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48 results for “Follow-up data”
Data from DIAMAS follow-up survey about funding practices
<p>The WP5 team of the DIAMAS project designed a follow-up survey to investigate the funding <br>practices of IPSPs more deeply. We examined the proportion of Diamond publishing within the <br>same IPSP by output type, and the capability to plan for the future. We also enquired about <br>spending priorities, reasons for fundraising and the amount of work required, and asked about <br>views on institutional publishing funding.</p> <p><br>The project sent the follow-up survey to respondents of the DIAMAS survey (metadata and <br>aggregated data available <a href="../records/10590503">here</a>) who agreed to be contacted. Emails used unique identifiers, <br>enabling us to merge databases and easily recover information gathered from the first survey <br>for more advanced cross-analysis.</p> <p><br>This follow-up survey was open during the last two months of 2023 and successfully garnered <br>469 answers. After cleaning (mainly deleting blank surveys and duplicates), we retained 383 <br>relevant answers, a response rate of 56%.</p>
Data, code, and outputs for the paper "Can Place-Based Crime Prevention Impacts be Sustained Over Long Durations? 11-Year Follow-Up of a Quasi-Experimental Evaluation of a CCTV Project"
<p>**********<br>Can Place-Based Crime Prevention Impacts be Sustained Over Long Durations? 11-Year Follow-Up of a Quasi-Experimental Evaluation of a CCTV Project<br>**********</p> <p>The phase-specific datasets for the main and displacement analyses are contained in the “1.datasets” folder. </p> <p>The scripts used to conduct the microsynthetic control matching analyses are contained in the “2.Rscripts” folder. The subfolders “3.outputs_main” and "4.outputs_displacement" contains all graphs and tables generated by the microsynth package. Please note that running the analysis will take several hours on most computer systems.</p> <p>The Microsoft Excel file displays the results of all models conducted for this analysis. Yellow tabs contain the WDD results presented in the text of the article. Red tabs are the per-capita (quarter-year) microsynth results used to calculate WDD values. All other tabs contain the raw microsynth outputs used to calculate the per-capita results. </p>
Data archive for Gott et al. 'Chronological age, biological age, and individual variation in the stress response in the European starling: A follow-up study'
<p>Data archive for Gott et al. 'Chronological age, biological age, and individual variation in the stress response in the European starling: A follow-up study'.</p> <p>Revised version of September 4 2018.</p> <p>Contains one data file and one R script to reproduce the analyses in the paper.</p>
Data from: GTC FOLLOW-UP OBSERVATIONS OF VERY METAL-POOR STAR CANDIDATES FROM DESI
<p>Data for plots in the paper. The dat folders include the spectra shown in Figures 1-2-3, and the file osiris/allende2023_desi_osiris_carbon.mrt gives the data points in Figure 4. The observed stellar spectra come from the Dark Energy Spectroscopic Instrument and the OSIRIS instrument on the 10.4-m Gran Telescopio Canarias. All data are in text files, in Machine Readable Table (MRT) format. See the included Readme.txt file for details.</p>
Data from: Statin use and cognitive function: population-based observational study with long-term follow-up
We aimed to evaluate the association between statin use and cognitive function. Cognitive function was measured with the Ruff Figural Fluency Test (RFFT; worst score, 0; best score, 175 points) and the Visual Association Test (VAT; low performance, 0–10; high performance, 11–12 points) in an observational study that included 4,095 community-dwelling participants aged 35–82 years. Data on statin use were obtained from a computerized pharmacy database. Analysis were done for the total cohort and subsamples matched on cardiovascular risk (N = 1232) or propensity score for statin use (N = 3609). We found that a total of 904 participants (10%) used a statin. Statin users were older than non-users: mean age (SD) 61 (10) vs. 52 (11) years (p<0.001). The median duration of statin use was 3.8 (interquartile range, 1.6–4.5) years. Unadjusted, statin users had worse cognitive performance than non-users. The mean RFFT score (SD) in statin users and non-users was 58 (23) and 72 (26) points, respectively (p<0.001). VAT performance was high in 261 (29%) statin users and 1351 (43%) non-users (p<0.001). However, multiple regression analysis did not show a significant association of RFFT score with statin use (B, −0.82; 95%CI, −2.77 to 1.14; p = 0.41) nor with statin solubility, statin dose or duration of statin use. Statin users with high doses or long-term use had similar cognitive performance as non-users. This was found in persons with low as well as high cardiovascular risk, and in younger as well as older subjects. Also, the mean RFFT score per quintile of propensity score for statin use was comparable for statin users and non-users. Similar results were found for the VAT score as outcome measure. In conclusion, statin use was not associated with cognitive function. This was independent of statin dose or duration of statin use.
