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4,175 results for “Quality Life”
Validation of Polish-language questionnaires for assessing the quality of life of patients with Primary Ciliary Dyskinesia (PCD-QOL)
<p>In recent years, questionnaires were published in English to assess the quality of life of patients with PCD for adults, adolescents aged 13-17, and children aged 6-12 and their caregivers. The aim of this study was to prepare a Polish version of the questionnaires and validate them in specific age groups with the participation of Polish patients with PCD.</p>
Living Standards Capabilities, Health-Related Quality of Life and Life Satisfaction among Older Adults
<p>This study attempts to analyse the Structural Relationship between Living Standards Capabilities, Health-Related Quality of Life and Life Satisfaction among Older Adults</p>
Assessment of the Quality of Life and Resilience in Ventilated Patients with COVID-19: Findings One year After Hospital Discharge
<p>Assessment of the Quality of Life and Resilience in Ventilated Patients with COVID-19: Findings One year After Hospital Discharge</p> <p>This dataset was collected in a prospective cohort study to evaluate the quality of life and resilience of patients managed with invasive mechanical ventilation due to severe COVID-19, one year after hospital discharge.</p> <p><strong>Methodology</strong></p> <p><strong>Design </strong></p> <p>A prospective cohort study was conducted, and the present study received approval from the Ethics Committee of Universidad del Rosario (DVO005-1957- CV1534). Informed consent was obtained from each patient or their legal caregiver, which was given via telephone.</p> <p><strong>Patients/Population</strong></p> <p>Data were collected from patients who received MV support for respiratory failure secondary to critical illness due to COVID-19. The study included consecutively patients discharged alive from the Hospital Universitario Mayor Méderi located in the city of Bogota, Colombia from March 19, 2020, to April 30, 2021. Patients who passed away after discharge, those with whom telephone communication was not feasible, individuals with cognitive impairment preventing them from responding to the survey without obtaining information from a caregiver, and those who declined to participate in the study (as indicated by the patient and/or caregiver) were excluded from the final analysis.</p> <p><strong>Intervention/Measurement</strong></p> <p>Participants were administered a structured questionnaire that included three scales: PCFS (Post-COVID-19 functional Status Scale), EQ-5D-3L (EuroQol 5 dimensions 3 levels) (administered via telephone application), and CD-RISC (Connor-Davidson Resilience Scale). Permission for the non-commercial use of the EQ-5D-3L scale was obtained from the EuroQol Customer Portal (Registration No. 55265).</p> <p><strong>Statistical Analysis</strong></p> <p>The general characteristics of the population and the results of the PCFS, EQ-5D-3L, and CD-RISC were described. Continuous variables were presented as mean and standard deviation (SD) or median and interquartile range (IQR) depending on the data distribution. Categorical variables were described using absolute and relative frequencies.</p> <p>The PCFS was reported using a grading system ranging from Grade 0, indicating patients who were able to resume their daily activities without limitations, to Grade 4, representing severe functional limitations.</p> <p>The five dimensions of the EQ-5D-3L were considered as numerical variables and scored as follows: 1 for no alteration, 2 for moderate alteration, and 3 for severe alteration. The total score was computed by summing the scores from each dimension, ranging from 5 (indicating optimal quality of life) to 15 (indicating severely compromised quality of life). To assess the usefulness of the PCFS in measuring QoL, Pearson correlations were performed between the total score of the EQ-5D-3L and each individual dimension with the PCFS score.</p> <p>The CD-RISC and its 25 dimensions were evaluated as well. Each dimension was treated as a numerical variable and scored as follows: 0 for no alteration, 1 for mild alteration, 2 for moderate alteration, 3 for severe alteration, and 4 for critical alteration. The total CD-RISC score ranged from 0 (indicating no resilience) to 100 (indicating the best possible resilience). Furthermore, it was hypothesized that patients with higher resilience, as measured by the CD-RISC scale, would have better quality of life (QoL). Pearson correlations were examined between the PCFS score and the total CD-RISC score.</p>
Data analysis for "Wellbeing, loneliness, health-related quality of life and perception of technology of older adults in Slovenian senior homes"
<p>We present datasets data analysis conducted in R for the article"Wellbeing, loneliness, health-related quality of life and perception of technology of older adults in Slovenian senior homes".</p>
Data from: Novel methods to define invasive procedures at the end-of-life were developed to improve quality of end of life care research: A population-based cohort study in colorectal cancer
