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76
datasets available to search
ShareScore release 0.9.0
Dataset results
76 results for “Informal caregiver”
Swiss Cohort of Health Professionals and Informal Caregivers
ClinicalTrials.gov study NCT05571488. IPD Sharing: YES. Countries: 1. Publications: 5.
Effectiveness of a Care Management System to Reduce Unmet Needs of Informal Caregivers of People With Dementia
ClinicalTrials.gov study NCT04037501. IPD Sharing: NO. Countries: 1. Publications: 1.
An In-home Respite Care Program to Support Informal Caregivers of People With Dementia
ClinicalTrials.gov study NCT02630446. IPD Sharing: Not stated. Countries: 1. Publications: 3.
Feasibility of Internet Based Support (Carer eSupport) for Informal Caregivers of Patients With Head and Neck Cancer
ClinicalTrials.gov study NCT05028452. IPD Sharing: NO. Countries: 1. Publications: 1.
Multicenter Prospective Cohort of Informal Caregivers in Burgundy and Franche-Comté
ClinicalTrials.gov study NCT02626377. IPD Sharing: Not stated. Countries: 1. Publications: 3.
Self-management EdUcation and SuPport to Promote PsychOsocial Health Among StRoke Survivors and Informal Caregivers in a VirTual Stroke Community (SUPPORT)
ClinicalTrials.gov study NCT05487144. IPD Sharing: NO. Countries: 1. Publications: 1.
Web-based Patient Reported Outcome Measurement Information System (PROMIS ) to Explore Burden and Stress in Cancer Caregivers (BaSiC2)
ClinicalTrials.gov study NCT01981538. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Feasibility & Preliminary Impacts of an Online Psychoeducational Program (iSupport-Malaysia) for Informal Dementia Caregivers
ClinicalTrials.gov study NCT06883708. IPD Sharing: YES. Countries: 1. Publications: 1.
Internet-based Support for Informal Caregivers of Patients With Head and Neck Cancer - Carer eSupport
ClinicalTrials.gov study NCT06307418. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Talking Time: Telephone Support Groups for Informal Caregivers of People With Dementia
ClinicalTrials.gov study NCT02806583. IPD Sharing: NO. Countries: 1. Publications: 3.
A Telecare-based Intervention in Reducing Stress Level of Informal Caregivers of Community-dwelling Older Adults
ClinicalTrials.gov study NCT05636982. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Ensemble Programme an Early Intervention for Informal Caregivers of Psychiatric Patients
ClinicalTrials.gov study NCT04020497. IPD Sharing: NO. Countries: 1. Publications: 3.
Integrative Therapeutic Programme to Regulate Expressed Emotions Among Informal Caregivers of People With Dementia
ClinicalTrials.gov study NCT07305415. IPD Sharing: NO. Countries: 1. Publications: 27.
The power of informal cancer caregivers' writings
<p><strong>Abstract</strong></p> <p><strong>Background</strong>: Cancer is a disease that disrupts not only the patient’s life, but that of the entire family as well, from a care, organizational, and emotional perspective. Patients share their experience of illness frequently with their informal caregiver (IC), a partner, son/daughter, friend, volunteer, or any other person in the family or social network who offers to support them during their clinical journey. The purpose of this study was to investigate ICs’ still unknown cancer experiences through the stories of IC participants in a Literary Artistic Competition the IRCCS CRO of Aviano organized, and understand the themes that emerged from their texts and hence, the power of expressive writing.</p> <p><strong>Materials and Methods</strong>: A qualitative study was carried out on literary texts using Mishler’s three levels of narrative analysis: Thematic (to detect themes and sub-themes); structural (to support the thematic level) and performative (to understand the narratives’ meaning). In addition, the narratives were classified based on Kleinman and Frank’s models. A particular focus was placed on the narratives’ language to identify figures of speech, e.g., metaphors related to cancer.</p> <p><strong>Results</strong>: Seven main themes emerged from the 40 stories’ thematic analysis: Perceptions of the disease; biographical breakdown; relationships; transformation of the sick body; IC’s role; encounter with death, and strength of memory. The ICs’ stories also highlighted the strengths and weaknesses of the patient’s clinical pathway. ICs are a resource not only for the patient, who, thanks to them, is assured of continuous assistance, but also for the healthcare organization, above all because they serve a relational role as a “bridge” between patients and healthcare workers. ICs have important messages to offer to healthcare organizations. If involved adequately, they can provide a strategic strength in supporting patients and healthcare workers themselves. The in-depth analysis of the themes and sub-themes in this study led the authors to hypothesize that expressive writing benefit ICs with respect to the possibility of sharing their experiences with others and giving evidence of their role. Their stories are a testimony that can help those who face a similar experience.</p>
Enhancing Informal Caregiving to Support Diabetes Self-Management
ClinicalTrials.gov study NCT01684709. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
A+ Treatment/Feasibility of Adapted ESDM-informed Caregiver Coaching Delivered Remotely for Children With ASD (Autism Spectrum Disorder) and ADHD (Attention Deficit Hyperactivity Disorder)
ClinicalTrials.gov study NCT05417607. IPD Sharing: YES. Countries: 1. Publications: 0.
Assessing the Feasibility of a Prevention m-Health App Intervention for Informal Caregivers of Outpatients
ClinicalTrials.gov study NCT05030935. IPD Sharing: NO. Countries: 1. Publications: 0.
Experiences and Needs of Patients, Their Informal Caregiver and Healthcare Professionals Regarding LARS
ClinicalTrials.gov study NCT04896879. IPD Sharing: Not stated. Countries: 0. Publications: 1.
Viamigo for People With Dementia and Their Informal Caregivers
ClinicalTrials.gov study NCT05648864. IPD Sharing: YES. Countries: 1. Publications: 0.
Benefits of Strength Training in Informal Caregivers of Patients With Alzheimer's Disease
ClinicalTrials.gov study NCT07388186. IPD Sharing: NO. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.