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493
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ShareScore release 0.9.0
Dataset results
493 results for “patient‐reported outcomes”
A Study Utilizing Patient-Reported and Radiographic Outcomes and Evaluating the Safety and Efficacy of Lorecivivint (SM04690) for the Treatment of Moderately to Severely Symptomatic Knee Osteoarthriti
ClinicalTrials.gov study NCT03928184. IPD Sharing: NO. Countries: 1. Publications: 1.
Electronic Patient-Reported Outcomes in Clinical Kidney Practice (ePRO Kidney)
ClinicalTrials.gov study NCT03149328. IPD Sharing: YES. Countries: 1. Publications: 1.
Patient-reported outcomes via electronic health record portal vs. telephone: process and retention data in a pilot trial of anxiety or depression symptoms in epilepsy
Open the record for dataset details and reuse information.
Patient-reported outcomes among people living with HIV on single- versus multi-tablet regimens
Open the record for dataset details and reuse information.
Data from: Self-reported functional status predicts post-operative outcomes in non-cardiac surgery patients with pulmonary hypertension
BACKGROUND: Pulmonary hypertension (PHTN) is associated with increased post-procedure morbidity and mortality. Pre-procedure echocardiography (ECHO) is a widely used tool for evaluation of these patients, but its accuracy in predicting post-procedure outcomes is unproven. Self-reported exercise tolerance has not been evaluated for operative risk stratification of PHTN patients. OBJECTIVE: We analyzed whether self-reported exercise tolerance predicts outcomes (hospi-tal length-of-stay [LOS], mortality and morbidity) in PHTN patients (WHO Class I - V) under-going anesthesia and surgery. METHODS AND FINDINGS: We reviewed 550 non-cardiac, non-obstetric procedures per-formed on 370 PHTN patients at a single institution between 2007 and 2013. All patients had cardiac ECHO documented within 1 year prior to the procedure. Pre-procedure comorbidities and ECHO data were collected. Functional status (< or ? 4 metabolic equivalents of task [METs]) was assigned based on responses to standard patient interview questions during the pre-anesthesia clinic visit. Multiple logistic regression was used to develop a risk score model (Pul-monary Hypertension Outcome Risk Score; PHORS) and determine its value in predicting post-procedure outcomes. In an adjusted model, functional status <4 METs was independently associ-ated with a LOS >7 days (p < .003), as were higher ASA class (p < .002), open surgical approach (p < .002), procedure duration > 2 hours (p < .001), and the absence of systemic hypertension (p = .012). PHORS Score ?2 was associated with an increased 30-day major complication rate (28.7% vs. 19.2%; p < 0.001) and ICU admission rate (8.6% s 2.8%; p = .007), but no statistical difference in hospital readmissions rate (17.6% vs. 14.0%; p = .29), or mortality (3.5% vs. 1.4%; p = .75). Similar ECHO findings did not further improve outcome prediction. CONCLUSIONS: Poor functional status is associated with severe PHTN and predicts increased LOS and post-procedure complications in patients with moderate to severe pulmonary hyperten-sion with different etiologies. A risk assessment model predicts increased LOS with fair accura-cy. A thorough evaluation of underlying etiologies of PHTN should be undertaken in every pa-tient.
Data from: Preoperative falls predict postoperative falls and other adverse patient-reported outcomes
BACKGROUND: Falls are common and linked to morbidity. Our objectives were to characterize postoperative falls, and determine whether preoperative falls independently predicted postoperative falls (primary outcome), functional dependence, quality of life, complications, and readmission. METHODS: This prospective cohort study included 7982 unselected patients undergoing elective surgery. Data were collected from the medical record, a baseline survey, and follow-up surveys approximately 30days and one year after surgery. RESULTS: Fall rates (per 100 person-years) peaked at 175 (hospitalization), declined to 140 (30-day survey), and then to 97 (one-year survey). After controlling for confounders, a history of one, two, and ≥three preoperative falls predicted postoperative falls at 30days (adjusted odds ratios [aOR] 2.3, 3.6, 5.5) and one year (aOR 2.3, 3.4, 6.9). One, two, and ≥three falls predicted functional decline at 30days (aOR 1.2, 2.4, 2.4) and one year (aOR 1.3, 1.5, 3.2), along with in-hospital complications (aOR 1.2, 1.3, 2.0). Fall history predicted adverse outcomes better than commonly-used metrics, but did not predict quality of life deterioration or readmission. CONCLUSIONS: Falls are common after surgery, and preoperative falls herald postoperative falls and other adverse outcomes. A history of preoperative falls should be routinely ascertained.
