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Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
152
datasets available to search
ShareScore release 0.9.0
Dataset results
152 results for “Rare Diseases”
Ghrelin in Patients With a Rare Disease Associated With Intellectual Disability, and Hyperphagia, and/or Overweight, and/or Obesity
ClinicalTrials.gov study NCT04768803. IPD Sharing: NO. Countries: 1. Publications: 0.
Gene Therapy Communication: Use of a Needs Assessment to Drive Decision-AIDS for Gene Therapy for Rare Diseases (GENETX)
ClinicalTrials.gov study NCT05810181. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Functional Genomics of Rare Genetic Diseases: Realization of Innovative Tools With High Diagnostic Power
ClinicalTrials.gov study NCT04152876. IPD Sharing: Not stated. Countries: 1. Publications: 0.
OCT in Rare Chorioretinal Diseases
ClinicalTrials.gov study NCT02141308. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Swiss Rare Disease Registry (SRDR)
ClinicalTrials.gov study NCT05179863. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Announcement of Rare Metabolic Diseases in Systematic Newborn Screening: the Phenylketonuria Experience.
ClinicalTrials.gov study NCT06289348. IPD Sharing: NO. Countries: 1. Publications: 0.
Defeat Rare Disease in Asia and Pacific (APAC) DRDA - Haemophilia
ClinicalTrials.gov study NCT07163260. IPD Sharing: YES. Countries: 4. Publications: 0.
Clinical Trial Data Set Re-use With Statistical Methodologies Tailored for Clinical Trials in Rare Diseases
ClinicalTrials.gov study NCT05199402. IPD Sharing: Not stated. Countries: 1. Publications: 0.
ScATtEred Rare Disease Biobanks: a Model of Sample/Data Collection With susTainablE and Shared Criteria
ClinicalTrials.gov study NCT06782230. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Evaluation, Treatment, and Natural History of Children and Young Adults With Cancer or Rare Diseases
ClinicalTrials.gov study NCT00001686. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Diagnostic Research in Patients With Rare Diseases -Solving the Unsolved Rare Diseases
ClinicalTrials.gov study NCT04024774. IPD Sharing: NO. Countries: 1. Publications: 0.
A First-in-Human Clinical Trial to Evaluate the Safety, Tolerability, and Efficacy of a Novel CRISPR RNA-editing Therapy in Patients with Mecp2 Duplication Syndrome, a Rare Orphan Disease (HERO)
ClinicalTrials.gov study NCT06615206. IPD Sharing: NO. Countries: 1. Publications: 0.
Stakeholders of Rare Diseases Informing Values In Neuroethics
ClinicalTrials.gov study NCT07314736. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Finding Genes for Rare Diseases
ClinicalTrials.gov study NCT02724995. IPD Sharing: NO. Countries: 1. Publications: 0.
Implementation of Long-read Sequencing for the Diagnosis of Rare Diseases.
ClinicalTrials.gov study NCT07400913. IPD Sharing: Not stated. Countries: 1. Publications: 0.
COV2Base-A Rare Disease by COVID Study
ClinicalTrials.gov study NCT04564274. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare Diseases
ClinicalTrials.gov study NCT06539169. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Creation of a Biological Collection for Medical Research Purposes for Patients at the Reference Center for Rare Diseases of the Blood Vessels of the Brain and Eye at Lariboisière Hospital
ClinicalTrials.gov study NCT07264972. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Pharmacological Treatment of a Rare Genetic Disease: N-acetylcysteine in Myopathy Associated Selenoprotein N-related Myopathy (SEPN1-RM)
ClinicalTrials.gov study NCT02505087. IPD Sharing: Not stated. Countries: 1. Publications: 0.
B-dependant Rare AutoImmune diseaSES - Cohort of Patients With Suspected Diagnosis of Primitive Sjögren Syndrome
ClinicalTrials.gov study NCT04931160. IPD Sharing: Not stated. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.