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ShareScore release 0.9.0
Dataset results
93 results for “patient reported outcome measures”
The Potential of Patient-reported Outcome Measures in Detection of Relapse in Diffuse Large B-cell Lymphoma
ClinicalTrials.gov study NCT04695366. IPD Sharing: NO. Countries: 1. Publications: 0.
Pre-visit Digital Messaging Improves Patient Reported Outcome Measure Participation Prior to the Orthopedic Ambulatory Visit
ClinicalTrials.gov study NCT04983641. IPD Sharing: NO. Countries: 1. Publications: 0.
Grappler Interference Screw Post-Market Collection of Patient Reported Outcome Measures
ClinicalTrials.gov study NCT05190874. IPD Sharing: NO. Countries: 1. Publications: 0.
Development of CELIAC-Q KIDS: A Patient-Reported Outcome Measure for Pediatric Celiac Disease
ClinicalTrials.gov study NCT05548166. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Patient-reported Outcome Measures (PROMs) in Patients With Bodily Stress Syndrome: Protocol for a Prospective Cohort Study
ClinicalTrials.gov study NCT04667611. IPD Sharing: NO. Countries: 1. Publications: 0.
Development of a Patient-reported Outcome Measure for Chiari Malformation and Syringomyelia
ClinicalTrials.gov study NCT06011226. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Detecting the Effect Size of Weather Conditions on Patient- Reported Outcome Measures (PROMs)
<p>RD</p>
OGSA-PROMs-2023, a collection of musculoskeletal disorders' public open datasets of patient-reported outcome measures (PROMs)
<p>The datasets in this archive are three patient-reported outcome measure (PROM) musculoskeletal disorders' registry datasets, derived from the knee, hip and spine pathology registries developed and managed since 2018 at the IRCCS Ospedale Galeazzi--Sant'Ambrogio (OGSA) hospital, located in Milan (Italy, EU), one of the major orthopedics research hospitals within the European Union.</p> <p><br>The three datasets describe around 15 thousand surgical events, corresponding to more than 13 thousand unique patients whose health and quality of life has been monitored across a period of more than years, starting from the preoperatory stage, through a variety of general and pathology-specific PROM' questionnaires.</p> <p> </p> <p>Each record in the datasets represent a surgical event, and a single patient can be associated with multiple surgical events: the complete surgical history of a patient can be reconstructed by matching on the uid column. The datasets contain three main different types of data, collected at different times during the patient surgical and rehabilitation journey and through different acquisition modalities:</p> <ul> <li>Clinical and demographical data;</li> <li>Surgical event data;</li> <li>PROM data, including both individual PROM questionnaire items as well as calculated PROM scores.</li> </ul> <p>PROM data are collected at pre-operatory time as well as at different follow-ups, namely 3, 6, 12, 24, 60 months after surgery. </p> <p>The data have been pseudo-anonymized by removing potentially identifying fields, including all text fields (except for the operator name, which has been hashed using SHAKE-128).</p>
A Patient Reported Outcome Measure for Vulval Conditions
ClinicalTrials.gov study NCT05066243. IPD Sharing: UNDECIDED. Countries: 0. Publications: 0.
The Utility of Mobile Based Patient Reported Outcome Measures in Patients With Acetabular Fractures: A Randomized Controlled Trial.
ClinicalTrials.gov study NCT04393571. IPD Sharing: UNDECIDED. Countries: 0. Publications: 0.
Development of a Patient Reported Outcome Measure for Advanced Ovarian Cancer Patients Receiving Surgical and Chemotherapy Treatment
ClinicalTrials.gov study NCT05274867. IPD Sharing: NO. Countries: 0. Publications: 0.
Measurement of Patient Reported Outcomes in Renal Transplant Patients With and Without Gastrointestinal (GI) Symptoms (PROGIS)
ClinicalTrials.gov study NCT00150007. IPD Sharing: Not stated. Countries: 0. Publications: 0.
SoftStitch™ for All-Inside Meniscal Repair: Comparative Analysis of Patient Reported Outcome Measures
ClinicalTrials.gov study NCT05491564. IPD Sharing: Not stated. Countries: 0. Publications: 0.
ScienceDex guides
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.