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ClinicalTrials.govcontrolled

A Prospective Study to Observe & Describe Clinical Outcomes of Alglucosidase Alfa Treatment in Patients ≤6 Months of Age With Infantile-onset Pompe Disease (IOPD)

ClinicalTrials.gov study NCT04848779. IPD Sharing: YES. Countries: 9. Publications: 0.

ShareScore

28/100

Overall dataset sharing score

Score breakdown

These five areas show where the dataset supports — or may limit — practical reuse.

Stewardship
16
Harmonization
8
Access
0
Reuse readiness
0
Engagement
4

Topics

Dataset details

Repository
ClinicalTrials.gov
Published
February 11, 2026
License
IPD-YES
DOI
clinicaltrials.gov/NCT04848779

Scored with release 0.9.0

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