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93 results for “patient reported outcome measures”
Evaluation of Routinely Measured Patient-reported Outcomes in Hemodialysis Care
ClinicalTrials.gov study NCT03535922. IPD Sharing: NO. Countries: 1. Publications: 11.
Measurement of Patient Reported Outcomes in Korean Renal Transplant Patients With and Without Gastrointestinal (GI) Symptoms
ClinicalTrials.gov study NCT00529269. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Patient Reported Outcome Measures for Ablation of Cardiac Arrhythmias
ClinicalTrials.gov study NCT01672528. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Comparison of Patient Reported Outcome Measures Using the BREAST-Q Questionnaire in Patients Undergoing Pre Versus Sub-pectoral Implant Based Immediate Breast Reconstruction.
ClinicalTrials.gov study NCT04842240. IPD Sharing: NO. Countries: 1. Publications: 1.
Personalized Perioperative Care Based on Patient Reported Outcomes Measures
ClinicalTrials.gov study NCT06182254. IPD Sharing: NO. Countries: 1. Publications: 0.
Financial Effects of a Tumor Disease - Development and Validation of a Patient Reported Outcome Measure in Germany
ClinicalTrials.gov study NCT05319925. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Web-based Patient Reported Outcome Measurement Information System (PROMIS ) to Explore Burden and Stress in Cancer Caregivers (BaSiC2)
ClinicalTrials.gov study NCT01981538. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Providing Standardized Consented PROMs (Patient Reported Outcome Measures) for Improving Pain Treatment
ClinicalTrials.gov study NCT03834922. IPD Sharing: NO. Countries: 1. Publications: 2.
Implementing Individualized Patient Reported Outcome Measures in Routine Care of Patients With Coronary Artery Disease
ClinicalTrials.gov study NCT06164457. IPD Sharing: NO. Countries: 1. Publications: 9.
Patient-reported Outcome Measures Comparing Static Computer-aided Implant Surgery and Conventional Implant Surgery
ClinicalTrials.gov study NCT04950491. IPD Sharing: NO. Countries: 1. Publications: 27.
Evaluation of an ICU-specific Questionnaire for Patient-reported Outcome Measures
ClinicalTrials.gov study NCT02767180. IPD Sharing: UNDECIDED. Countries: 1. Publications: 4.
Correlation Between Intraoperative Tourniquet Use and Limb pH, Functional Measures and Patient-reported Outcomes After Ankle Fracture Surgery
ClinicalTrials.gov study NCT05445960. IPD Sharing: NO. Countries: 1. Publications: 5.
Patient and Observer Reported Outcome Measurements in Inborn Errors of Metabolism
ClinicalTrials.gov study NCT04248062. IPD Sharing: NO. Countries: 1. Publications: 4.
Measurement of Patient Reported Gastrointestinal (GI) and Health-related Quality of Life (HRQL) Outcomes in Renal Transplant Recipients (MyLife)
ClinicalTrials.gov study NCT00149968. IPD Sharing: Not stated. Countries: 2. Publications: 2.
A review of response rates over time in registry-based studies using patient-reported outcome measures
<p class="Brdtekst1"><b>Objectives</b>: Gain an overview of expected response rates (RRs) to patient-reported outcome measures (PROMs) in clinical quality registry-based studies and long-term cohorts in order to better evaluate the validity of registries and registry-based studies. Examine the trends of RRs over time and how they vary with study type, questionnaire format, and the use of reminders.</p> <p class="Brdtekst1"><b>Design</b>: Literature review with systematic search.</p> <p class="Brdtekst1"><b>Data</b> <b>sources</b>: PubMed, MEDLINE, EMBASE, kvalitetsregistre.no, kvalitetsregister.se, and sundhed.dk.</p> <p class="Brdtekst1"><b>Eligibility criteria</b>: Articles in all areas of medical research using registry-based data or cohort design with at least two follow-up time-points collecting PROMs and reporting RRs. Annual reports of registries including PROMs that report RRs for at least two time-points.</p> <p class="Brdtekst1"><b>Primary outcome measure</b>: Response rates to PROMs.</p> <p class="Brdtekst1"><b>Results</b>: A total of 10 articles, 12 registry reports, and 6 registry articles were included in the review. The overall RR at baseline was 75% ±22.1 but decreased over time. Cohort studies had a markedly better RR (baseline 97% ±4.7) compared to registry-based data at all time points (baseline 72% ±21.8). For questionnaire formats, paper had the highest RR at 86% ±19.4, a mix of electronic and paper had the second highest at 71% ±15.1, and the electronic-only format had a substantially lower RR at 42% ±8.7. Sending one reminder (82% ±16.5) or more than one reminder (76% ±20.9) to non-responders resulted in a higher RR than sending no reminders (39% ±6.7).</p> <p class="Brdtekst1"><b>Conclusions</b>: The large variation and downward trend of RRs to PROMs in cohort and registry-based studies are of concern and should be assessed and addressed when using registry data in both research and clinical practice.</p>
Development and Validation of a Patient-Reported Outcome Measure for Hereditary Spastic Paraplegia
<p>This dataset is related to HSP-SNAP test retest in patients with Hereditary Spastic paraplegia (HSP). It also contains HSP-SNAP as assesssed by age-matched healthy subjects. </p> <p>Gender, age are reported for both groups. </p> <p>Age at onset, SPRS, 6 minute walking test and SF-36 are also reported for patients with HSP.</p> <p> </p> <p>please cite the following work if you use this dataset:</p> <p>Diella E, D'Angelo MG, Stefan C, Girardi G, Morganti R, Martinuzzi A, Biffi E. Validation of the Italian version of a patient-reported outcome measure for Hereditary Spastic Paraplegia. PLoS One. 2024 Apr 1;19(4):e0301452. doi: 10.1371/journal.pone.0301452. PMID: 38557877; PMCID: PMC10984402.</p>
Development of a Patient-reported Outcome Measure for Women With Chronic Pelvic Pain
ClinicalTrials.gov study NCT06083597. IPD Sharing: YES. Countries: 1. Publications: 0.
Patient-reported Outcome Measures After Implant Placement With Contour Augmentation Procedure
ClinicalTrials.gov study NCT05890170. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
The Utility of Mobile Based Application for Patient Reported Outcome Measures In Patients With Acetabular Fractures : A Randomized Clinical Trial
ClinicalTrials.gov study NCT06298578. IPD Sharing: Not stated. Countries: 0. Publications: 14.
A review of response rates over time in registry-based studies using patient-reported outcome measures
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