zenodoopen
First two years of reimbursed enzyme replacement therapy in the treatment of Fabry's disease in Poland
<p>There is dataset of collected information from seven largest academic centers in Katowice, Kraków, Wrocław, Poznań, Gdańsk, Warszawa, and Łódź in Poland. The questionnaire included the following data: number of patients treated, number of patients qualified for ERT, and patient characteristics. </p> <p> </p>
ShareScore
32/100
Overall dataset sharing score
Score breakdown
These five areas show where the dataset supports — or may limit — practical reuse.
- Stewardship
- 8
- Harmonization
- 4
- Access
- 12
- Reuse readiness
- 8
- Engagement
- 0