texas, Utah, Wisconsin. These 25 NCCR registries represent 70% of all U.S. children, adolescents, and young adults ages 0-39 based on 2020 U.S. Populations.
National Childhood Cancer Registry Database in SEER*Stat
The September 2023 release of the NCCR database in SEER*Stat includes only 15 NCCR States and Seattle (for reported cancers from 1997-2020): California, Connecticut, Georgia, Hawaii, Idaho, Illinois, Iowa, Kentucky, Louisiana, Massachusetts, New Jersey, New Mexico, New York, Seattle (Puget Sound), Texas, and Utah. Additional registries are still securing approval for release of their data in SEER*Stat. These NCCR registries represent 49% of all U.S. children, adolescents, and young adults ages 0-39 based on 2020 U.S. Populations. Data are from North American Association of Central Cancer Registries (NAACCR) Cancer in North America (CiNA) submission, submitted December 2022.
Childhood Cancer Data Initiative (CCDI): Integrating Longitudinal Clinical, Sociodemographic and Genomic Data into the NCCR
The goal of this study is to contribute clinical and genomic data from a large institutional cohort of pediatric cancer patients who had tumor genomic profiling between 2013 and 2019 at Dana-Farber/Boston Children's Hospital Cancer and Blood Disorders Center. Clinical data include demographics, diagnosis, stage, and biospecimen associated data. Tumors were sequenced with OncoPanel, a targeted next-generation DNA sequencing panel of up to 447 cancer genes for detection of single-nucleotide variants (SNV), insertions, and deletions, and copy number alterations (CNA), as well as selected intronic regions for up to 60 genes for the detection of structural variants (SV).
Dutch Childhood Cancer Survivor Study
In the Netherlands, we have identified more than 12,000 5-year survivors treated for childhood cancer between 1963 and 2014. 6,165 survivors participated in the multidisciplinary DCCSS-LATER study part 1, which included data about childhood cancer diagnosis and treatment, health, lifestyle, and psychosocial functioning from questionnaires, and data on health outcomes from linkage to health registries. So far, 2,400 survivors (also) participated in the DCCSS-LATER study part 2 and visited the LATER outpatient clinic for additional medical data and blood sample collection.
Childhood Cancer Incidence Rates for the State of Georgia, 2014-2023
Childhood Cancer Incidence, Ages 0 to 19, Georgia, 2014-2023
German Childhood Cancer Registry
Currently 81,323 cases are registered, and annually another 2,300 are reported. Almost 48,400 of these are in active longterm surveillance. Below we report the average annual cases among children aged 0 to 17 years between 2015 and 2024.
Young Survivors at KSA: registry for standardised assessment of long-term and late-onset health events in survivors of childhood and adolescent cancer-a study protocol
A high proportion of survivors of childhood and adolescent cancer experience chronic medical conditions - late effects. Most studies on late effects have a retrospective or questionnaire-based design, which leads to unavoidable limitations such as missing data or different severity coding and grading of late effects. We, therefore, need prospective data, including standardised severity coding and grading. 'Young Survivors at KSA' aims to close this gap by assessing frequency, severity, risk factors and longitudinal changes of late effects in childhood cancer survivors prospectively and in a standardised way. Within the 'Young Survivors at KSA' registry, we collect data from regular follow-up visits in a comprehensive database prospectively and repeatedly from start of the study and retrospectively at most until January 2016.
PMGH Childhood Cancer Registry
Goals included education, childhood cancer registry implementation, clinical support, stakeholder engagement and supply of practical resources. Outcomes include enhanced nursing capacity with the establishment of a national oncology nurses association for peer support and ongoing educational opportunities. Key learnings include identifying palliative care as an unmet need, unique cultural aspects allowing for future targeted education, further collaboration on adapted treatment regimens, and formalised multidisciplinary meetings for enhanced practice.
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Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.