Find research datasets worth reusing
Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
344
datasets available to search
ShareScore release 0.9.0
Dataset results
344 results for “health related quality of life”
Peer-Supported Diabetes Self-Care Intervention to Improve Health Related Quality of Life (HRQoL) and Diabetes Management
ClinicalTrials.gov study NCT05637437. IPD Sharing: NO. Countries: 1. Publications: 12.
Pulmonary Hypertension: Efficacy of a 3 Week Inpatient Rehabilitation on Physical Condition, Body Composition and Health Related Quality of Life
ClinicalTrials.gov study NCT01650857. IPD Sharing: Not stated. Countries: 1. Publications: 3.
Gastrointestinal and Health-related Quality of Life in Kidney Transplant Patients Treated With Mycophenolate Mofetil
ClinicalTrials.gov study NCT00400647. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Reasons for Variations in Health Related Quality of Life and Symptom Burden in Patients With Atrial Fibrillation
ClinicalTrials.gov study NCT01553045. IPD Sharing: Not stated. Countries: 1. Publications: 6.
Oral Health-related Quality of Life and Masticatory Function After Using Denture Adhesive and Denture Liner
ClinicalTrials.gov study NCT04942262. IPD Sharing: NO. Countries: 1. Publications: 3.
Evaluation of the Effect of Acupuncture on Hand Pain, Functional Deficits and Health Related Quality of Life in Patients With Rheumatoid Arthritis
ClinicalTrials.gov study NCT02553005. IPD Sharing: Not stated. Countries: 1. Publications: 1.
A Study to Assess Disease Burden, in Terms of Health-related Quality of Life and Direct Healthcare Costs, in Patients With Newly Diagnosed Multiple Myeloma Who Are Not Candidates for Autologous Stem C
ClinicalTrials.gov study NCT02946333. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Infant RSV Infections and Health-related Quality of Life of Families
ClinicalTrials.gov study NCT05550545. IPD Sharing: NO. Countries: 1. Publications: 1.
The Effectiveness of an Online Support Group in Enhancing Recovery Identity and Health-Related Quality of Life
ClinicalTrials.gov study NCT06145295. IPD Sharing: YES. Countries: 1. Publications: 1.
Effect Of a Goat Milk-Based Infant Formula On Gastrointestinal And Other Symptoms And Health-Related Quality Of Life.
ClinicalTrials.gov study NCT06108401. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Health-Related Quality of Life Outcomes in Patients With Aggressive B-Cell Lymphomas Treated With CAR-T Cell Therapy in Real Life
ClinicalTrials.gov study NCT06026644. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Comparison of Oral Health Related Quality of Life Changes Between Clear Aligners and Vestibular Fixed Appliances
ClinicalTrials.gov study NCT04866238. IPD Sharing: NO. Countries: 1. Publications: 6.
Health-related Quality of Life-intervention in Survivors of Breast and Other Cancers Experiencing Cancer-related Fatigue Using Traditional Chinese Medicine: The HERBAL Trial
ClinicalTrials.gov study NCT04104113. IPD Sharing: NO. Countries: 1. Publications: 2.
Health-related Quality of Life, Electrocardiographic and Holter Findings in Children With Familial Mediterranean Fever
ClinicalTrials.gov study NCT07128225. IPD Sharing: Not stated. Countries: 1. Publications: 4.
Measurement of Patient Reported Gastrointestinal (GI) and Health-related Quality of Life (HRQL) Outcomes in Renal Transplant Recipients (MyLife)
ClinicalTrials.gov study NCT00149968. IPD Sharing: Not stated. Countries: 2. Publications: 2.
Periodontitis Stage III and IV and Oral Health Related Quality of Life
ClinicalTrials.gov study NCT05481567. IPD Sharing: YES. Countries: 1. Publications: 4.
ENACT Program on Auditory Perception and Function, Cognitive Function and Health-related Quality of Life
ClinicalTrials.gov study NCT06955494. IPD Sharing: NO. Countries: 1. Publications: 14.
Data from: Economic costs and health-related quality of life for hand, foot and mouth disease (HFMD) patients in China
Open the record for dataset details and reuse information.
Data from: Is the association between health-related quality of life and fatigue mediated by depression in patients with multiple sclerosis? A Spanish cross sectional study
Open the record for dataset details and reuse information.
Data from: Endocrine and metabolic disorders in survivors of childhood cancers and health-related quality of life and physical activity
Context: Childhood cancer survivors experience chronic health conditions that impact health related quality of life (HRQOL) and participation in optimal physical activity. Objective: The study aimed to determine independent effects of endocrine and metabolic disorders on HRQOL and physical activity. Design, Setting, and Patients: Retrospective cohort with longitudinal follow-up of survivors of childhood cancer enrolled in the North American Childhood Cancer Survivor Study. Main Outcome Measures: Medical Outcomes Short Form-36 estimated HRQOL while participation in physical activity was dichotomized as meeting or not meeting recommendations from the Center for Disease Control and Prevention. Log binomial regression evaluated the association of each endocrine/metabolic disorder with HRQOL scales and physical activity. Results: Of 7,287 survivors, median age 32 years (18-54) at their last follow-up survey, 4,884 (67%) reported one or more endocrine/metabolic disorders. Survivors with either disorder were significantly more likely to be male, older, received radiation treatment, and experience other chronic health conditions. After controlling for covariates, survivors with any endocrine/metabolic disorder were more likely to report poor physical function risk ratio ([RR] 1.25; 95% confidence interval [CI] 1.05-1.48), increased bodily pain (RR 1.27; CI 1.12-1.44), poor general health (RR 1.49; CI 1.32-1.68) and lower vitality (RR 1.21; CI 1.09-1.34) compared to survivors without. The likelihood of meeting recommended physical activity was lower among survivors with growth disorders (RR 0.90; CI=0.83-0.97), osteoporosis (RR 0.87; CI=0.76-0.99), and overweight/obesity (RR 0.92; CI 0.88-0.96). Conclusion: Endocrine and metabolic disorders are independently associated with poor HRQOL and sub-optimal physical activity among childhood cancer survivors.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.