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152
datasets available to search
ShareScore release 0.9.0
Dataset results
152 results for “Rare Diseases”
Rare and Undiagnosed Disease Research Biorepository
ClinicalTrials.gov study NCT04703179. IPD Sharing: NO. Countries: 1. Publications: 0.
Rationalization of the Treatment Pathway of Patient Suffering From Rare Skin Disease With Telemedicine
ClinicalTrials.gov study NCT02465476. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Getting Global Rare Disease Insights Through Technology Study
ClinicalTrials.gov study NCT04758130. IPD Sharing: NO. Countries: 1. Publications: 0.
Data Collection of Patients With Rare Bone Diseases
ClinicalTrials.gov study NCT05247645. IPD Sharing: Not stated. Countries: 1. Publications: 0.
HIV and Inflammatory or Autoimmune Disease: Rare Patients, Many Questions (MAIVIH)
ClinicalTrials.gov study NCT05036811. IPD Sharing: NO. Countries: 1. Publications: 0.
Diagnostic Research in Patients With Rare Diseases - Solving the Unsolved Rare Diseases
ClinicalTrials.gov study NCT03491280. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Mitoferrin-1 Expression in Erythropoietic Protoporphyria (Porphyria Rare Disease Clinical Research Consortium (RDCRC))
ClinicalTrials.gov study NCT01880983. IPD Sharing: Not stated. Countries: 1. Publications: 0.
PREcision Diagnostics in Rare genetIC Diseases and Tumors - Long Read Sequencing
ClinicalTrials.gov study NCT06796751. IPD Sharing: NO. Countries: 1. Publications: 0.
Rare Glycogen Storage Diseases Natural History Study
ClinicalTrials.gov study NCT06795152. IPD Sharing: NO. Countries: 1. Publications: 0.
Diagnostic Value of Exome/ Genome Sequencing, Conventional Methods in Rare Diseases and Familial Tumor Syndromes
ClinicalTrials.gov study NCT04731857. IPD Sharing: NO. Countries: 1. Publications: 0.
Structural and Functional Characterization of Rare Ocular Diseases
ClinicalTrials.gov study NCT05258032. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Artificial Intelligence Guided Echocardiographic Screening of Rare Diseases (EchoNet-Screening)
ClinicalTrials.gov study NCT05139797. IPD Sharing: NO. Countries: 1. Publications: 0.
SAfety and TOlerance of the Biopsies in Auto-immune Rare dIseases
ClinicalTrials.gov study NCT05022420. IPD Sharing: YES. Countries: 1. Publications: 0.
Whole Genome Trio Sequencing as a Standard Routine Test in Patients With Rare Diseases - "GENOME FIRST APPROACH"
ClinicalTrials.gov study NCT03954652. IPD Sharing: NO. Countries: 1. Publications: 0.
Research for Individualized Therapeutics in Rare Genetic Disease
ClinicalTrials.gov study NCT05236595. IPD Sharing: NO. Countries: 1. Publications: 0.
Next Generation Sequencing Diagnostics - On the Road to Rapid Diagnostics for Rare Diseases
ClinicalTrials.gov study NCT02588638. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Transcriptomic Analysis of Fibroblasts and Blood in Patients With Rare Diseases
ClinicalTrials.gov study NCT07075107. IPD Sharing: NO. Countries: 1. Publications: 0.
Verification of the Epidemiology and Mortality of Rare Diseases in Taiwan With Real-world Evidence
ClinicalTrials.gov study NCT05367115. IPD Sharing: NO. Countries: 1. Publications: 0.
European Registry on Rare Neurological Diseases
ClinicalTrials.gov study NCT04319796. IPD Sharing: YES. Countries: 0. Publications: 0.
Biocollection of Rare Pediatric-onset of Autoimmune and Autoinflammatory Diseases
ClinicalTrials.gov study NCT06435468. IPD Sharing: NO. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.