Psychometric properties of Patient-Reported Outcomes Common Terminology Criteria for Adverse Events (PRO-CTCAE®) in breast cancer patients: the prospective observational multicenter VIP study.
<p>Dataset for the proposed manuscript Psychometric properties of Patient-Reported Outcomes Common Terminology Criteria for Adverse Events (PRO-CTCAE®) in breast cancer patients: the prospective observational multicenter VIP study. </p>
Ethical issues in patient-reported outcomes (PROs) among various populations - a special perspective from dental practice
<p>Video resumen de un artículo presentado en el VI Congreso Latinoamericano de Marketing Social en Brasil</p>
Evaluating the Use of Patient-Reported Outcome Measures for Improving the Inter-Rater Reliability of Common Terminology Criteria for Adverse Event Ratings
ClinicalTrials.gov study NCT04066868. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Patient-reported, Health Economic and Psychosocial Outcomes in Friedreich Ataxia
ClinicalTrials.gov study NCT05943002. IPD Sharing: Not stated. Countries: 3. Publications: 1.
Study to Learn More About Outcomes Reported by Patients Suffering From Type 2 Diabetes Using a Digital Data Collection Tool
ClinicalTrials.gov study NCT04383041. IPD Sharing: UNDECIDED. Countries: 1. Publications: 2.
Patient-Reported Outcome Measures in Lower Extremity Rehabilitation Program PROM_R: Impact on Health Care
ClinicalTrials.gov study NCT06206018. IPD Sharing: NO. Countries: 1. Publications: 5.
Financial Toxicity and Patient-Reported Outcomes in GEP-NEN During Treatment
ClinicalTrials.gov study NCT05334290. IPD Sharing: UNDECIDED. Countries: 1. Publications: 3.
Ultrasound Impact in Rheumatoid Arthritis Patient Reported Outcomes
ClinicalTrials.gov study NCT03228342. IPD Sharing: Not stated. Countries: 1. Publications: 21.
The Diabetes Patient-Reported Outcome Measures Trial
ClinicalTrials.gov study NCT03471104. IPD Sharing: NO. Countries: 1. Publications: 3.
Improving Shared-Decision Making in the Intensive Care Unit Using Patient-reported Outcome Information
ClinicalTrials.gov study NCT05155150. IPD Sharing: NO. Countries: 1. Publications: 1.
Effects of 10 Versus 20 mL Local Anesthetic for Popliteal Plexus Block on Opioid Consumption, Pain, and Patient-Reported Outcomes After Total Knee Arthroplasty
ClinicalTrials.gov study NCT06908837. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Feasibility of a Web-based Patient Reported Outcome Symptom Monitoring Application in Danish Lung Cancer Patients
ClinicalTrials.gov study NCT03529851. IPD Sharing: NO. Countries: 1. Publications: 1.
Patient Reported Outcomes Measures (PROM) in Carpal Tunnel Therapies in Patients With Inherited Neuropathies
ClinicalTrials.gov study NCT02788734. IPD Sharing: NO. Countries: 1. Publications: 38.
A Study to Provide Complementary Efficacy, Safety and Patient Reported Outcomes Data in Participants With Active Relapsing Forms of Multiple Sclerosis (MS) in a Pragmatic Setting
ClinicalTrials.gov study NCT03589105. IPD Sharing: Not stated. Countries: 1. Publications: 2.
ScienceDex guides
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.