Data from: Primary care follow-up and measured mental health outcomes among women referred for ultrasound assessment of pain and/or bleeding in early pregnancy: a quantitative questionnaire study
Objectives To examine the extent of primary care follow-up and mental health outcomes among women referred for ultrasound assessment of pain and/or bleeding in early pregnancy, including those whose pregnancy is found to be viable on ultrasound assessment. Design Questionnaire study with prospective follow-up. Setting Urgent gynaecology clinic in secondary care, England. Participants 57 women participated in the study. Entry criteria: referral to the urgent gynaecology clinic with pain and/or bleeding in early pregnancy; gestation less than 16 weeks (the clinic's own 'cut-off'); no previous attendance at the clinic during the current pregnancy. Exclusion criteria: inability to understand English or to provide informed consent. Primary and secondary outcome measures Incidence of primary care follow-up among women referred to the urgent gynaecology clinic; incidence of women with measured mental health scores suggesting significant symptoms of distress. Results Fewer than 1 in 10 women referred for ultrasound assessment of pain and/or bleeding in early pregnancy had follow-up arrangements made with their general practitioner (GP). Most women who had GP follow-up found it helpful and a significant minority of women who did not have GP follow-up felt that it would have been helpful. Following ultrasound assessment, more than one-third of women had significant symptoms of distress. Symptoms of distress, particularly anxiety, were present among those women found to have viable pregnancies, as well as among those with non-viable pregnancies. Conclusions GPs are advised to consider offering follow-up to all women referred for ultrasound assessment of pain and/or bleeding in early pregnancy. Researchers in this area are advised to consider the experiences of women with pain and/or bleeding in early pregnancy whose pregnancies are ultimately found to be viable on ultrasound scan.
Data from: Long-term benefit of hepatitis C therapy in a safety net hospital system: a cross-sectional study with median 5-year follow-up
Objectives: To demonstrate the effectiveness of hepatitis C virus (HCV) therapy and survival benefit from sustained virologic remission (SVR) in a safety net hospital population with limited resources. Design and setting: We conducted a retrospective cross-sectional study at an urban safety-net hospital in the U.S. Participants and intervention: 242 patients receiving standard HCV therapy between 2001 and 2006. Primary and secondary outcome measures: Response rates, including sustained virologic response (SVR), were recorded for each patient. Univariate and multivariate analyses were performed to identify predictors of SVR and 5 year survival. Results: A total of 242 eligible patients were treated. Treatment was completed in 197 (81%) patients, with 43 patients discontinuing therapy early – 32 due to adverse events and 11 due to non-compliance. Complications on treatment were frequent, including 3 deaths. SVR was achieved in 83 patients (34%). On multivariate analysis, independent predictors of a decreased likelihood of achieving SVR included African American race (OR 0.20, 95% CI 0.07 – 0.54), genotype 1 HCV infection (OR 0.25, 95% CI 0.13 – 0.50) and the presence of cirrhosis (OR 0.26, 95% CI 0.12 – 0.58). Survival was 98% in those achieving SVR (median follow-up 72 months) and 71% in non-responders and those discontinuing therapy (n = 91, median known follow-up 65 and 36 months respectively). On multivariate analysis, the only independent predictor of improved survival was SVR (HR 0.12, 95% CI 0.03 – 0.52). Both cirrhosis and hypoalbuminemia were independent predictors of increased mortality. Conclusions: HCV therapy can be effective despite limited resources. Survival is improved in those achieving SVR. Treatment before histologic cirrhosis develops, in combination with careful selection, may improve long-term outcomes without compromising other health care endeavors in safety net hospitals and areas with financial limitations.
