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216 results for “consent”
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
ClinicalTrials.gov study NCT03141307. IPD Sharing: NO. Countries: 1. Publications: 4.
Decisional Capacity and Informed Consent in Fragile X Syndrome
ClinicalTrials.gov study NCT02465931. IPD Sharing: NO. Countries: 1. Publications: 2.
Multicentre Study to Determine the Feasibility of Using an Integrated Consent Model to Compare Three Standard of Care Regimens for The Treatment of Triple-Negative Breast Cancer in the Neoadjuvant/Adj
ClinicalTrials.gov study NCT02688803. IPD Sharing: UNDECIDED. Countries: 1. Publications: 2.
Health Literacy Intervention for Informed Consent of Cancer Patients Considering Clinical Trial Participation
ClinicalTrials.gov study NCT01964222. IPD Sharing: Not stated. Countries: 1. Publications: 19.
Innovative Approaches for Minor Consent: Consent 2.0
ClinicalTrials.gov study NCT03242954. IPD Sharing: YES. Countries: 1. Publications: 1.
Bundle Consent and Expectation Setting in Pediatric Intensive Care Unit
ClinicalTrials.gov study NCT04697173. IPD Sharing: NO. Countries: 1. Publications: 3.
Educational CD-ROM Compared With Standard Informed Consent for Patients With Colorectal Cancer or a Family History of Colorectal Cancer
ClinicalTrials.gov study NCT00450424. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Protocol, case report(s), ethics approvals, informed consent, inclusion and exclusion criteria underlying: The effect of morning versus evening administration of empagliflozin on its pharmacokinetics and pharmacodynamics characteristics in healthy adults: a two-way crossover, non-randomised trial
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Health sciences librarians’ awareness and incorporation of informed consent standards for medical image publication: A preliminary study
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Data from: The appropriateness of language found in research consent form templates: a computational linguistic analysis
Background: To facilitate informed consent, consent forms should use language below the grade eight level. Research Ethics Boards (REBs) provide consent form templates to facilitate this goal. Templates with inappropriate language could promote consent forms that participants find difficult to understand. However, a linguistic analysis of templates is lacking. Methods: We reviewed the websites of 124 REBs for their templates. These included English language medical school REBs in Australia/New Zealand (n=23), Canada (n=14), South Africa (n=8), the United Kingdom (n=34), and a geographically-stratified sample from the United States (n=45). Template language was analyzed using Coh-Metrix linguistic software (v.3.0, Memphis, USA). We evaluated the proportion of REBs with five key linguistic outcomes at or below grade eight. Additionally, we compared quantitative readability to the REBs' own readability standards. To determine if the template's country of origin or the presence of a local REB readability standard influenced the linguistic variables, we used a MANOVA model. Results: Of the REBs who provided templates, 0/94 (0%, 95% CI=0-3.9%) provided templates with all linguistic variables at or below the grade eight level. Relaxing the standard to a grade 12 level did not increase this proportion. Further, only 2/22 (9.1%, 95% CI= 2.5-27.8) REBs met their own readability standard. The country of origin (DF= 20, 177.5, F=1.97, p=0.01), but not the presence of an REB-specific standard (DF=5, 84, F=0.73, p=0.60), influenced the linguistic variables. Conclusions: Inappropriate language in templates is an international problem. Templates use words that are long, abstract, and unfamiliar. This could undermine the validity of participant informed consent. REBs should set a policy of screening templates with linguistic software.
Supplementary Material for "Is Personalization Worth It? Notifying Blogs about a Privacy Issue Resulting from Poorly Implemented Consent Banners"
<p>This record contains the supplementary material for the paper "Is Personalization Worth It? Notifying Blogs about a Privacy Issue Resulting from Poorly Implemented Consent Banners" which was published at ARES 2024. In detail, we present all of our message texts (initial notification, reminder, debriefing and responses to individual replies), the translated questions of our short survey, and the anonymized data of our study outcome.</p>
Dataset for Spence et al., "Patient consent to publication and data sharing in industry and NIH-funded clinical trials" (Trials 2018 19:269).
