Find research datasets worth reusing
Search datasets from major research repositories and use ShareScore to quickly assess how well each record supports discovery, access, and reuse.
42
datasets available to search
ShareScore release 0.9.0
Dataset results
42 results for “Patient-Reported Outcome Measures”
Development of a Patient-reported Outcome Measure for Chiari Malformation and Syringomyelia
ClinicalTrials.gov study NCT06011226. IPD Sharing: Not stated. Countries: 1. Publications: 0.
OGSA-PROMs-2023, a collection of musculoskeletal disorders' public open datasets of patient-reported outcome measures (PROMs)
<p>The datasets in this archive are three patient-reported outcome measure (PROM) musculoskeletal disorders' registry datasets, derived from the knee, hip and spine pathology registries developed and managed since 2018 at the IRCCS Ospedale Galeazzi--Sant'Ambrogio (OGSA) hospital, located in Milan (Italy, EU), one of the major orthopedics research hospitals within the European Union.</p> <p><br>The three datasets describe around 15 thousand surgical events, corresponding to more than 13 thousand unique patients whose health and quality of life has been monitored across a period of more than years, starting from the preoperatory stage, through a variety of general and pathology-specific PROM' questionnaires.</p> <p> </p> <p>Each record in the datasets represent a surgical event, and a single patient can be associated with multiple surgical events: the complete surgical history of a patient can be reconstructed by matching on the uid column. The datasets contain three main different types of data, collected at different times during the patient surgical and rehabilitation journey and through different acquisition modalities:</p> <ul> <li>Clinical and demographical data;</li> <li>Surgical event data;</li> <li>PROM data, including both individual PROM questionnaire items as well as calculated PROM scores.</li> </ul> <p>PROM data are collected at pre-operatory time as well as at different follow-ups, namely 3, 6, 12, 24, 60 months after surgery. </p> <p>The data have been pseudo-anonymized by removing potentially identifying fields, including all text fields (except for the operator name, which has been hashed using SHAKE-128).</p>
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.