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Material from a collaborative analysis with young people. Insights into the analysis process of R&I Action #2 Youth Employment of the CoAct project
<p>The collaborative data analysis presented in this document was undertaken in the context of the research project CoAct (Co-designing Citizen Social Science for Collective Action) as part of the R&I Action #2 on Youth Employment. In this R&I Action, using Citizen Social Science as a research approach, young people aged between 15 and 21 years in employment measures in Vienna/Austria participated in collaborative social research activities. The visualisation of data analysis in the form of posters, is a selection of the collaborative analysis of qualitative expert interviews using the the “Stop and Go” (Harrasser, 2017) method. Following this method, audio recording of interviews, done by the young co-researchers themselves, are listened to and summarized as well as connected to the co-researchers’ own experience.</p> <p>The Creative Commons license and a recommendation regarding the citation of the material are provided in the document.</p> <p>For more information please contact veronika.woehrer@univie.ac.at</p>
Analysis of symptoms and quality of life of people with prolonged diagnosis of COVID-19, and the efficacy of an intervention in primary care using ICT
<p>This is a ranzomized clinical study called: “Analysis of symptoms and quality of life of people with prolonged diagnosis of COVID-19, and the efficacy of an intervention in primary care using ICT”, approved in mid-2020, with reference number ISRCTN91104012. The main objetive is to analyse the overall effectiveness and cost-efficiency of a mobile application (APP) as a community health asset (HA) with recommendations and recovery exercises created bearing in mind the main symptoms presented by Long COVID patients in order to improve their quality of life, as well as other secondary variables, such as the number and severity of ongoing symptoms, physical and cognitive functions, affective state, and sleep quality. The first step was to design and develop the technologic community resource, the APP, following the steps involved in the process of recommending health assets (RHA). After this, a protocol of a randomised clinical trial for analysing its effectiveness and cost-efficiency as a HA was developed. The participants will be assigned to: (1st) usual treatment by the primary care practitioner (TAU), as a control group; and (2nd) TAU + use of the APP as a HA and adjuvant treatment in their recovery + three motivational interviews (MI), as an interventional group. An evaluation will be carried out at baseline with further assessments three and six months following the end of the intervention. </p>
A New Dataset of People Flow in an Industrial Site with UWB and Motion Capture Systems
<p>Improving performance and safety conditions at industrial sites remain key elements of the Group's strategy. Major issues require the ability to dynamically locate people and assets on the site. Currently, the security and regulation of access to areas with different characteristics (types of tasks, level of risk, or confidentiality...) are often carried out with badge doors or barriers. These means present several weaknesses in the face of inappropriate movements of people, but also of objects or tools. Also, there is increasing use of technological devices requiring precise localization in the industrial environment such as AGVs (mobile robots or drones) or augmented reality devices. It is therefore becoming essential to have tools to dynamically manage these flows of people or goods associated with precise location technologies. An Ultra-Wide-Band solution will be employed to quickly and efficiently identify persons who may find themselves in unauthorized areas or perform tasks for which they are uninstructed. Besides dynamic people tracking, this solution can overcome problems of moving objects and tools in production workshops. We propose a new dataset to have information about workers' displacement and evaluate workers' performance and safety.</p> <p>The dataset is available at this link: IndoorIndustrialLocalisationDataset: <a href="https://github.com/vauchey/IndoorInsdustrialLocalisationDataset/">https://github.com/vauchey/IndoorInsdustrialLocalisationDataset/</a></p> <p> </p> <p>Paper :</p> <p>Mickael Delamare<sup>1</sup>, Fabrice Duval<sup><span>2</span></sup>, Remi Boutteau<sup><span>3</span></sup>.</p> <p><sup>1</sup><a href="http://www.cesi.fr./">cesi</a>, CESI,Rouen campus, 76000 ROUEN, France,<a href="mailto:mdelamare@cesi.fr">mdelamare@cesi.fr</a><br> <span><sup>2</sup> </span><a href="https://lineact.cesi.fr/">LINEACT CESI</a>, LINEACT CESI, Rouen campus,76000 ROUEN, France, <a href="mailto:fduval@cesi.fr">fduval@cesi.fr</a><br> <span><sup>3</sup> </span><a href="http://www.esigelec.fr/">ESIGELEC</a> , IRSEEM, Rouen, France, Normandie Univ, UNIROUEN, <a href="mailto:remi.boutteau@univ-rouen.fr">remi.boutteau@univ-rouen.fr</a>,</p> <p>Link : <a href="https://www.mdpi.com/1424-8220/20/16/4511">https://www.mdpi.com/1424-8220/20/16/4511</a></p> <p>DOI : <a href="https://doi.org/10.3390/s20164511">https://doi.org/10.3390/s20164511</a></p> <p>Accepted to the journal Sensors (MDPI)</p> <p> </p>
Burden and resources in caregivers of people with multiple sclerosis: a qualitative study