Follow-up representative source data of metastatic colorectal cancer patients treated with TAS-102 and regorafenib
<p>Follow-up representative source data of metastatic colorectal cancer patients treated with TAS-102 and regorafenib (date of vital status and tomographic scans).</p>
Real-World Cohort Study of Cardiopulmonary Function in Chinese Patients With Cardiovascular Disease: CPET Evaluation and Five-Year Prognostic Follow-Up Based on a Multicenter Structured Data Platform
ClinicalTrials.gov study NCT07130968. IPD Sharing: NO. Countries: 1. Publications: 3.
OCS Lung Expand Post-Approval Study - Expand Follow-Up Data Collection
ClinicalTrials.gov study NCT04194398. IPD Sharing: UNDECIDED. Countries: 3. Publications: 1.
Data from: Two-year impact of community-based health screening and parenting groups on child development in Zambia: follow-up to a cluster-randomized controlled trial
Open the record for dataset details and reuse information.
Data from: Primary care follow-up and measured mental health outcomes among women referred for ultrasound assessment of pain and/or bleeding in early pregnancy: a quantitative questionnaire study
Open the record for dataset details and reuse information.
Data from: Statin use and cognitive function: population-based observational study with long-term follow-up
Open the record for dataset details and reuse information.
Data from: Long-term benefit of hepatitis C therapy in a safety net hospital system: a cross-sectional study with median 5-year follow-up
Open the record for dataset details and reuse information.
Data from: Post-operative follow-up for selected diffuse low-grade gliomas with WHO grade III/IV foci
Objective: Diffuse low-grade gliomas (DLGG) are defined by a continuous growth and an almost unavoidable malignant transformation. Foci of malignant glioma can be found within DLGG samples obtained from surgical resections. As the medical management of patients is classically based on the higher tumor grade, an immediate adjuvant treatment is usually proposed. To determine whether postponing the medical treatment in selected patients is feasible, we conducted a single-center retrospective study. Methods: Single-center retrospective analysis of a consecutive series of DLGG managed with this conservative strategy. Inclusion criteria were: at least one focus of malignant tumor (grade III-IV, WHO 2016), no previous chemotherapy or radiotherapy, no less than a subtotal resection of the FLAIR tumor volume, no intention of treating with immediate adjuvant therapy, minimum two years of follow-up. The time interval to the following oncological medical treatment was analyzed, as well as the functional and survival results. Results: 45 patients met the inclusion criteria (median age 36.5, median time interval from diagnosis: 7.3 months). Most tumors (86.7%) were IDH-mutant and 1p19q intact (60.0%); 10 presented with grade IV foci. With a median follow-up of 6.3 years, 75.5% of patients received a subsequent medical treatment, after a median time of 3.7 years since surgery. At the time of analysis, 9 patients (20.0%) had died (5-years and 7-years survival rates: 95.2% and 67.0%). Most surviving patients were still active professionally, without seizures. Conclusions: Postponing the medical treatment in DLGG with foci of malignant tumor following total or subtotal resection should be considered in selected patients.
