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CCDI Data Catalogunknown

Multiple Myeloma Research Foundation (MMRF)

The Multiple Myeloma Research Foundation (MMRF) mission is to find a cure for multiple myeloma by pursuing innovation that accelerates the development of next-generation treatments to extend the lives of patients. The MMRF is focused on using precision medicine to help patients get the right treatment based on their specific molecular information. The MMRF gathers, generates and analyzes vital information about multiple myeloma, patients, and treatments, shares the data with researchers and institutions, and evaluates new treatments through a collaborative research consortium. These efforts are helping to accelerate discovery and produce better, more targeted treatments for people living with multiple myeloma. The Relating Clinical Outcomes in Multiple Myeloma to Personal Assessment of Genetic Profile study is the MMRF's landmark personalized medicine initiative. CoMMpass is a longitudinal observation study of around 1000 newly diagnosed myeloma patients receiving various standard approved treatments.

ShareScore

16/100

Overall dataset sharing score

Score breakdown

These five areas show where the dataset supports — or may limit — practical reuse.

Stewardship
4
Harmonization
8
Access
0
Reuse readiness
0
Engagement
4

Dataset details

Repository
CCDI Data Catalog
Published
Not reported
License
Not reported
DOI
10.37765/ajmc.2021.88821
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Scored with release 0.9.0

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