<p>Dataset for our journal publication (Spence et al. 2018 <a href="https://doi.org/10.1186/s13063-018-2651-2">https://doi.org/10.1186/s13063-018-2651-2</a>). This dataset contains</p> <ul> <li>Informed consent forms (ICFs) for 98 industry-funded clinical trials</li> <li>Informed consent forms (ICFs) for 46 NIH-funded clinical trials</li> <li>Our extraction datasheet</li> </ul>
A pre-post implementation survey of a multi-component intervention to improve informed consent for caesarean section in Southern Malawi
<p>Objective Surgical informed consent is essential prior to caesarean section, but potentially compromised by insufficient communication. We assessed the association between a multi-component intervention and women's recollection of information pertaining to informed consent for caesarean section in a low-resource setting, thereby contributing to respectful maternity care. Design Pre-post implementation survey, conducted from January to June 2018, surveying women prior to discharge. Setting Rural 150-bed mission hospital in Southern Malawi. Participants A total of 160 postoperative women were included: 80 pre- and 80 post-implementation. Intervention Based on observed deficiencies and input from local stakeholders a multi-component intervention was developed, consisting of a standardised checklist, wall poster with a six-step guide and on-the-job communication training for health workers. Primary and secondary outcome measures Individual components of informed consent were: indication, explanation of procedure, common complications, implications for future pregnancies and verbal enquiry of consent, which were compared pre- and post-intervention using χ2 test. Generalized linear models were used to analyse incompleteness scores and recollection of the informed consent process. Results The proportion of women who recollected being informed about procedure-related risks increased from 25/80 to 47/80 (OR 3.13 [95% Confidence Interval 1.64-6.00]). Recollection of an explanation of the procedure changed from 44/80 to 55/80 (OR 1.80[0.94-3.44]), implications for future pregnancy from 25/80 to 47/80 (1.69[0.89-3.20]) and of consent enquiry from 67/80 to 73/80 (OR 2.02 [0.73-5.37]). After controlling for other variables, incompleteness scores post-intervention were 26% lower (Exp(β)=0.74; 95% CI 0.57 – 0.96). Recollection of common complications increased by 29% (Exp(β)=1.29; 95% CI 1.01 – 1.64). Recollection of the correct indication did not differ significantly. Conclusion Recollection of informed consent for caesarean section changed significantly in the post-intervention group. Obtaining informed consent for caesarean section is one of the essential components of respectful maternity care.</p>
APPENDIX L - Workshop Attendance Sheet and Informed Consent Form
<p>APPENDIX L - Workshop Attendance Sheet and Informed Consent Form for Memoryscapes in Recto-spection: Visualizing Avenida, Recto, and Carriedo, Manila as Virtual Memoryscapes through immersive mobile technologies and digital heritage interpretation. Thesis Adviser: Dr. Cathe Desiree S. Nadal, Ph. D.</p>
Subject Information and Consent Form F1J-US-HMCB Duloxetine Once-Daily Dosing Versus Placebo in Patients With Major Depression and Pain
ClinicalTrials.gov study NCT00036335. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Video Consent Form Versus Written Consent Form for ERCP
ClinicalTrials.gov study NCT02810379. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Improving Informed Consent for Cleft Palate Repair
ClinicalTrials.gov study NCT02595307. IPD Sharing: NO. Countries: 1. Publications: 7.
Optimizing the Consent Process for Emergent Laparoscopic Cholecystectomy
ClinicalTrials.gov study NCT04852016. IPD Sharing: NO. Countries: 1. Publications: 1.
Telemedicine's Utility for Augmenting Clinical Trials and Informed Consent TACTIC
ClinicalTrials.gov study NCT00390286. IPD Sharing: Not stated. Countries: 1. Publications: 7.
Optimizing Kidney Transplant Informed Consent
ClinicalTrials.gov study NCT01859884. IPD Sharing: Not stated. Countries: 1. Publications: 1.
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International Brain Laboratory public data
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OpenNeuro
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