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Validation of Polish-language questionnaires for assessing the quality of life of patients with Primary Ciliary Dyskinesia (PCD-QOL)

<p>In recent years, questionnaires were published in English to assess the quality of life of patients with PCD for adults, adolescents aged 13-17, and children aged 6-12 and their caregivers. The aim of this study was to prepare a Polish version of the questionnaires and validate them in specific age groups with the participation of Polish patients with PCD.</p>

ShareScore

36/100

Overall dataset sharing score

Score breakdown

These five areas show where the dataset supports — or may limit — practical reuse.

Stewardship
8
Harmonization
4
Access
16
Reuse readiness
8
Engagement
0

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