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Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
152
datasets available to search
ShareScore release 0.9.0
Dataset results
152 results for “Rare Diseases”
Non Invasive Prenatal Test of Rare Genetic Diseases: Application to Rare Intellectual Disabilities
ClinicalTrials.gov study NCT03688594. IPD Sharing: Not stated. Countries: 1. Publications: 0.
SARS-COV2 Pandemic Serosurvey in a Rare Disease Population
ClinicalTrials.gov study NCT04609085. IPD Sharing: YES. Countries: 1. Publications: 0.
COVID-19 and Rare Skin Diseases European Observational Study During an Epidemic
ClinicalTrials.gov study NCT04451902. IPD Sharing: Not stated. Countries: 5. Publications: 0.
Decision Support for Parents Receiving Information About Child's Rare Disease
ClinicalTrials.gov study NCT01875640. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Palliative Care Needs of Children With Rare Diseases and Their Families
ClinicalTrials.gov study NCT06938542. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Identification of Mutations Responsible for Rare Familial Skin Diseases by Next Generation Sequencing
ClinicalTrials.gov study NCT02509650. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Quantification Tools for a Novel Tau PET Marker in a Rare Neurological Disease: 18F-PI-2620 in Progressive Supranuclear Palsy
ClinicalTrials.gov study NCT07105384. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Identification of the Molecular and/or Pathophysiological Bases of Rare Diseases of Genetic Origin (or Rare Forms of Frequent Diseases Suspected of Being of Genetic Origin).
ClinicalTrials.gov study NCT03287193. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Pregnancy in Women With Rare Multisystemic Vascular Diseases: COGRare5 Study
ClinicalTrials.gov study NCT04194619. IPD Sharing: NO. Countries: 1. Publications: 0.
Holistic Mixed Approaches to Capture the Real Life of Children With Rare Eye Diseases
ClinicalTrials.gov study NCT06070467. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Identification of New Genes Implicated in Rare Neurosensory Diseases by Whole Exome Sequencing
ClinicalTrials.gov study NCT02558478. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Resilience and Coping in a Rare Skeletal Disease Population to Face Coronavirus (COVID-19) Outbreak Distress: a Longitudinal Study
ClinicalTrials.gov study NCT04844697. IPD Sharing: NO. Countries: 1. Publications: 0.
Multi-center Clinical Study on the Diagnosis and Treatment Management of Rare Neurological Disease in Children
ClinicalTrials.gov study NCT03649919. IPD Sharing: YES. Countries: 1. Publications: 0.
Precision Diagnosis and Therapy for Rare Diseases by Interpreting Non-coding Genomes
ClinicalTrials.gov study NCT06775561. IPD Sharing: NO. Countries: 1. Publications: 0.
Universal Rare Gene Study: A Registry and Natural History Study of Retinal Dystrophies Associated With Rare Disease-Causing Genetic Variants
ClinicalTrials.gov study NCT05589714. IPD Sharing: YES. Countries: 14. Publications: 0.
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
ClinicalTrials.gov study NCT01793168. IPD Sharing: YES. Countries: 2. Publications: 0.
Assessing the Polygenic Burden of Rare Disruptive Mutations in Parkinson's Disease
ClinicalTrials.gov study NCT04620980. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
National Registry of Rare Kidney Diseases
ClinicalTrials.gov study NCT06065852. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Clinical Characteristics and Analysis of Pituitary Complex and Rare Diseases
ClinicalTrials.gov study NCT06435195. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Set-up of a Platform for Personalized Diagnosis of Rare Kidney Diseases (NIKE)
ClinicalTrials.gov study NCT06325072. IPD Sharing: NO. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.