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207 results for “Qualitative studies”
Older Adults' Experiences of Oral Rehabilitation - a Qualitative Interview Study
ClinicalTrials.gov study NCT06783426. IPD Sharing: UNDECIDED. Countries: 1. Publications: 6.
Qualitative Study for Pain Measurement Using Innovative Health Technology
ClinicalTrials.gov study NCT03727373. IPD Sharing: NO. Countries: 1. Publications: 2.
Barriers to home exercise for patients with Parkinson’s disease – a qualitative study
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Qualitative survey instruments for a study on equity from a large-scale private-sector healthcare intervention in Ghana and Kenya: the African Health Markets for Equity (AHME) study
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Supplementary material 1 from: Biniari K, Daskalakis I, Bouza D, Stavrakaki M (2019) Comparative study of qualitative and quantitative characters of grape cultivar 'Mavrodafni' (Vitis vinifera L.) and 'Renio' grown in different regions of the Protected Designation of Origin Mavrodafni Patras. Viticulture Data Journal 1: e37852. https://doi.org/10.3897/vdj.1.e37852
<p>This is the raw dataset of the measurements performed on the samples collected from the two varieties from the different locations. There are three repetitions per measurement and no statistical analysis has been performed.</p>
MiRoR1 - P2 - Key stakeholders' perspectives and experiences with defining, identifying and displaying gaps in health research: a qualitative study protocol
<p>Supporting data items for protocol on key stakeholders’ perspectives and experiences with defining, identifying and displaying gaps in health research: a qualitative study protocol</p>
Data from: Understanding families' experiences following a diagnosis of non-syndromic Craniosynostosis: A qualitative study
<p>Objectives: Craniosynostosis, a congenital anomaly producing an abnormal cranial morphology, is typically diagnosed and surgically corrected within the first year of life. Given the young age of this patient population at the time of diagnosis, it is reasonable to expect this experience to be a very significant and stressful ordeal for patient families. Despite this, there is little research exploring the impact that craniosynostosis has on families, especially in the early stages. In this study, the authors aimed to qualitatively examine the psychosocial experience of families with a child diagnosed with craniosynostosis.</p> <p>Design: Qualitative study. Setting: Tertiary care paediatric health centre.</p> <p>Participants: Parents of children newly diagnosed with single-suture, non-syndromic craniosynostosis Intervention: Semistructured interviews regarding parental experience with the initial diagnosis, their decision on corrective surgery for their child, the operative experience, the impact of craniosynostosis on the family and the challenges they encountered throughout their journey.</p> <p>Primary and Secondary Outcome Measures: Interpretive phenomenological analysis, a type of qualitative analysis that provides an in-depth account of participant's experiences and their meanings, was used to analyze the interview data.</p> <p>Results: Over a four-year period, twelve families meeting eligibility criteria completed the study. Three main themes (6 subthemes) emerged from the pre-operative interviews: frustration with diagnostic delays (parental intuition and advocacy, hope for improved awareness), understanding what to expect (healthcare supports, interest in connecting with other families), and justifying the need for corrective surgery (influence of the surgeon, struggle with cosmetic indications). Two main themes (4 subthemes) were drawn from the post-operative interviews: pushing through fear (the role of healthcare professionals, transition home) and relief (reduction in parental anxiety, cosmetic improvements).</p> <p>Conclusions: Overall, the diagnosis of craniosynostosis has a profound impact on families, leading them to face many struggles throughout their journey. A better understanding of these experiences will help to inform future practice, with a hope to improve this experience for other families moving forward.</p>
Consolidated criteria for reporting qualitative studies (COREQ): 32-item checklist for "The experience of adherence among hemodialysis patients undergoing therapeutic regimen: a qualitative study"
<p>Reporting guidelines Consolidated criteria for reporting qualitative studies (COREQ): 32-item checklist for "The experience of adherence among hemodialysis patients undergoing therapeutic regimen: a qualitative study"</p>
Clinicians' opinions on recommending aspirin to prevent colorectal cancer to Australians aged 50 to 70 years: A qualitative study
<span>Objectives</span> <p>Australian guidelines recommend all 50 to 70-year-olds without existing contraindications consider taking low-dose aspirin (100 mg – 300 mg per day) for at least 2.5 years to reduce their risk of developing colorectal cancer.</p> <p>We aimed to explore clinicians', practices, knowledge, opinions, and barriers and facilitators to the implementation of these new guidelines.</p> <span>Methods</span> <p>Semi-structured interviews were conducted with clinicians to whom the new guidelines may be applicable (familial cancer clinic staff (geneticists, oncologists and genetic counsellors), gastroenterologists, pharmacists, and general practitioners (GPs)).</p> <p>The Consolidated Framework for Implementation Research (CFIR) underpinned the development of the interview guide. Coding was inductive and themes were developed through consensus between the authors.