Retinoblastoma Survivors Follow-up Study

DCEG researchers are studying survivors of retinoblastoma (Rb), a cancer that forms in the tissues of the retina (the light-sensitive layers of nerve tissue at the back of the eye). Rb usually occurs in children younger than five years and may be hereditary or nonhereditary (sporadic). Sporadic Rb affects just one eye whereas hereditary typically Rb affects both eyes. For the past 30 years, investigators in DCEG have been studying Rb survivors to determine the long-term health effects for these individuals who were treated in childhood. Fortunately, treatment has a very high success rate and many survivors enjoy long productive lives, although some survivors may experience increased risks for developing new cancers.