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Inter-rating reliability of the Swiss Easy-Read Integrated Palliative Care Outcome Scale for People with Dementia

<p><strong># Brief project overview</strong><br> This is Data coming out of the IPOS-Dem project, a Stepped-wedge Cluster Randomised Trial (SW-CRT). Please make shure to check out the SW-CRT protocol for more details at <a href="http://www.doi.org/10.1111/jan.14953">https://www.doi.org/10.1111/jan.14953</a>. A detailed description of the reliability study published based on this data is availiable at <a href="http://www.doi.org/10.1371/journal.pone.0286557">https://www.doi.org/10.1371/journal.pone.0286557</a>. &nbsp;</p> <p>We are currently working on our main study (SW-CRT) analysis. While we remain dedicated to open science, our priority is to ensure the utmost integrity of our ongoing research.<br> I am pleased to inform you that we anticipate the final trial results to be published by Fall-Winter of 2023. Upon completion, our anonymized full dataset will be made accessible at <a href="https://doi.org/10.5281/zenodo.4008427">https://doi.org/10.5281/zenodo.4008427</a>. Interested parties seeking early access are encouraged to reach out to the first author directly. Furthermore, we are committed to enhancing the transparency and reproducibility of our research, and as such, we will provide the code for the full analysis at <a href="https://doi.org/10.5281/zenodo.4008429">https://doi.org/10.5281/zenodo.4008429</a>.</p> <p><strong># Contributors</strong><br> Frank Spichiger, Andrea Koppitz, Thomas Volken, Andr&eacute; Meichtry</p> <p><strong>## Repository overview</strong></p> <p>|-- readme.md<br> |-- documentation<br> &nbsp;&nbsp; &nbsp;|--readme.md<br> &nbsp;&nbsp; &nbsp;|--IPOS-Dem-Reliability_data-dictionary.html<br> &nbsp;&nbsp; &nbsp;|--IPOS-Dem-Reliability_sociodemographics_data-dictionary.html</p> <p>|-- data<br> &nbsp;&nbsp;&nbsp; &nbsp;|-- readme.md<br> &nbsp;&nbsp; &nbsp;|--data.csv<br> &nbsp;&nbsp; &nbsp;|--sd_overall.csv<br> |-- analysis<br> &nbsp;&nbsp; &nbsp;|--readme.md<br> &nbsp;&nbsp; &nbsp;|--scripts<br> &nbsp;&nbsp; &nbsp;&nbsp;&nbsp; &nbsp;|--MainAnalysis.rmd<br> &nbsp;&nbsp; &nbsp;&nbsp;&nbsp; &nbsp;|--S1_ClusterwiseSDs.rmd<br> &nbsp;&nbsp; &nbsp;&nbsp;&nbsp; &nbsp;|--S2_Item_Characteristics.rmd</p> <p><br> <strong># Applicable instructions</strong><br> The R markdown files were generated using R 4.2.2 in RStudio 2023.06.0 for MacOS X you can run them using free software but will need to install R, Rstudio and the packages introduced at the beginning of the files we used.</p> <p><strong># Additional resources</strong><br> - Main study protocol: <a href="https://www.doi.org/10.1111/jan.14953">https://www.doi.org/10.1111/jan.14953</a><br> - IPOS-Dem translation and adaption: <a href="https://www.doi.org/10.1186/s41687-022-00420-7">https://www.doi.org/10.1186/s41687-022-00420-7</a><br> - Pos-Pal consortium with more information on the measure: <a href="https://www.pos-pal.org">https://www.pos-pal.org</a></p>

ShareScore

36/100

Overall dataset sharing score

Score breakdown

These five areas show where the dataset supports — or may limit — practical reuse.

Stewardship
8
Harmonization
4
Access
16
Reuse readiness
8
Engagement
0

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