</p> <p>Emerging themes were mapped onto the CFIR domains: characteristics of the intervention, outer setting, inner setting, individual characteristics and process.</p> <span>Results </span> <p>Sixty-four interviews were completed between March and October 2019. Aspirin was viewed as a safe and cheap option for cancer prevention. GPs were considered by all clinicians as the most important health professionals for implementation of the guidelines. Cancer Council Australia, as a trusted organisation, was an important facilitator to guideline adoption. Uncertainty about aspirin dosage and perceived strength of the evidence, the precise wording of the recommendation, previous changes to guidelines about aspirin, and conflicting findings from trials in older populations were barriers to implementation.</p> <span>Conclusion</span> <p>Widespread adoption of these new guidelines could be an important strategy to reduce the incidence of bowel cancer, but this will require more active implementation strategies focused on primary care and the wider community.</p>
Data from: How do patients and health workers interact around malaria rapid diagnostic testing, and how are the tests experienced by patients in practice? A qualitative study in western Uganda
Background: Successful scale-up in the use of malaria rapid diagnostic tests (RDTs) requires that patients accept testing and treatment based on RDT results and that healthcare providers treat according to test results. Patient-provider communication is a key component of quality care, and leads to improved patient satisfaction, higher adherence to treatment and better health outcomes. Voiced or perceived patient expectations are also known to influence treatment decision-making among healthcare providers. While there has been a growth in literature on provider practices around rapid testing for malaria, there has been little analysis of inter-personal communication around the testing process. We investigated how healthcare providers and patients interact and engage throughout the diagnostic and treatment process, and how the testing service is experienced by patients in practice. Methods: This research was conducted alongside a larger study which explored determinants of provider treatment decision-making following negative RDT results in a rural district (Kibaale) in mid-western Uganda, ten months after RDT introduction. Fifty-five patients presenting with fever were observed during routine outpatient visits at 12 low-level public health facilities. Observation captured communication practices relating to test purpose, results, diagnosis and treatment. All observed patients or caregivers were immediately followed up with in-depth interview. Analysis followed the 'framework' approach. A summative approach was also used to analyse observation data. Results: Providers failed to consistently communicate the reasons for carrying out the test, and particularly to RDT-negative patients, a diagnostic outcome or the meaning of test results, also leading to confusion over what the test can detect. Patients appeared to value testing, but were frustrated by the lack of communication on outcomes. RDT-negative patients were dissatisfied by the absence of information on an alternative diagnosis and expressed uncertainty around adequacy of proposed treatment. Conclusions: Poor provider communication practices around the testing process, as well as limited inter-personal exchange between providers and patients, impacted on patients' perceptions of their proposed treatment. Patients have a right to health information and may be more likely to accept and adhere to treatment when they understand their diagnosis and treatment rationale in relation to their perceived health needs and visit expectations.
Data from: The interactions of ethical notions and moral values of immediate stakeholders of immunisation services in two Indian states: a qualitative study
OBJECTIVES: This study examines the existing norms regarding immunization within the communities and the ethical notions that govern the action of different health professionals and their collective synergistic or conflicting effect on governance of the programme. Design: We used descriptive and analytical qualitative methods as it suited the research question. SETTING: The data was collected from areas under 16 Primary Health Centres in Kerala and Tamil Nadu identified through three-step sampling process. PARTICIPANTS: This involved in-depth interview with stakeholders including providers, beneficiaries and other stakeholders, focus group discussions with mother of under five children and participant and non-participant observations of vaccination related activities. RESULTS: Unlike most other ethical analysis that looks at ethics of vaccination policies, the interactions of normative principles and notions are analysed in this article. Moral obligation of parents towards their children, beneficence of health care providers and the utilitarian aspirations of the state are the key normative principles involved. Our analysis points to the interplay of both synergy and conflict in ethical notions and moral values in the context of immunisation services. Paternalistic interventions like special immunisation campaigns against polio and Japanese encephalitis are a case in point: they generate conflict at the normative level and create mistrust. CONCLUSIONS: Analysis of vaccination policies and programmes need to go beyond factors that assess monitory benefits or herd immunity. Understanding the interactions normative notions that shape the social organisation of the providers and the users of vaccination is important in creating a sustainable environment for the programme.
