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493
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Dataset results
493 results for “patient‐reported outcomes”
Real-world Patient Reported Outcomes Among Patients Treated With Camzyos
ClinicalTrials.gov study NCT06551129. IPD Sharing: NO. Countries: 1. Publications: 0.
Study Investigating Patient-Reported Outcomes in Lower-risk MDS Patients
ClinicalTrials.gov study NCT05582902. IPD Sharing: Not stated. Countries: 2. Publications: 0.
A Feasibility Study Investigating Chemotherapy-induced Neuropathy Using Multi-frequency Tactilometry and Patient-reported Outcomes (PRO)
ClinicalTrials.gov study NCT04167319. IPD Sharing: NO. Countries: 1. Publications: 0.
Patient-reported Outcome Measures (PROMs) in Patients With Bodily Stress Syndrome: Protocol for a Prospective Cohort Study
ClinicalTrials.gov study NCT04667611. IPD Sharing: NO. Countries: 1. Publications: 0.
Role of PRoactivE Coaching on PAtient REported Outcome in Advanced or Metastatic RCC Treated With Sunitinib or a Combination of Pembrolizumab + Axitinib or Avelumab + Axitinib in First Line Therapy
ClinicalTrials.gov study NCT03013946. IPD Sharing: NO. Countries: 1. Publications: 0.
The Application of Symptoms Management Program Based on the Patient Reported Outcome After Esophagectomy
ClinicalTrials.gov study NCT07187154. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
A Study to Assess Real-World Patient-Reported Outcomes With Fedratinib for Myelofibrosis Post-Ruxolitinib
ClinicalTrials.gov study NCT05665192. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Patient Reported Outcomes With WaveLight Plus LASIK
ClinicalTrials.gov study NCT07084844. IPD Sharing: NO. Countries: 1. Publications: 0.
Patient-reported Outcomes in the Bergen Early Cardiac Rehabilitation Study
ClinicalTrials.gov study NCT03810599. IPD Sharing: NO. Countries: 1. Publications: 0.
Development of a Patient-reported Outcome Measure for Chiari Malformation and Syringomyelia
ClinicalTrials.gov study NCT06011226. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Pyruvate Kinase (PK) Deficiency Global Longitudinal Registry: Patient-Reported Outcomes (PRO)
ClinicalTrials.gov study NCT04964323. IPD Sharing: NO. Countries: 5. Publications: 0.
PaRTNer: Patient Reported Outcomes and Financial Toxicity in Head and Neck Cancer A Pilot, Survey Based Study
ClinicalTrials.gov study NCT03506451. IPD Sharing: NO. Countries: 1. Publications: 0.
Chromosomal instability associated with adverse outcome: a case report of patient with Nijmegen breakage syndrome and rapidly developed T-NHL with complex karyotype
GEO Series GSE148229. Homo sapiens. 1 samples. Type: Genome variation profiling by SNP array.
Injection Schemes and Self-Reported Outcomes for Patients Receiving Botulinum Toxin Injections into the Obliquus Capitis Inferioris (OCI)
Open the record for dataset details and reuse information.
Detecting the Effect Size of Weather Conditions on Patient- Reported Outcome Measures (PROMs)
<p>RD</p>
OGSA-PROMs-2023, a collection of musculoskeletal disorders' public open datasets of patient-reported outcome measures (PROMs)
<p>The datasets in this archive are three patient-reported outcome measure (PROM) musculoskeletal disorders' registry datasets, derived from the knee, hip and spine pathology registries developed and managed since 2018 at the IRCCS Ospedale Galeazzi--Sant'Ambrogio (OGSA) hospital, located in Milan (Italy, EU), one of the major orthopedics research hospitals within the European Union.</p> <p><br>The three datasets describe around 15 thousand surgical events, corresponding to more than 13 thousand unique patients whose health and quality of life has been monitored across a period of more than years, starting from the preoperatory stage, through a variety of general and pathology-specific PROM' questionnaires.</p> <p> </p> <p>Each record in the datasets represent a surgical event, and a single patient can be associated with multiple surgical events: the complete surgical history of a patient can be reconstructed by matching on the uid column. The datasets contain three main different types of data, collected at different times during the patient surgical and rehabilitation journey and through different acquisition modalities:</p> <ul> <li>Clinical and demographical data;</li> <li>Surgical event data;</li> <li>PROM data, including both individual PROM questionnaire items as well as calculated PROM scores.</li> </ul> <p>PROM data are collected at pre-operatory time as well as at different follow-ups, namely 3, 6, 12, 24, 60 months after surgery. </p> <p>The data have been pseudo-anonymized by removing potentially identifying fields, including all text fields (except for the operator name, which has been hashed using SHAKE-128).</p>
Patient-Reported Outcomes in Real-life of Cabotegravir and Rilpivirine
ClinicalTrials.gov study NCT06403865. IPD Sharing: NO. Countries: 0. Publications: 0.
Evaluation of the Quality of Life of Patients Requiring Intestinal Cleansing Using Oral Medications to Imaging Procedure by Patient Reported Outcome
ClinicalTrials.gov study NCT02536729. IPD Sharing: Not stated. Countries: 0. Publications: 0.
Clinical and Patient-reported Outcomes After Total Wrist Arthroplasty and Total Wrist Arthrodesis
ClinicalTrials.gov study NCT05693636. IPD Sharing: NO. Countries: 0. Publications: 0.
Patient Reported Outcomes Following Parotid Resections
ClinicalTrials.gov study NCT03201484. IPD Sharing: Not stated. Countries: 0. Publications: 0.
ScienceDex guides
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.