Skip to main content
Powered by ShareScore

Find research datasets worth reusing

Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.

10

datasets available to search

ShareScore release 0.9.0

Reset

Dataset results

10 results for “healthcare pathways”

Learn how ShareScore rates datasets ↗
zenodo40/100

CONCEPT-DIABETES DATA MODEL TO ANALYSE HEALTHCARE PATHWAYS OF TYPE 2 DIABETES

<p><strong>Technical notes and documentation on the common data model of the project CONCEPT-DM2.&nbsp;</strong></p> <p>This publication corresponds to the Common Data Model (CDM) specification of the CONCEPT-DM2 project for the implementation of a federated network analysis of the healthcare pathway of type 2 diabetes, version v0.2.0.</p> <p><strong>Aims of the CONCEPT-DM2 project: </strong></p> <p>General aim: To analyse chronic care effectiveness and efficiency of care pathways in diabetes, assuming the relevance of care pathways as independent factors of health outcomes using data from real life world (RWD) from five Spanish Regional Health Systems.</p> <p>Main specific aims:</p> <ul> <li>To characterize the care pathways in patients with diabetes through the whole care system in terms of process indicators and pharmacologic recommendations</li> <li>To compare these observed care pathways with the theoretical clinical pathways derived from the clinical practice guidelines</li> <li>To assess if the adherence to clinical guidelines influence on important health outcomes, such as cardiovascular hospitalizations.</li> <li>To compare the traditional analytical methods with process mining methods in terms of modeling quality, prediction performance and information provided.</li> </ul> <p><strong>Study Design: </strong>It is a population-based retrospective observational study centered on all T2D patients diagnosed in five Regional Health Services within the Spanish National Health Service. We will include all the contacts of these patients with the health services using the electronic medical record systems including Primary Care data, Specialized Care data, Hospitalizations, Urgent Care data, Pharmacy Claims, and also other registers such as the mortality and the population register.</p> <p><strong>Cohort definition: </strong>All patients with code of Type 2 Diabetes in the clinical health records</p> <ul> <li>Inclusion criteria: patients that, at 2017-01-01 or during the follow-up from 2017-01-01 to 2022-12-31&nbsp;had active health card (active TIS - tarjeta sanitaria activa) and code of type 2 diabetes (T2D, DM2 in spanish) in the clinical records of primary care (CIAP2 T90 in case of using CIAP code system)</li> <li>Exclusion criteria: <ul> <li>patients with no contact with the health system from 2017-01-01 to&nbsp;2022-12-31</li> <li>patients that had a T1D (DM1) code opened after the T2D code during the follow-up.</li> </ul> </li> <li>Study period. From 2017-01-01&nbsp;to&nbsp;2022-12-31</li> </ul> <p><strong>Files included in this publication: </strong></p> <ul> <li>Datamodel_CONCEPT_DM2_diagram_v0.2.0.jpg</li> <li>Common data model specification (Datamodel_CONCEPT_DM2_v.0.2.0.xlsx)</li> <li>Synthetic datasets (Datamodel_CONCEPT_DM2_sample_data_v0.2.0) <ul> <li>sample_data1_dm_patient.csv</li> <li>sample_data2_dm_param.csv</li> <li>sample_data3_dm_patient.csv</li> <li>sample_data4_dm_param.csv</li> <li>sample_data5_dm_patient.csv</li> <li>sample_data6_dm_param.csv</li> <li>sample_data7_dm_param.csv</li> <li>sample_data8_dm_param.csv</li> </ul> </li> <li>Datamodel_CONCEPT_DM2_explanation_v0.2.0.pptx</li> </ul> <p><strong>CHANGE-LOG from version v0.1.0 to v0.2.0.</strong></p> <p>The main changes are the following:</p> <ul> <li>Missing data is now identified leaving the field empty</li> <li> <p>All ICD diagnosis given in the Datamodel refer to the root code, so that all codes and subcodes that start with the given codes need to be considered. For instance, if in the data model appears I21, then all codes I21.x should be included.</p> </li> <li> <p>All admissions registered in the CMBD will be included to facilitate the extraction procedure (annex 8 disappears).</p> </li> <li> <p>Three diagnosis codes and three procedure codes are now included in table dm_cmbd.</p> </li> </ul> <p><strong>CHANGE-LOG from version v0.2.0 to v0.3.0.</strong></p> <p>The main changes are the following:</p> <ul> <li>Variable 'copayment' (annex 2) change: cod 002.01 =&gt;0; cod 002.02 =&gt;1</li> <li>Variable 'visit_service' (annex 8) change: APR refers to Primary Care and APA refers to Pathological Anatomy</li> <li>Variable 'filglom' (annex 4) change:&nbsp; non numerical values compatible with '&gt; 60' =&gt; 999</li> </ul>

opencc-by-4.0Jun 2023View details →
ClinicalTrials.gov32/100

Prospective Cohort Follow-up of French Patients With Profound and Multiple Disabilities: Healthcare Pathways and Quality of Life Among Patients and Their Families