<p><strong><em>Background: </em></strong><em>Caregivers of people with Multiple Sclerosis are required to provide ongoing assistance especially during the advanced stages of the disease. They have to manage interventions and assume responsibilities which significantly impact both their personal quality </em>of life and family’s dynamics. </p> <p><strong><em>Objective: </em></strong><em>A qualitative phenomenological study was carried out to understand the experience of burden in caregivers and their resources to manage it. The study also explores how healthcare services involved in the Multiple Sclerosis Clinical Pathway respond to the needs of well-being of patients and family members.</em></p> <p><strong><em>Methods: </em></strong><em>17 caregivers were involved in focus groups and in semi-structured individual interviews.</em></p> <p><strong><em>Results: </em></strong><em>Fatigue is experienced by all respondents and it starts when physical disabilities increase or when people become aware of them. Many caregivers declare that they refer to intrinsic (love towards their relatives, patience and dedication) or extrinsic (family members, hobbies) resources to cope with the burden of assistance. Patient associations and the Multiple Sclerosis Clinical Pathway play a significant role in supporting caregivers. </em></p> <p><strong><em>Conclusions:</em></strong></p> <p><em>Fatigue, loneliness, and isolation are experienced by caregivers and strongly affect their quality of life and health status. The study highlights caregivers’ need to reconcile working times with care times, to give more space to self-care and to have moments to share their experiences with someone else. These needs should be at the core of health policies in order to avoid physical and emotional breakdowns which could lead to the rupture of the relational balance on which home care is based. </em></p>
The dataset and results for the article "More people might face severe water scarcity this century than previously estimated"
<p>The dataset presents the values of each parameter and the parameters of different SSP scenarios. In addition, the results provide information about predicted values.</p>
Effect of a hyperkyphosis-specific exercise programme on the history of falls, fear of falling and satisfaction in older people with hyperkyphosis: a pilot study
<p>To whom it may concerns,</p> <p>I am Assistant Professor Roongtip Duangkaew. I would like to submit my raw<strong> </strong>data as in the manuscript,<strong> </strong>in support of the findings which were presented in the article "Effect of a hyperkyphosis-specific exercise programme on the history of falls, fear of falling and satisfaction in older people with hyperkyphosis: a pilot study." </p> <p>Kind regards,</p> <p>Roongtip</p>
Intensive training programme improves handwriting in a community cohort of people with Parkinson's disease
<p><strong>Background</strong>: People with Parkinson’s disease (PwP) often report problems with their handwriting before they receive a formal diagnosis. Many PwP suffer from deteriorating handwriting throughout their illness, which has detrimental effects on many aspects of their quality of life. </p> <p><strong>Aims:</strong> To assess a 6-week online training programme aimed at improving handwriting of PwP. </p> <p><strong>Methods</strong>: Handwriting samples from a community-based cohort of PwP (n=48) were analysed using Systematic Detection of Writing Problems (SOS-PD) by two independent raters, before and after a 6-week remotely-monitored Physiotherapy-led training programme. Inter-rater variability on multiple measures of handwriting quality was analysed. The handwriting data was analysed using pre/post design in the same individuals. Multiple aspects of the handwriting samples were assessed, including writing fluency, transitions between letters, regularity in letter size, word spacing, and straightness of lines. </p> <p><strong>Results</strong>: Analysis of inter-rater reliability showed high agreement for total handwriting scores, letter size, as well as speed and legibility scores, whereas there were mixed levels of inter-rater reliability for other handwriting measures. Overall handwriting quality (p=0.001) and legibility (p=0.009) significantly improved, while letter size (p=0.012), fluency (p=0.001), regularity of letter size (p=0.009) and straightness of lines (p=0.036) were also enhanced. </p> <p><strong>Conclusions</strong>: The results of this study show that this 6-week intensive remotely-monitored Physiotherapy-led handwriting programme, improved handwriting in PwP. This is the first of its kind study using this tool remotely and it demonstrated that the SOS-PD is reliable for measuring handwriting in PwP.</p> <p><strong>Background</strong>: People with Parkinson’s disease (PwP) often report problems with their handwriting before they receive a formal diagnosis. Many PwP suffer from deteriorating handwriting throughout their illness, which has detrimental effects on many aspects of their quality of life. </p> <p><strong>Aims:</strong> To assess a 6-week online training programme aimed at improving handwriting of PwP. </p> <p><strong>Methods</strong>: Handwriting samples from a community-based cohort of PwP (n=48) were analysed using Systematic Detection of Writing Problems (SOS-PD) by two independent raters, before and after a 6-week remotely-monitored Physiotherapy-led training programme. Inter-rater variability on multiple measures of handwriting quality was analysed. The handwriting data was analysed using pre/post design in the same individuals. Multiple aspects of the handwriting samples were assessed, including writing fluency, transitions between letters, regularity in letter size, word spacing, and straightness of lines. </p> <p><strong>Results</strong>: Analysis of inter-rater reliability showed high agreement for total handwriting scores, letter size, as well as speed and legibility scores, whereas there were mixed levels of inter-rater reliability for other handwriting measures. Overall handwriting quality (p=0.001) and legibility (p=0.009) significantly improved, while letter size (p=0.012), fluency (p=0.001), regularity of letter size (p=0.009) and straightness of lines (p=0.036) were also enhanced. </p> <p><strong>Conclusions</strong>: The results of this study show that this 6-week intensive remotely-monitored Physiotherapy-led handwriting programme, improved handwriting in PwP. This is the first of its kind study using this tool remotely and it demonstrated that the SOS-PD is reliable for measuring handwriting in PwP.</p>
What happened to the people of the Quebrada Chupacigarro cemetery? Bioarchaeological evidence of violence during the transition between the Middle and Late Formative (500–400 BC) in the Peruvian North-Central Coast.