Improving sustainability within the United Kingdom's National Health Service – a qualitative pilot study about waste segregation
<p>Powerpoint slides used during focus group identifing incorrect waste segregation within the United Kingdoms's NHS</p>
Attitudes toward artificial intelligence and robots in healthcare in the general population: a qualitative study
<p>It is an extract of the transcripts of in-depth interviews used for the preparation of the paper titled "The perception of facilitators and barriers to the use of e-health solutions in Poland: a qualitative study"</p> <p>This research was funded in whole by the National Centre of Science, Poland within the project titled "Determinanty akceptacji i gotowości wykorzystania aplikacji e-zdrowia i technologii Zdrowia 4.0 w polskim społeczeństwie" (Grant No 2021/43/B/NZ7/02140). </p> <p>For the purpose of Open Access, the author has applied a CC-BY public copyright license to any Author Accepted Manuscript (AAM) version arising from this submission.</p>
Critical appraisal of qualitative studies of Muslim females' perceptions of physical activity barriers and facilitators
<p>Excel file of 56 studies that investigated Muslim women's perceptions of physical activity barriers and facilitators in westernized, high-income countries. Characteristics of studies as well as application of Consolidated criteria for reporting qualitative research (COREQ) checklist across studies and 26 COREQ items.</p>
Supplementary Material for the paper "Assessing the Understanding of Expressions: A Qualitative Study of Notional-Machine-Based Exam Questions"
<p>Supplementary Material for the paper "Assessing the Understanding of Expressions: A Qualitative Study of Notional-Machine-Based Exam Questions":</p> <ul> <li>exam_questions.pdf: Complete statement of the 12 exam questions.</li> <li>mistakes.xlsx: Excel sheet with the full comprehensive list detailing all the mistakes and codes that resulted from our analysis.</li> </ul> <p> </p> <p> </p>
Supplementary files for article "Health and social care professions students' health literacy knowledge: a qualitative exploratory study"
<p>Supplementary file A: Complete list of student-reported definition of health literacy</p> <p>Supplementary file B: Complete list of student-reported signs which suggest inadequate health literacy</p> <p>Supplementary file C: Complete list of student-reported potential consequences of inadequate health literacy</p> <p>Supplementary file D: Complete list of student-reported actions that a health or social care professional can take to help a patient with inadequate health literacy</p>
Burden and resources in caregivers of people with multiple sclerosis: a qualitative study
<p><strong><em>Background: </em></strong><em>Caregivers of people with Multiple Sclerosis are required to provide ongoing assistance especially during the advanced stages of the disease. They have to manage interventions and assume responsibilities which significantly impact both their personal quality </em>of life and family’s dynamics. </p> <p><strong><em>Objective: </em></strong><em>A qualitative phenomenological study was carried out to understand the experience of burden in caregivers and their resources to manage it. The study also explores how healthcare services involved in the Multiple Sclerosis Clinical Pathway respond to the needs of well-being of patients and family members.</em></p> <p><strong><em>Methods: </em></strong><em>17 caregivers were involved in focus groups and in semi-structured individual interviews.</em></p> <p><strong><em>Results: </em></strong><em>Fatigue is experienced by all respondents and it starts when physical disabilities increase or when people become aware of them. Many caregivers declare that they refer to intrinsic (love towards their relatives, patience and dedication) or extrinsic (family members, hobbies) resources to cope with the burden of assistance. Patient associations and the Multiple Sclerosis Clinical Pathway play a significant role in supporting caregivers. </em></p> <p><strong><em>Conclusions:</em></strong></p> <p><em>Fatigue, loneliness, and isolation are experienced by caregivers and strongly affect their quality of life and health status. The study highlights caregivers’ need to reconcile working times with care times, to give more space to self-care and to have moments to share their experiences with someone else. These needs should be at the core of health policies in order to avoid physical and emotional breakdowns which could lead to the rupture of the relational balance on which home care is based. </em></p>
A Qualitative Study to Assess the Content Validity of the Prescription Opioid Misuse and Abuse Questionnaire
ClinicalTrials.gov study NCT02660606. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Qualitative Interview Study Regarding Dentists' Repair Behaviour
ClinicalTrials.gov study NCT03279874. IPD Sharing: NO. Countries: 1. Publications: 4.
Cognitive-Behavioral Therapy for Adults With ADHD: A Qualitative Study
ClinicalTrials.gov study NCT05037903. IPD Sharing: NO. Countries: 1. Publications: 1.
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Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
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DANDI Archive for NWB datasets
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International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.