ClinicalTrials.gov study NCT02400528. IPD Sharing: Not stated. Countries: 1. Publications: 6.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Study Evaluating Telemonitoring and Experimentation in Telemedicine for the Improvement of Healthcare Pathways (ETAPES Program) Compared to Standard of Care in Patients With Chronic Respiratory Failur

ClinicalTrials.gov study NCT04615078. IPD Sharing: Not stated. Countries: 1. Publications: 1.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Mapping the Healthcare Pathway to Multidisciplinary Assessment of 12-25 Year Olds With Somatic Symptom Disorder

ClinicalTrials.gov study NCT06582173. IPD Sharing: Not stated. Countries: 1. Publications: 8.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Impact of Changes in the Use of Care and Reorganization of the Healthcare System Linked to the Covid-19 Outbreak on the Quality of Care Pathways of Patients Suffering From Acute Myocardial Infarction

ClinicalTrials.gov study NCT04979208. IPD Sharing: Not stated. Countries: 1. Publications: 2.

restrictedIPD-UNDECIDEDFeb 2026View details →
zenodo28/100

Cartoon: Achieving NetZero: Evaluating interventions to reduce carbon-emissions on the patient care pathway in secondary healthcare - A systematic review and evidence gap map

<p>These three cartoons provide a summary of findings from the systematic review entitled: "Effectiveness of interventions to reduce carbon-emissions within secondary healthcare: Systematic review and narrative synthesis.</p> <p>For further detail on the background, main results and recommendations arising from this systematic review, we recommend you consult the Full Repor and/or Briefing Paper linked below.</p> <p>This work is carried out by Exeter Policy Research Programme Evidence Review Facility [NIHR 200695]. Views expressed are those of the authors and not necessarily those of the NHS, NIHR, Greener NHS team or NHS England.</p> <p>&nbsp;</p> <p>&nbsp;</p>

restrictedcc-by-4.0Oct 2024View details →
ClinicalTrials.gov24/100

Impact of the Coordinated Intervention of the Healthcare Facilities Pharmacist and the Dispensary Pharmacist on the Care Pathway for Cancer Patients Treated With Oral Therapy

ClinicalTrials.gov study NCT04327583. IPD Sharing: Not stated. Countries: 1. Publications: 0.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov24/100

Collaborative Healthcare Professionals Approach in Monitoring of Patient Centered Outcomes Through Pathways

ClinicalTrials.gov study NCT01561885. IPD Sharing: Not stated. Countries: 1. Publications: 0.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov24/100

Improving Healthcare Outcomes With Early Detection of Liver Related Complications in Liver Cirrhosis Patients by Implementing a Telemedicine Care Pathway (myLIVERcoach)

ClinicalTrials.gov study NCT07376967. IPD Sharing: NO. Countries: 1. Publications: 0.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov20/100

Implementation of Clinical Pathway to Improve Quality of Healthcare in Stroke Inpatients

ClinicalTrials.gov study NCT02978794. IPD Sharing: Not stated. Countries: 0. Publications: 0.

restrictedIPD-UNDECIDEDFeb 2026View details →

ScienceDex guides

Understand access before you commit

These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.

Compare curated datasets

Allen Brain Atlas

Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.

allen-brain-atlas
neuroscienceopenDocumentation, web resources, and API references are available online.
Last verified 2026-04-30Open record

Annotated Behaviour and Observability Dataset (ABODe)

ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.

abode-home-cage
behavioral-neuroscienceopenThe DataShare record exposes download links for annotations, documentation, license text, and the zipped per-snippet data directory.
Last verified 2026-04-30Open record

DANDI Archive for NWB datasets

DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.

dandi-nwb
electrophysiologyopenPublished Dandiset metadata and archive endpoints are available through the production DANDI API.
Last verified 2026-04-30Open record

International Brain Laboratory public data

The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.

ibl
behavioral-neuroscienceopenPublic sessions can be searched and loaded from the IBL public data server through ONE.
Last verified 2026-04-29Open record

OpenNeuro

OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.

openneuro
neuroscienceopenPublished datasets are available on demand over the internet.
Last verified 2026-04-29Open record