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datasets available to search
ShareScore release 0.9.0
Dataset results
67 results for “newborn screening”
Baby Detect : Genomic Newborn Screening
ClinicalTrials.gov study NCT05687474. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Whole Exome Screening of Newborns
ClinicalTrials.gov study NCT05325749. IPD Sharing: Not stated. Countries: 1. Publications: 1.
A Pilot Study to Assess the Feasibility and Acceptability of Newborn Screening Using in Silico Panel-based Solo Genome Sequencing in France
ClinicalTrials.gov study NCT06875089. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
False Positive Results in Newborn Hearing Screening
ClinicalTrials.gov study NCT00753194. IPD Sharing: Not stated. Countries: 1. Publications: 1.
ScreenPlus: A Comprehensive, Flexible, Multi-disorder Newborn Screening Program
ClinicalTrials.gov study NCT05368038. IPD Sharing: NO. Countries: 1. Publications: 3.
Genetic Newborn Screening for Rare Diseases Within the Screen4Care Project
ClinicalTrials.gov study NCT06549218. IPD Sharing: NO. Countries: 3. Publications: 0.
An Adaptive Clinical Trial of BeginNGS Newborn Screening for Hundreds of Genetic Diseases by Genome Sequencing
ClinicalTrials.gov study NCT06306521. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Data from: Perfusion index in newborns during critical congenital heart disease screening at 24 hours in healthy newborns: retrospective observational study from the United States
Objective: To describe the distribution of Perfusion Index (PI) in asymptomatic newborns at 24 hours of life when screening for Critical Congenital Heart Disease (CCHD) using an automated data selection method. Design: This is a retrospective observational study. Setting: Newborn nursery in a California public hospital with 3500 to 4000 deliveries annually. Methods: We developed an automated program to select the PI values from CCHD screens. Included were term and late preterm infants who were screened for CCHD from November 2013 to January 2014 and from May 2015 to July 2015. PI measurements were downloaded every 2 seconds from the pulse oximeter and median PI were calculated for each oxygen saturation screen in our cohort. Results: We included data from 2768 oxygen saturation screens. Each screen had a median of 29 data points (interquartile range 17 to 49). The median PI in our study cohort was 1.8 (95% confidence interval 1.8 to 1.9) with interquartile range 1.2 to 2.7. The median pre-ductal PI was significantly higher than the median post-ductal (1.9 vs. 1.8, p = 0.03) although this difference may not be clinically significant. Conclusion: Using an automated data selection method, the median PI in asymptomatic newborns at 24 hours of life is 1.8 with a narrow interquartile range of 1.2 to 2.7. This automated data selection method may improve accuracy and precision compared to manual data collection method. Further studies are needed to establish external validity of this automated data selection method and its clinical application for CCHD screening.
Parent Education and Choice About Newborn Screening and Bloodspot Retention
ClinicalTrials.gov study NCT02676245. IPD Sharing: Not stated. Countries: 0. Publications: 2.
Developing Newborn Screening for Infants With Primary Immunodeficiency
ClinicalTrials.gov study NCT00113464. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Surveying Parents About Genome Screening of Newborns
ClinicalTrials.gov study NCT01736501. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Benefits and Risks of Newborn Screening for Cystic Fibrosis
ClinicalTrials.gov study NCT00014950. IPD Sharing: Not stated. Countries: 1. Publications: 6.
Data from: Perfusion index in newborns during critical congenital heart disease screening at 24 hours in healthy newborns: retrospective observational study from the United States
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Universal Ultrasound-screening for Developmental Dysplasia of the Hip in Newborn
ClinicalTrials.gov study NCT01053299. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Newborn Screening for Adrenoleukodystrophy
ClinicalTrials.gov study NCT02952482. IPD Sharing: NO. Countries: 1. Publications: 0.
Hearing Screening Outcomes of Two Screening Tests in Newborns of Gestational Diabetic Mothers
ClinicalTrials.gov study NCT04845412. IPD Sharing: NO. Countries: 1. Publications: 0.
Evaluation of a Smartphone-based Screening Tool (Picterus Jaundice Pro) for Neonatal Jaundice in Dark Skin Newborns
ClinicalTrials.gov study NCT05650463. IPD Sharing: NO. Countries: 1. Publications: 0.
Newborn Sequencing Screening in China
ClinicalTrials.gov study NCT05476640. IPD Sharing: UNDECIDED. Countries: 0. Publications: 0.
Newborn Screening for Severe Combined Immunodeficiency (SCID) in a High-Risk Population
ClinicalTrials.gov study NCT00845416. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Proactive Counselling Towards Follow-ups in Newborn Hearing Screening
ClinicalTrials.gov study NCT04988061. IPD Sharing: NO. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.