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Dataset from: Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications

<p>This record includes the data associated with the study &quot;Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications&quot;. In this study, we&nbsp;evaluated the extent and quality of patient involvement reporting in examples of current practice in health research. We used a targeted search strategy to&nbsp;identify publications that report on patient involvement using&nbsp;the following three samples:</p> <ul> <li>Publications published in 2019 in&nbsp;<em>The BMJ,&nbsp;</em>which requires&nbsp;reporting on patient involvement in research articles</li> <li>Publications listed in the PCORI database.&nbsp;We filtered for topic: example of engagement in health research; stakeholder involvement: patients; year: 2019</li> <li>Publications citing the <a href="https://www.bmj.com/content/358/bmj.j3453">GRIPP2 reporting checklist</a> or a <a href="https://onlinelibrary.wiley.com/doi/full/10.1111/j.1369-7625.2010.00607.x">critical appraisal guideline to assess the quality and impact of&nbsp;user involvement in research</a></li> </ul> <p>After applying our inclusion and exclusion criteria, the final sample consisted of 87 publications that reported on patient involvement.&nbsp;Included publications were coded according to three coding schemes.</p> <p>This deposit includes the following:</p> <ul> <li>Overview of publications that did not meet our inclusion criteria across all 3 samples&nbsp;(BMJ, PCORI, and citation)</li> <li>Overview of publications and additional documents (if applicable) that met our inclusion criteria across all 3 samples (BMJ, PCORI, and citation)</li> <li>Coded segments and analysis for the coding scheme&nbsp;&quot;Phase of involvement&quot; across all 3 samples&nbsp;(BMJ, PCORI, and citation). This includes the count of&nbsp;each sub-code&nbsp;across publications and the final results table.&nbsp;</li> <li>Coded segments and analysis&nbsp;for the coding scheme&nbsp;&quot;GRIPP2-SF reporting guidelines according to Staniszewska et al., 2017&quot; across all 3 samples&nbsp;(BMJ, PCORI, and citation).&nbsp;This includes the count of&nbsp;each sub-code&nbsp;across publications and the final results table.</li> <li>Coded segments and analysis for the coding scheme&nbsp;&quot;Critical appraisal tool according to Wright et al., (2010)&quot; across all 3 samples (BMJ, PCORI, and citation).&nbsp;This includes the count of&nbsp;each sub-code&nbsp;across publications and the final results table.</li> </ul>

ShareScore

44/100

Overall dataset sharing score

Score breakdown

These five areas show where the dataset supports — or may limit — practical reuse.

Stewardship
8
Harmonization
8
Access
16
Reuse readiness
8
Engagement
4

Topics