Skip to main content
CCDI Data Catalogunknown

Italian Neuroblastoma Registry

The Italian Neuroblastoma Registry was activated in 1979 and includes all subjects with any peripheral neuroblastic tumor (PNT, ie, neuroblastoma, ganglioneuroblastoma, and the benign ganglioneuroma), diagnosed at the institutions participating in the Italian Neuroblastoma Group (ING).11 In the last decade more than 90% of the expected Italian PNTs have been recruited through this network. Children age 0 to 14 years diagnosed with malignant PNT between January 1979 and December 2005 were eligible. Older children were excluded because 14 years of age was the limit for admission to most Italian pediatric institutions.

ShareScore

12/100

Overall dataset sharing score

Score breakdown

These five areas show where the dataset supports — or may limit — practical reuse.

Stewardship
4
Harmonization
4
Access
0
Reuse readiness
0
Engagement
4