Skip to main content
Powered by ShareScore

Find research datasets worth reusing

Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.

49

datasets available to search

ShareScore release 0.7.1

Reset

Dataset results

49 results for “monogenic”

Learn how ShareScore rates datasets ↗
zenodo40/100

Spatial integration of transcription and splicing in a dedicated compartment sustains monogenic antigen expression in African trypanosomes

<p>This repository contains the data for the manuscript <a href="https://doi.org/10.1038/s41564-020-00833-4">https://doi.org/10.1038/s41564-020-00833-4</a>.</p> <p>The HiC analysis pipeline can be found at&nbsp;<a href="https://github.com/bgbrink/PRJEB35632">https://github.com/bgbrink/PRJEB35632</a>.</p> <p><strong>Abstract</strong></p> <p>Highly selective gene expression is a key requirement for antigenic variation in several pathogens, allowing evasion of host immune responses and maintenance of persistent infections. African trypanosomes &mdash; parasites that cause lethal diseases in humans and livestock &mdash; employ an antigenic variation mechanism that involves monogenic antigen expression from a pool of &gt;2,600 antigen-coding genes. In other eukaryotes, the expression of individual genes can be enhanced by mechanisms involving the juxtaposition of otherwise distal chromosomal loci in the three-dimensional nuclear space. However, trypanosomes lack classical enhancer sequences or regulated transcription initiation. In this context, it has remained unclear how genome architecture contributes to monogenic transcription elongation and transcript processing. Here, we show that the single expressed antigen-coding gene displays a specific inter-chromosomal interaction with a major messenger RNA splicing locus. Chromosome conformation capture (Hi-C) revealed a dynamic reconfiguration of this inter-chromosomal interaction upon activation of another antigen. Super-resolution microscopy showed the interaction to be heritable and splicing dependent. We found a specific association of the two genomic loci with the antigen exclusion complex, whereby VSG exclusion 1 (VEX1) occupied the splicing locus and VEX2 occupied the antigen-coding locus. Following VEX2 depletion, loss of monogenic antigen expres- sion was accompanied by increased interactions between previously silent antigen genes and the splicing locus. Our results reveal a mechanism to ensure monogenic expression, where antigen transcription and messenger RNA splicing occur in a specific nuclear compartment. These findings suggest a new means of post-transcriptional gene regulation.</p>

opencc-by-4.0Jan 2021View details →
dryad36/100

Categorisation of monogenic disorders: Underlying a deficit of type I IFN activity / observed type I IFN signalling upregulation

<div>The last 20 years have seen the definition of human monogenic disorders and their autoimmune phenocopies underlying either defective or enhanced type I interferon (IFN) activity. These disorders delineate the impact of type I IFNs in natural conditions. Remarkably, only a narrow window of type I IFN activity is beneficial. Insufficient type I IFN predisposes humans to life-threatening viral diseases, albeit surprisingly few, with a central role in immunity to respiratory and cerebral viral infection. Excessive type I IFN, perhaps unexpectedly, appears to underlie a greater number of autoinflammatory and/or autoimmune conditions known as type I interferonopathies, whose study has revealed multiple molecular programs involved in the induction of type I IFN signaling. These observations suggest the manipulation of type I IFN activity to within a physiological range may be clinically relevant for the prevention and treatment of viral and inflammatory disease.</div>

opencc-zeroMay 2024View details →
zenodo36/100

Knockout mice represent an important tool for the multisystemic study of human monogenic heart disease

<p>Supplementary data to support a manuscript entitled &quot;Knockout mice represent an important tool for the multisystemic study of human monogenic heart disease&quot;</p>

opencc-by-4.0Dec 2022View details →
dryad36/100

Categorisation of monogenic disorders: Underlying a deficit of type I IFN activity / observed type I IFN signalling upregulation

Open the record for dataset details and reuse information.

publicMay 2024View details →
dryad36/100

Autoantibody discovery across monogenic, acquired, and COVID19-associated autoimmunity with scalable PhIP-Seq

