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Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
71
datasets available to search
ShareScore release 0.9.0
Dataset results
71 results for “adult congenital heart disease”
Young Adult Congenital Heart Disease Physical Activity Lifestyle Study (YACHD-PALS)
ClinicalTrials.gov study NCT04135859. IPD Sharing: NO. Countries: 1. Publications: 1.
Assessing and Promoting Resilience in Patients With Adult Congenital Heart Disease
ClinicalTrials.gov study NCT04738474. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Iloprost for the Treatment of Pulmonary Hypertension in Adults With Congenital Heart Disease
ClinicalTrials.gov study NCT01319045. IPD Sharing: Not stated. Countries: 1. Publications: 13.
Myocardial Perfusion and Scarring in Adults With Congenital Heart Disease
ClinicalTrials.gov study NCT02861365. IPD Sharing: YES. Countries: 1. Publications: 3.
Microvascular Dysfunction in Adults with Congenital Heart Disease and the Effect of Exercise Training
ClinicalTrials.gov study NCT06715137. IPD Sharing: NO. Countries: 1. Publications: 4.
Psychological Trauma, Post-Traumatic Stress Disorder, and Resilience in Adults With Congenital Heart Disease
ClinicalTrials.gov study NCT06952933. IPD Sharing: NO. Countries: 1. Publications: 4.
Adult Congenital Heart Disease International EValuation of the Effectiveness of SGLT2i Registry
ClinicalTrials.gov study NCT06932081. IPD Sharing: Not stated. Countries: 4. Publications: 3.
Apixaban in Adults With Congenital Heart Disease and Atrial Arrhythmias: the PROTECT-AR Study
ClinicalTrials.gov study NCT03854149. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Rehabilitation of Adolescents and Young Adults With Congenital Heart Diseases
ClinicalTrials.gov study NCT03690518. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Effect of Resistance Training in Adults With Complex Congenital Heart Disease
ClinicalTrials.gov study NCT02658266. IPD Sharing: NO. Countries: 1. Publications: 5.
Efficacy of Remodulin in Adults With Congenital Heart Disease (ACHD) and Pulmonary Hypertension
ClinicalTrials.gov study NCT01980979. IPD Sharing: Not stated. Countries: 1. Publications: 4.
Start-to-Sport - Home-based Exercise for Adolescents and Adults With Congenital Heart Disease
ClinicalTrials.gov study NCT02240147. IPD Sharing: Not stated. Countries: 1. Publications: 1.
The Impact of an Innovative eHealth Transition Intervention on Self-Management Skills Among Young Adults With Congenital Heart Disease
ClinicalTrials.gov study NCT04463446. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Hospital-Based and Home-Based Resistance Training in Adult Congenital Heart Disease
ClinicalTrials.gov study NCT06680973. IPD Sharing: NO. Countries: 1. Publications: 2.
Assessment of Patterns of Patient Reported Outcomes in Adults With Congenital Heart Disease - International Study II
ClinicalTrials.gov study NCT04902768. IPD Sharing: NO. Countries: 32. Publications: 4.
Prognosis in Adult Patients with Congenital Heart Disease
ClinicalTrials.gov study NCT06723704. IPD Sharing: NO. Countries: 1. Publications: 6.
Heart Failure in Adult Patients With a History of Congenital Heart Disease
ClinicalTrials.gov study NCT00208754. IPD Sharing: Not stated. Countries: 1. Publications: 4.
Perioperative Transfusion Strategies in Adult Congenital Heart Disease Patients Undergoing Cardiac Surgery
ClinicalTrials.gov study NCT04973514. IPD Sharing: NO. Countries: 1. Publications: 12.
White Matter Hyperintensities Burden in Adult Patients With Cyanotic Congenital Heart Disease: a Pilot Study
ClinicalTrials.gov study NCT03487302. IPD Sharing: NO. Countries: 1. Publications: 1.
Patient-Reported Outcomes in Adults With Congenital Heart Disease
ClinicalTrials.gov study NCT02150603. IPD Sharing: Not stated. Countries: 15. Publications: 9.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.