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3,996 results for “registry”
Age at tumor diagnosis UNIPI Animal Cancer Registry dataset (2008-2023)
<p>Dataset with canine histologically-diagnosed tumor cases collected between January 1<sup>st</sup>, 2008, and December 31<sup>st</sup>, 2023 in the UNIPI pathology-based Animal Cancer Registry (Italy) and included in the study intitled: "<span>Age at Tumor Diagnosis in 14,636 Canine Cases from the Pathology-based UNIPI Animal Cancer Registry, Italy: One Size Doesn't Fit All". </span></p> <p>The tumor diagnoses are coded according to the Vet-ICD-O-canine-1 coding system.</p> <p>The subset included in Event History Analysis model is also provided.</p>
Kidney function, kidney function decline, and the risk of dementia in older adults: a registry-based study
<p><span><b>Objective:</b> Community-based reports regarding the association between the estimated glomerular filtration rate (eGFR) and dementia risk show conflicting results. This study aims is to investigate the links between kidney function, kidney function decline and dementia incidence.</span></p> <p><span><b>Methods:</b> We analyzed the association of eGFR with the risk of dementia (defined as a new dementia diagnosis or initiation of dementia treatments) among 329,822 residents of Stockholm who accessed healthcare during 2006-2011, were ≥65 years, had no history of dementia or underwent kidney replacement therapy. We also estimated the rate of eGFR decline among 205,622 residents with repeated eGFR measurements during the first-year of observation and investigated its association with subsequent dementia risk. </span></p> <p><span><b>Results: </b>18,983 cases of dementia (5.8% of participants) were detected over a median follow-up of 5 years. Dementia incidence rates (IR) were progressively higher with lower eGFR: from 6.56/1000 person-years in persons with eGFR 90-104ml/min to 30.28/1000 person-years in those with eGFR<30ml/min. After multivariable adjustment, lower eGFR was associated with a higher dementia risk [hazard ratio(HR), 1.71; 95% confidence interval(CI), 1.54-1.91 in eGFR 30-59ml/min and HR 2.62, 1.91-3.58 in eGFR<30ml/min] compared with eGFR of 90-104ml/min. A steeper decline in eGFR (decline>2ml/min/1.73m<sup>2</sup>/year) within one year was associated with higher dementia risk. Risk magnitudes were stronger for vascular dementia than for Alzheimer. As many as 10% (95% CI 6-14%) of dementia cases could be attributed to eGFR<60ml/min/1.73m<sup>2</sup>, a proportion higher than that attributed to other dementia risk factors such as cardiovascular disease and diabetes. </span></p> <p><span><span><b>Conclusions:</b> Both lower kidney function and steeper kidney function decline are associated with the development of dementia. </span></span></p>
SSHOC Training Material Video 4 - Contributing metadata to the Ethnic and Migrant Minorities' (EMM) Survey Registry as a professional polling/survey company - training video in English, French and Spanish
<p>Contributing metadata to the Ethnic and Migrant Minorities' (EMM) Survey Registry as a professional polling/survey company</p> <p>A training video targeting professional polling/survey companies to entice them to document their surveys on the EMM Survey Registry</p> <p><strong>Target Audience for the video: </strong>Professional polling/survey companies producing quantitative surveys on ethnic and migrant minorities’ integration and/or inclusion</p>
Design and implementation of a national clinical trials registry
<p>The authors have developed a Web-based system that provides summary information about clinical trials being conducted throughout the United States. The first version of the system, publicly available in February 2000, contains more than 4,000 records representing primarily trials sponsored by the National Institutes of Health. The impetus for this system has come from the Food and Drug Administration (FDA) Modernization Act of 1997, which mandated a registry of both federally and privately funded clinical trials “of experimental treatments for serious or life-threatening diseases or conditions.” The system design and implementation have been guided by several principles. First, all stages of system development were guided by the needs of the primary intended audience, patients and other members of the public. Second, broad agreement on a common set of data elements was obtained. Third, the system was designed in a modular and extensible way, and search methods that take extensive advantage of the National Library of Medicine's Unified Medical Language System (UMLS) were developed. Finally, since this will be a long-term effort involving many individuals and organizations, the project is being implemented in several phases.</p>
Follow-up of Spanish Prospective Asthma and Nasal Polyposis Registry
ClinicalTrials.gov study NCT06163807. IPD Sharing: NO. Countries: 0. Publications: 10.
International Multicenter Prospective Transtar Registry
ClinicalTrials.gov study NCT00909116. IPD Sharing: YES. Countries: 1. Publications: 2.
A Registry Study of Microcirculation Disorder After Cerebral Small Vessel Disease and Ischemic Stroke
ClinicalTrials.gov study NCT06077305. IPD Sharing: NO. Countries: 1. Publications: 18.
Cerebral Small Vessel Disease Registry Study
ClinicalTrials.gov study NCT04318119. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Heart Failure Recorded in Primary Care, Hospital Admissions and National Mortality Registry
ClinicalTrials.gov study NCT02551016. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Myocarditis Causing Premature Ventricular Contractions:Insights From the MAVERIC Registry
ClinicalTrials.gov study NCT05158751. IPD Sharing: Not stated. Countries: 1. Publications: 30.
Connect® MM- The Multiple Myeloma Disease Registry
ClinicalTrials.gov study NCT01081028. IPD Sharing: Not stated. Countries: 2. Publications: 16.
International Registry for Primary Hyperoxaluria
ClinicalTrials.gov study NCT00875823. IPD Sharing: Not stated. Countries: 1. Publications: 1.
International Registry of Patients With Alpha Thalassemia
ClinicalTrials.gov study NCT04872179. IPD Sharing: NO. Countries: 1. Publications: 2.
HERA FIb Registry for Patients With Atrial Fibrillation
ClinicalTrials.gov study NCT05995561. IPD Sharing: NO. Countries: 1. Publications: 3.
Lixiana Acute Stroke Evaluation Registry
ClinicalTrials.gov study NCT03494530. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Clinical Registry Assessment of the Missouri Osteochondral Allograft Preservation System - MOPS
ClinicalTrials.gov study NCT02503228. IPD Sharing: Not stated. Countries: 1. Publications: 21.
REGistry of Long-term AnTithrombotic TherApy-1
ClinicalTrials.gov study NCT04347200. IPD Sharing: NO. Countries: 1. Publications: 9.
Implementation of an Epidemiological and Clinical Registry of Emergency Surgery Patients in a Costa Rican Hospital
ClinicalTrials.gov study NCT05930574. IPD Sharing: NO. Countries: 1. Publications: 0.
Chinese Registry Study on Treatment of Cholecysto-Choledocholithiasis
ClinicalTrials.gov study NCT02554097. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Prospective Multicenter Registry On RadiaTion Dose Estimates Of Cardiac CT AngIOgraphy IN Daily Practice in 2017
ClinicalTrials.gov study NCT02996903. IPD Sharing: NO. Countries: 4. Publications: 1.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
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DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.