Open the record for dataset details and reuse information.

publicNov 2022View details →
dryad36/100

Lesion evolution and neurodegeneration in RVCL-S, a monogenic microvasculopathy

Open the record for dataset details and reuse information.

publicApr 2021View details →
ClinicalTrials.gov32/100

Phase 1b/2a Trial of Allogeneic HSCT From an HLA-partially Matched Related or Unrelated Donor After TCRab+ T-cell/CD19+ B-cell Depletion for Patients With Monogenic and/or Early-onset Medically Refrac

ClinicalTrials.gov study NCT06986382. IPD Sharing: NO. Countries: 1. Publications: 13.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov32/100

Delineation of Novel Monogenic Disorders in the United Arab Emirates Population

ClinicalTrials.gov study NCT03589079. IPD Sharing: Not stated. Countries: 1. Publications: 4.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov32/100

Efficacy of Semaglutide s.c. Once-weekly on Weight Loss and Management in Adolescents With Monogenic Obesity in Clinical Practice

ClinicalTrials.gov study NCT07302802. IPD Sharing: NO. Countries: 5. Publications: 5.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov32/100

Sequential Transplantation of UCBSCs and Islet Cells in Children and Adolescents With Monogenic Immunodeficiency T1DM

ClinicalTrials.gov study NCT03835312. IPD Sharing: NO. Countries: 1. Publications: 17.

closedIPD-NOFeb 2026View details →
dryad32/100

Data from: Identification of novel, clinically correlated autoantigens in the monogenic autoimmune syndrome APS1 by PhIP-Seq

Open the record for dataset details and reuse information.

publicMay 2020View details →
zenodo28/100

Autoimmunity in monogenic combined immune deficiencies with associated or syndromic features

<p><strong><em>Abstract</em></strong></p> <p><strong><em>Background</em></strong><strong>:</strong> Combined immune deficiencies (CIDs) with associated or syndromic features are a highly heterogeneous subgroup of inherited immune disorders. These patients represent specific clinical complications with an increased risk of autoimmune conditions.</p> <p><strong><em>Methods</em></strong><strong>:</strong> We analyzed data of monogenic patients with syndromic CIDs adopted from the Iranian inborn errors of immunity registry up to January 2022. A comprehensive comparison in terms of demographic, clinical, and immunological features was performed between patients with and without autoimmunity and also among four mutation groups with the most registered cases including ataxia-telangiectasia mutated (<em>ATM</em>), <em>STAT3 AD (LOF)</em> , <em>DNMT3B/ ZBTB24, </em>and <em>WAS</em> mutations.</p> <p><strong><em>Results</em></strong><strong>:</strong> A total of 137 patients with&nbsp;monogenic syndromic CIDs were included. Most commonly mutated genes were the <em>ATM</em> [80 (58.4%)] and <em>STAT3</em>&nbsp;[19 (13.9%)], followed by <em>DNMT3B</em> [11 (8%)], and <em>WAS</em> [11 (8%)]. More than 18% of all patients with syndromic CIDs, including most <em>DNMT3B / ZBTB24</em> mutations &nbsp;patients, were clinically diagnosed with antibody deficiencies before genetic evaluation. Patients with <em>ATM</em> and <em>WAS </em>mutations had the latest age of onset and the lowest age of diagnosis, respectively. Autoimmune disorders were diagnosed in 24 patients at a median age of 3.5 (2.6-6.0) years, 70.6% of which were diagnosed prior to the diagnosis of immunodeficiency. Lymphoproliferation, particularly hepatosplenomegaly, was significantly higher in patients with autoimmunity (<em>p=0.004</em>). Syndromic CID patients with autoimmunity had significantly lower IgG levels. Hematologic autoimmunity mainly immune thrombocytopenic purpura was the most frequent autoimmunity among major groups of <em>ATM</em>, <em>STAT3,</em> <em>DNMT3B/ ZBTB24,</em> and <em>WAS</em> mutations, however <em>ATM-</em>mutated patients present more diversified involved organs including rheumatologic, gastrointestinal and dermatologic autoimmunity.</p> <p><strong><em>Conclusion</em></strong><strong>:</strong> About 18% of patients with monogenic syndromic CIDs developed autoimmunity, mainly in the form of hematological immune diseases. Autoimmunity could be an early-onset involvement with a potential diagnostic impact on suspicious cases of syndromic CIDs.</p>

