Skip to main content
Powered by ShareScore

Find research datasets worth reusing

Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.

227

datasets available to search

ShareScore release 0.9.0

Reset

Dataset results

227 results for “Clinical Genetics”

Learn how ShareScore rates datasets ↗
ClinicalTrials.gov32/100

Clinical, Genetic and Epigenetic Characterization of Patients With FSHD Type 1 and FSHD Type 2

ClinicalTrials.gov study NCT01970735. IPD Sharing: Not stated. Countries: 1. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Genetic Susceptibility in MAlignant Pleural Mesothelioma: Clinical Implication of GermliNE VariaTionS

ClinicalTrials.gov study NCT06886672. IPD Sharing: Not stated. Countries: 1. Publications: 3.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Clinical, Immunological, Morphological and Genetic Characteristics of Patients With Dysferlinopathy (LGMD R2) in the RF

ClinicalTrials.gov study NCT04824040. IPD Sharing: Not stated. Countries: 1. Publications: 6.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

GEnetic Testing in Elective Single Embryo Transfer (GETSET): A Randomized Clinical Trial

ClinicalTrials.gov study NCT06141135. IPD Sharing: NO. Countries: 1. Publications: 4.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov32/100

Clinical and Genetic Characterization of Individuals With Achromatopsia

ClinicalTrials.gov study NCT01846052. IPD Sharing: Not stated. Countries: 1. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Clinical and Genetic Testing of Patients With Usher Syndrome

ClinicalTrials.gov study NCT03319524. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Comparison Between Parkinson's Disease and Parkinson's Dementia Complex (Genetically,Clinical and Electrophysiological)

ClinicalTrials.gov study NCT05759403. IPD Sharing: UNDECIDED. Countries: 1. Publications: 13.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Relating Clinical Outcomes in Multiple Myeloma to Personal Assessment of Genetic Profile

ClinicalTrials.gov study NCT01454297. IPD Sharing: YES. Countries: 3. Publications: 4.

controlledIPD-YESFeb 2026View details →
ClinicalTrials.gov32/100

An Adaptive Clinical Trial of BeginNGS Newborn Screening for Hundreds of Genetic Diseases by Genome Sequencing

ClinicalTrials.gov study NCT06306521. IPD Sharing: Not stated. Countries: 1. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Precision Clinical and Genetic Tools for Brain Health in Hemorrhagic Stroke

ClinicalTrials.gov study NCT05643001. IPD Sharing: NO. Countries: 1. Publications: 1.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov32/100

Correlation of Genetic Polymorphisms and Clinical Parameters With the Complexity of Coronary Artery Disease

ClinicalTrials.gov study NCT03315234. IPD Sharing: UNDECIDED. Countries: 1. Publications: 6.

restrictedIPD-UNDECIDEDFeb 2026View details →
dryad32/100

Data for: Genetic prevalence and clinical relevance of canine Mendelian disease variants in over one million dogs

Open the record for dataset details and reuse information.

publicFeb 2023View details →
dryad32/100

Clinical and genomic evaluation of 207 genetic myopathies in the Indian subcontinent

Open the record for dataset details and reuse information.

publicSep 2020View details →
dryad28/100

DYT-TUBB4A (DYT4 dystonia): new clinical and genetic observations

<p>Objective: To report four novel TUBB4A mutations leading to laryngeal and cervical dystonia with frequent generalization.</p> <p>Background: DYT-TUBB4A, formerly known as DYT4, has only been described in one large family and two individual cases. The clinical picture highlighted in the original family comprises laryngeal and cervical dystonia extending to generalized dystonia, plus a "hobby horse" gait disorder. The variant identified as causative in the original family was a heterozygous missense mutation R2G in exon 1 of the TUBB4A gene.</p> <p>Methods: We screened four families including a total of eleven definitely affected members with a clinical picture resembling the original description.</p> <p>Results: Four novel variants in the TUBB4A gene have been identified: D295N, R46M, Q424H, R121W. In silico modeling showed that all variants have similar characteristics to R2G. The variants segregate with the disease in three of the families with evidence of incomplete penetrance in two of them. All four variants would be classified as likely pathogenic. The clinical picture particularly included laryngeal dystonia (often the site of onset), associated with cervical and upper limb dystonia and frequent generalization. Laryngeal dystonia was extremely prevalent (&gt;90%) both in the original cases and in this case series. The "hobby horse" gait was evident in only one patient in this case series. Interpretation: laryngeal involvement is a hallmark feature of DYT-TUBB4A. Nevertheless, TUBB4A mutations remain an exceedingly rare cause of laryngeal or other isolated dystonia.</p>

opencc-zeroNov 2021View details →
ClinicalTrials.gov28/100

Clinical and Economic Implications of Genetic Testing for Warfarin Management

ClinicalTrials.gov study NCT00964353. IPD Sharing: Not stated. Countries: 1. Publications: 0.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov28/100

Retrospective Study on Clinical Results of Preimplantation Genetic Screening at Different Embryo Stage

ClinicalTrials.gov study NCT03065114. IPD Sharing: UNDECIDED. Countries: 0. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov28/100

Developing Clinical Tools to Communicate Genetic Risk for Individuals Who Are Clinical High Risk for Psychosis

ClinicalTrials.gov study NCT04325568. IPD Sharing: NO. Countries: 1. Publications: 0.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov28/100

Verification of Correlation Between Genetic Testing of Nutritional Metabolism and Clinical Biochemical Indicators

ClinicalTrials.gov study NCT03651934. IPD Sharing: Not stated. Countries: 0. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov28/100

Clinical and Genetic Studies of Familial Exudative Vitreoretinopathy

ClinicalTrials.gov study NCT00106756. IPD Sharing: Not stated. Countries: 2. Publications: 3.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov28/100

Clinical and Genetic Studies of Familial Presenile Dementia With Neuronal Inclusion Bodies

ClinicalTrials.gov study NCT00006176. IPD Sharing: Not stated. Countries: 1. Publications: 3.

restrictedIPD-UNDECIDEDFeb 2026View details →

ScienceDex guides

Understand access before you commit

These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.

Compare curated datasets

Allen Brain Atlas

Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.

allen-brain-atlas
neuroscienceopenDocumentation, web resources, and API references are available online.
Last verified 2026-04-30Open record

Annotated Behaviour and Observability Dataset (ABODe)

ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.

abode-home-cage
behavioral-neuroscienceopenThe DataShare record exposes download links for annotations, documentation, license text, and the zipped per-snippet data directory.
Last verified 2026-04-30Open record

DANDI Archive for NWB datasets

DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.

dandi-nwb
electrophysiologyopenPublished Dandiset metadata and archive endpoints are available through the production DANDI API.
Last verified 2026-04-30Open record

International Brain Laboratory public data

The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.

ibl
behavioral-neuroscienceopenPublic sessions can be searched and loaded from the IBL public data server through ONE.
Last verified 2026-04-29Open record

OpenNeuro

OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.

openneuro
neuroscienceopenPublished datasets are available on demand over the internet.
Last verified 2026-04-29Open record