zenodoopen
First two years of reimbursed enzyme replacement therapy in the treatment of Fabry's disease in Poland
<p>There is dataset of collected information from seven largest academic centers in Katowice, Kraków, Wrocław, Poznań, Gdańsk, Warszawa, and Łódź in Poland. The questionnaire included the following data: number of patients treated, number of patients qualified for ERT, and patient characteristics. </p> <p> </p>
ShareScore
32/100
Overall dataset sharing score
Score breakdown
These five areas show where the dataset supports — or may limit — practical reuse.
- Stewardship
- 8
- Harmonization
- 4
- Access
- 12
- Reuse readiness
- 8
- Engagement
- 0
Topics
Dataset details
- Repository
- zenodo
- Published
- July 19, 2021
- License
- other-open
- DOI
- 10.5281/zenodo.5115589
Scored with release 0.9.0
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