Data from: Axial length elongation and myopia incidence increase in primary school-age children: 3-year follow-up study
<p>Objective: To investigate the axial length (AL) elongation in primary school-age children during 3-year follow-up period, and evaluate the associations of AL elongation with spherical equivalent (SE), AL at baseline, body height and weight.</p> <p>Design: A 3-year observational cohort study from 2014 to 2017.</p> <p>Setting: Jinshan Hospital of Fudan University in Shanghai.</p> <p>Methods: A total of 452 children successfully completed their measurements in the 3-year follow-up period. Among those children, the mean age was 6.9 ± 0.7 years, ranging from 6 years to 8 years, and 217 (42.7%) were boys. AL was measured with an ocular biometry system. Refractive error was measured using an auto-refractor without cycloplegia.</p> <p>Results: The mean changes of ALs were 0.27 ± 0.28 mm, 0.52 ± 0.40 mm, and 0.89 ± 0.51mm over 1 year, over 2 years and over 3 years, respectively. The mean changes of Spherical equivalents (SEs) were -0.27 ± 0.80 D, -0.56 ± 1.00 D, and -0.95 ± 1.41 D over 1 year, over 2 years and over 3 years, respectively. Multivariate linear regression analysis revealed that mean change of AL was associated with mean change of SE at all points (all P < 0.001). In addition, linear regression analysis revealed that AL elongation in the 3-year follow-up period was associated with AL at baseline (R2 = 0.009, P = 0.045).</p> <p>Conclusions: AL elongation is relatively high in the primary school-age children in Jinshan District, Shanghai. Effect strategies are needed to control AL elongation.</p> <p> </p>
Data from: Analysis of personal and family factors in the persistence of attention deficit hyperactivity disorder: results of a prospective follow-up study in childhood
Objectives: To study the course of ADHD during childhood and analyze possible personal and family predictor variables of the results. Method: Sixty-one children with ADHD who were between 6 and 12 years old at the baseline assessment were evaluated 30 months later (mean age at baseline: 8.70 ± 1.97; mean age at follow-up: 10.98 ± 2.19). Status of ADHD in follow-up was identified as persistent (met DSM-IV-TR criteria according to parents' and teachers' ratings), contextually persistent (met ADHD criteria according to one informant, and there was functional impairment) and remitted ADHD (with subthreshold clinical symptomatology). Associated psychological disorders of the three groups were analyzed in the follow-up with the Conners' Rating Scales. The groups were compared on ADHD characteristics (symptoms of ADHD and impairment), child psychopathology, executive functioning (EF; inhibition, working memory) and parenting characteristics (parental stress and discipline styles) at baseline. Results: At the follow-up, 55.7% of the children continued to meet the DSM-IV-TR criteria for ADHD, 29.5% showed contextual persistence, and 14.8% presented remission of the disorder. The persistent and contextually persistent ADHD groups showed more associated psychological disorders. Inattention, oppositional problems, cognitive problems and impairment at baseline distinguished the remitted ADHD children from the persistent and contextually persistent ADHD children. Moreover, the persistent groups had significantly more emotional liability and higher parental stress than the group in remission, while no differences in EF where found among the groups. Conclusions: ADHD children continue to present symptoms, as well as comorbid psychological problems, during adolescence and early adulthood. These findings confirm that persistence of ADHD is associated with child psychopathology, parental stress and impairment in childhood.
Data from: Gynaecological cancer follow-up: national survey of current practice in the UK
Objective: To establish a baseline of national practice for follow-up after treatment for gynaecological cancer. Design: Questionnaire survey. Setting: Gynaecological cancer centres and units. Geographical location: UK Participants: Members of the British Gynaecological Cancer Society and the National Forum of Gynaecological Oncology Nurses. Interventions: A questionnaire survey. Outcome measures: To determine schedules of follow-up, who provides it and what routine testing is used for patients who have had previous gynaecological cancer. Results: A total of 117 responses were obtained; 115 (98%) reported hospital scheduled regular follow-up appointments. Two involved General Practitioners. Follow-up was augmented or replaced by telephone follow-up in 29 (25%) and patient initiated appointments in 38 responses (32%). A total of 80 (68%) cancer specialists also offered combined follow-up clinics with other specialties. Clinical examinations for hospital based follow-up were mainly performed by doctors (67% for scheduled regular appointments and 63% for patient initiated appointments) while telephone follow-up care was provided in the majority by nurses (76%). Most respondents provided routine tests (76/117 (65%)), from which 66/76 (87%) reported carrying out surveillance tests for ovarian cancer, 35/76 (46%) for cervical cancer, 8/76 (11%) for vulval cancer and 7/76 (9%) for endometrial cancer. Usually patients were discharged after five years (82/117 (70%)), whereas three (3%) were discharged after four years, nine (8%) after three and one (1%) after two years. Conclusions: Practice varied but most used a standard hospital based protocol of appointments for five years and routine tests were performed usually for women with ovarian cancer. A minority utilised nurse-led or telephone follow-up. General Practitioners were rarely involved in routine care. A randomised study comparing various models of follow-up could be considered.