opencc-by-4.0Nov 2022View details →
ClinicalTrials.gov28/100

Real-life Evaluation of WEGOVY (Semaglutide) Treatment in Adults With Monogenic Obesity (ObGeSema)

ClinicalTrials.gov study NCT06380426. IPD Sharing: YES. Countries: 1. Publications: 0.

controlledIPD-YESFeb 2026View details →
ClinicalTrials.gov28/100

Study to Evaluate the Efficacy, Safety and Tolerability of MAS825 in Patients With Monogenic IL-18 Driven Autoinflammatory Diseases, Including NLRC4-GOF, XIAP Deficiency, or CDC42 Mutations

ClinicalTrials.gov study NCT04641442. IPD Sharing: YES. Countries: 7. Publications: 0.

controlledIPD-YESFeb 2026View details →
geo24/100

Direct microglia replacement reveals pathologic and therapeutic contributions of brain macrophages to a monogenic neurological disease [RNA-seq]

GEO Series GSE288504. Mus musculus. 15 samples. Type: Expression profiling by high throughput sequencing.

openGEO-OpenApr 2025View details →
ClinicalTrials.gov24/100

Genetic Causes of Discrepant Clinic in Monogenic Twins

ClinicalTrials.gov study NCT04046796. IPD Sharing: NO. Countries: 1. Publications: 0.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov24/100

Development of In Vitro Functional Assays From Primary Cells of Patients With Monogenic Diseases

ClinicalTrials.gov study NCT03763864. IPD Sharing: Not stated. Countries: 1. Publications: 0.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov24/100

Interferon Pathway Activation in Monogenic and Nonmonogenic Forms of Pediatric SLE

ClinicalTrials.gov study NCT06586710. IPD Sharing: NO. Countries: 1. Publications: 0.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov24/100

Interventional Study of Implantation of hESC-derived RPE in Patients With RP Due to Monogenic Mutation

ClinicalTrials.gov study NCT03963154. IPD Sharing: NO. Countries: 1. Publications: 0.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov24/100

Genetic Identification of Monogenic Disorders in Early-onset Stroke Using Targeted Next Generation Sequencing Panel

ClinicalTrials.gov study NCT04485598. IPD Sharing: Not stated. Countries: 1. Publications: 0.

restrictedIPD-UNDECIDEDFeb 2026View details →

ScienceDex guides

Understand access before you commit

These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.

Compare curated datasets

Allen Brain Atlas

Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.

allen-brain-atlas
neuroscienceopenDocumentation, web resources, and API references are available online.
Last verified 2026-04-30Open record

Annotated Behaviour and Observability Dataset (ABODe)

ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.

abode-home-cage
behavioral-neuroscienceopenThe DataShare record exposes download links for annotations, documentation, license text, and the zipped per-snippet data directory.
Last verified 2026-04-30Open record

DANDI Archive for NWB datasets

DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.

dandi-nwb
electrophysiologyopenPublished Dandiset metadata and archive endpoints are available through the production DANDI API.
Last verified 2026-04-30Open record

International Brain Laboratory public data

The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.

ibl
behavioral-neuroscienceopenPublic sessions can be searched and loaded from the IBL public data server through ONE.
Last verified 2026-04-29Open record

OpenNeuro

OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.

openneuro
neuroscienceopenPublished datasets are available on demand over the internet.
Last verified 2026-04-29Open record