Find research datasets worth reusing
Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
518
datasets available to search
ShareScore release 0.9.0
Dataset results
518 results for “Hereditary”
Prospective Analysis of "Genotype-phenotype" Correlations Observed in a Large Cohort of Patients With Hereditary Retinal Dystrophies - GEPHIRD
ClinicalTrials.gov study NCT03662386. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Prospective Descriptive Study of the Angiogenic T Cell Population in Subjects With Hereditary Hemorrhagic Telangiectasia (HHT)
ClinicalTrials.gov study NCT03572556. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Evaluation of Obstetrical and Neonatal Complications in Hereditary Haemorrhagic Telangiectasia (HHT)
ClinicalTrials.gov study NCT03691142. IPD Sharing: NO. Countries: 1. Publications: 0.
Frequency and Clinical Phenotype of BAP1 Hereditary Predisposition Syndrome
ClinicalTrials.gov study NCT04792463. IPD Sharing: NO. Countries: 1. Publications: 0.
Monitoring of Early Disease Progression in Hereditary Transthyretin Amyloidosis
ClinicalTrials.gov study NCT03431896. IPD Sharing: Not stated. Countries: 1. Publications: 0.
A Study of Navenibart in Participants With Hereditary Angioedema
ClinicalTrials.gov study NCT06842823. IPD Sharing: NO. Countries: 21. Publications: 0.
A Study to Evaluate BBI-001 in Hereditary Haemochromatosis (HH) Patients and Iron Deficient Volunteers
ClinicalTrials.gov study NCT05238207. IPD Sharing: NO. Countries: 1. Publications: 0.
Probenecid (PB) to Treat Hereditary Nephrogenic Diabetes Insipidus (NDI), ADPKD Treated With Tolvaptan, and Severely Polyuric Patients With Previous Lithium Administration
ClinicalTrials.gov study NCT05190744. IPD Sharing: NO. Countries: 1. Publications: 0.
GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM)
ClinicalTrials.gov study NCT01784679. IPD Sharing: Not stated. Countries: 5. Publications: 0.
Hereditary AngioEdema, Neurobiology and Psychopathology
ClinicalTrials.gov study NCT02159430. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Educational Video Versus In-person Genetic Counseling for Hereditary Cancer
ClinicalTrials.gov study NCT05805982. IPD Sharing: NO. Countries: 1. Publications: 0.
Connecting Black Families in Houston, Texas to Hereditary Cancer Genetic Counseling, Genetic Testing, and Cascade Testing by Using a Simple Genetic Risk Screening Tool and Telegenetics
ClinicalTrials.gov study NCT05694559. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Identifying Gene Mutations in Patients With Melanoma and in Families With a History of Hereditary Melanoma
ClinicalTrials.gov study NCT00450593. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Study of Oral Deucrictibant Soft Capsule for On-Demand Treatment of Angioedema Attacks in Adolescents and Adults With Hereditary Angioedema
ClinicalTrials.gov study NCT06343779. IPD Sharing: Not stated. Countries: 29. Publications: 0.
Estimation of Myocardial Iron Overload by 3 Tesla MRI in HFE Hereditary Haemochromatosis
ClinicalTrials.gov study NCT02099214. IPD Sharing: Not stated. Countries: 1. Publications: 0.
A European Post-Authorisation Observational Study Of Patients With Hereditary Angioedema
ClinicalTrials.gov study NCT01541423. IPD Sharing: Not stated. Countries: 6. Publications: 0.
Identification and Characterization of Genetic Variants in Hereditary Angioedema
ClinicalTrials.gov study NCT05833620. IPD Sharing: NO. Countries: 1. Publications: 0.
Safety and Pharmacokinetics of Sialic Acid Tables in Patients With Hereditary Inclusion Body Myopathy (HIBM)
ClinicalTrials.gov study NCT01359319. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Efficacy and Safety of GNR-038 vs Berinert® in Patients With Hereditary Angioedema
ClinicalTrials.gov study NCT04898309. IPD Sharing: NO. Countries: 1. Publications: 0.
SPT Screening in Irradiated Hereditary Retinoblastoma Survivors
ClinicalTrials.gov study NCT02329002. IPD Sharing: Not stated. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.