<p>Photos from a bioarchaeological study of violence in individuals from prehistoric communities of the Supe Valley, North-Central Coast of Peru (500-400 BCE).</p>
Gender differences for left atrial volumes in apparently healthy Iraqi people
<p>Submitted file inculdes:</p> <p>- Data</p> <p>Ethical approval</p> <p>Figures</p> <p>STROBE checklist </p>
Display and Use of Station Floor Plans on 2D Pin Matrix Displays for Blind and Visually Impaired People.
<p>An open-access repository of train station floor plans primarily covering Germany's Badden-Wuttermberg and Bavaria districts. The collection includes PNG and PDF formats for accessibility, particularly for individuals with visual impairments. Future expansions aim to include floor plans from additional European train stations.</p>
"Reading" people to learn about new science careers: the Human Library method
<p>The "human library" method is frequently used to establish open conversations with people one would not meet in their daily routine, and this is what makes it so interesting in the context of science education. The MULTIPLIERS project is exploring the method to promote meaningful interactions between students and stakeholders involved in socio-scientific issues, while also eliciting interest in future career paths in science.</p> <p>Take a look at the expert interviews recorded by our students during the MULTIPLIERS awareness-raising campaign on Antimicrobial Resistance in Nicosia, Cyprus!</p> <p>More about the project: https://multipliers-project.org/</p>
Research Study to Investigate How Well Semaglutide Tablets Taken Once Daily Work in East Asian People Who Are Overweight or Living With Obesity
ClinicalTrials.gov study NCT05132088. IPD Sharing: YES. Countries: 2. Publications: 1.
An Observational Study, Called FINEGUST, to Learn More About How People With Chronic Kidney Disease and Type 2 Diabetes Are Treated and How the Introduction of New Treatment Options, Like Finerenone,
ClinicalTrials.gov study NCT05526157. IPD Sharing: NO. Countries: 5. Publications: 1.
THE EFFECT OF REMOTE NURSING INTERVENTIONS BASED ON THE EMPOWERMENT PROCESS MODEL ON PEOPLE WITH DEMENTIA AND THEIR FAMILY CAREGIVERS
ClinicalTrials.gov study NCT07010874. IPD Sharing: NO. Countries: 1. Publications: 9.
Integration of Social Art Activities and Qigong for Older People in Nursing Home in Indonesia
ClinicalTrials.gov study NCT02957773. IPD Sharing: NO. Countries: 1. Publications: 11.
Study on Preliminary Safety and Efficacy of the ARC Therapy Using the ARC-IM Lumbar System to Support Mobility in People With Chronic Spinal Cord Injury (BoxSwitch)
ClinicalTrials.gov study NCT05942339. IPD Sharing: NO. Countries: 1. Publications: 26.
Comparing the Effects of Four Types of Electroconvulsive Therapy on Mood and Thinking in People With Depression
ClinicalTrials.gov study NCT00487500. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Effects of Oral Glucosamine on Insulin and Blood Vessel Activity in Normal and Obese People
ClinicalTrials.gov study NCT00065377. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Cognitive Behavioral Therapy for Insomnia in People With Chronic Obstructive Pulmonary Disease(COPD)
ClinicalTrials.gov study NCT01072292. IPD Sharing: Not stated. Countries: 1. Publications: 1.
The Effect of Nurse Practitioner (NP-led) Care Upon Mood in People With Multiple Sclerosis
ClinicalTrials.gov study NCT04388592. IPD Sharing: NO. Countries: 1. Publications: 29.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.