Data from: Sialendoscopy enhances salivary gland function in Sjögren's syndrome: a 6 month follow-up, randomized and controlled, single blind study
Objectives: To assess the effect of sialendoscopy of the major salivary glands on salivary flow and xerostomia in patients with Sjögren's syndrome (SS). Methods: Forty nine SS patients were randomly assigned to a control group (n=15) and two intervention groups: irrigation of the major glands with saline (n=16) or with saline followed by triamcinolone acetonide (TA) in saline (n=18). Unstimulated whole saliva flow (UWS), chewing stimulated whole saliva flow (SWS), citric-acid stimulated parotid flow (SPF), Clinical Oral Dryness Score (CODS), Xerostomia Inventory score (XI), and EULAR SS Patient Reported Index (ESSPRI) were obtained 1 week (T0) before, and 1(T1), 8(T8), 16(T16), and 24(T24) weeks after sialendoscopy. Results: Median baseline UWS, SWS and SPF scores were, respectively, 0.14, 0.46, and 0.22mL/min. After intervention, significant increases in UWS and SWS were observed in the saline group (at T8 (p=0.013) and T24 (p=0.004)) and the saline/TA group (at T24 (p=0.03) and T=16 (p=0.035). SPF was increased significantly in the saline/TA group at T24 (p=0.03). XI scores declined after sialendoscopy in both intervention groups. Compared to the control group, CODS, XI, and ESSPRI improved in the intervention groups. UWS, SWS, and SPF were higher in the intervention groups compared to the control group, but these differences were not significant except for SPF in the saline/TA group at T24 (p=0.005). Conclusions: Irrigation of the major salivary glands in SS patients enhances salivary flow and reduces xerostomia up to 6 months after sialendoscopy.
Data from: Long-term follow-up results in patients undergoing percutaneous coronary intervention (PCI) with drug-eluting stents: results from a single high-volume PCI center
Objective: To assess both short and long-term prognosis in consecutive patients with coronary heart disease (CHD) treated with drug-eluting stents (DES) in a high-volume percutaneous coronary intervention (PCI) center. Design: Observational cohort study. Setting: A hospital in the Henan province, China, between 2009 and 2011. Participants: A total of 2,533 patients were enrolled. Patients with ST-elevation myocardial infarction (STEMI) treated with urgent PCI accounted for 3.9% of cases; patients with STEMI treated with delayed PCI accounted for 20.5% of cases; patients with stable angina (SA) accounted for 16.5% of cases; and patients with non-ST elevation acute coronary syndromes (NSTE-ACS) accounted for 58.6% of cases. Primary outcomes: Death, major adverse cardiac and cerebrovascular events (MACCE: death/myocardial infarction/stroke), and target vessel revascularization. Results: Follow-up after a median of 29.8 months was obtained for 2,533 patients (92.6%). The mortality rate during hospitalization was highest in the urgent PCI group (p <0.001). During follow-up, although the incidences of death and MACCE were highest in the urgent PCI group, no significant differences were observed between the different groups. The incidences of cardiac death and myocardial infarction were significantly higher in the paclitaxel-eluting stent (PES) group than in the sirolimus-eluting stent (SES) group. Independent predictors of death during follow-up were: age, left ventricular ejection function (LVEF) < 40%, diabetes mellitus, prior coronary artery bypass graft (CABG), and chronic total occlusion. Conclusions: PCI patients with STEMI had the worst hospital and long-term prognosis. The mortality rate after hospital increased markedly in NSTE-ACS patients. SES seems to be more effective than PES.
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Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.