<p><strong>Background</strong></p> <p>Understanding the use of invasive procedures (IPs) at the end-of-life (EoL) is important to avoid under- and overtreatment, but epidemiologic analysis is hampered by limited methods to define treatment intent and EoL phase. This study applied novel methods to report IPs at the EoL using a colorectal cancer (CRC) case study.</p> <p><strong>Methods</strong></p> <p>An English population-based cohort of adult patients diagnosed between 2013 and 2015 was used with follow-up to 2018. Procedure intent (curative, non-curative, diagnostic) by cancer site and stage at diagnosis was classified by two surgeons independently. Joinpoint regression modelled weekly rates of IPs for 36 sub-cohorts of patients with incremental survival of 0-36 months. EoL phase was defined by a significant IP rate change before death. Zero-inflated Poisson regression explored associations between IP rates and clinical/sociodemographic variables.</p> <p><strong>Results</strong></p> <p>Of 87,731 patients included, 41,972 (48%) died. 9,492 procedures were classified by intent (interrater agreement 99.8%). Patients received 502,895 IPs (1.39 and 3.36 per person year for survivors and decedents). Joinpoint regression identified significant increases in IPs four weeks before death in those living 3-6 months, and eight weeks before death in those living 7–36 months from diagnosis. 7,908 (18.8%) patients underwent IPs at the EoL, with stoma formation the most common major procedure. Younger age, early-stage disease, men, lower comorbidity, those receiving chemotherapy and living longer from diagnosis were associated with IPs.</p> <p><strong>Conclusions</strong></p> <p>Methods to identify and classify IPs at the EoL were developed and tested within a CRC population. This approach can be now extended and validated to identify potential under- and overtreatment. </p>
The Association of Dry Eye Disease with Functional Visual Acuity and Quality of Life
<p>Background: Dry eye disease (DED) is a common chronic condition with increasing prevalence. Standard discriminative visual acuity is not reflective of real-world visual function as patients can achieve normal acuities by blinking. Methods: Participants recruited from a tertiary referral eye center were divided into 2 groups – severe DED (with significant, central staining) and comparison group with mild DED (absence of such staining). FVA in both groups were assessed using DryeyeKT mobile application and Impact of Vision Impairment (IVI) questionnaire to assess quality of life (QOL). Results: Among 78 participants (74.4% women), 30 (38.5%) had severe DED and 48 (61.5%) milder DED. In women, severe DED produced significantly worse FVA of 0.53 ± 0.20 vs. 0.73 ± 0.30 in comparison group (p = 0.0064). FVA decreased with increasing age, significant inverse correlation (r = -0.55). A poorer FVA =<0.6 was seen in older patients (68.2 years ± 7.68) vs. FVA > 0.6 in younger patients (58.9 years ± 10.7), p <0.05. When<strong> </strong>adjusting for age, FVA was still 0.107 lower in the severe DED group, p < 0.05. There was significant difficulty in performing specific daily activities in the severe DED group, after adjusting for age, gender and FVA. Conclusions: FVA is reduced in severe DED and older people. Severe DED significantly impacts certain QOL. However, no significant relationship was found between FVA and QOL. FVA is not the only reason for the compromise of health-related QOL in severe dry eye.</p>
Evolution of Endometriosis Lesions Followed by Ultrasound and Quality of Life of Patients: Factors That Influence Disease Progression in a Prospective Cohort
ClinicalTrials.gov study NCT07282990. IPD Sharing: YES. Countries: 1. Publications: 15.
Treatment of Diabetes and Depression in Hispanics and African Americans and Its Effect on A1c and Quality of Life.
ClinicalTrials.gov study NCT00624013. IPD Sharing: NO. Countries: 1. Publications: 1.
EFFECTS OF VARIABLE-PRIORITY DUAL-TASK TRAINING ON BALANCE, GAIT, AND QUALITY OF LIFE IN ELDERLY WOMEN IN CHINA
ClinicalTrials.gov study NCT07393516. IPD Sharing: UNDECIDED. Countries: 1. Publications: 4.
Clinical Improvement and in Quality of Life-Functional Dyspepsia-
ClinicalTrials.gov study NCT01802710. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Patient-Reported Erectile Recovery and Quality of Life Outcomes With Lyopreserved Placental Tissue Applied Directly Over Neurovascular Bundle During Nerve Sparing Radical Prostatectomy Versus Standard
ClinicalTrials.gov study NCT05366842. IPD Sharing: NO. Countries: 1. Publications: 4.
A Multicenter Prospective Study of Quality of Life in Adult Scoliosis
ClinicalTrials.gov study NCT00854828. IPD Sharing: UNDECIDED. Countries: 2. Publications: 2.
Otrivine: Quality of Life (QoL) Impact in a Real-World Setting
ClinicalTrials.gov study NCT05556148. IPD Sharing: YES. Countries: 1. Publications: 1.
Stroke Self-Management: Effect on Function and Stroke Specific Quality of Life
ClinicalTrials.gov study NCT01507688. IPD Sharing: YES. Countries: 1. Publications: 5.
Rotigotine Effect on All-day Functioning and Quality of Life in Subjects With Moderate to Severe Restless Legs Syndrome (RLS)
ClinicalTrials.gov study NCT01569464. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Improving Symptoms and Quality of Life in Chronic Heart Failure: Pilot Study
ClinicalTrials.gov study NCT01581008. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Probiotics and Health-related Quality of Life in Individuals With Seasonal Allergies
ClinicalTrials.gov study NCT02349711. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Safety and Quality of Life Study of Dexlansoprazole Modified Release Formulation to Treat Heartburn
ClinicalTrials.gov study NCT00255190. IPD Sharing: Not stated. Countries: 1. Publications: 3.
Quality of Life for Carers Through a Person-Centred Technological Solution
ClinicalTrials.gov study NCT06226285. IPD Sharing: YES. Countries: 1. Publications: 13.
Effectiveness of Coping Strategies on the Control of Chronic Non-Cancer Pain and Quality of Life (CNCP_CopQol)
ClinicalTrials.gov study NCT04696107. IPD Sharing: YES. Countries: 1. Publications: 23.
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
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DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.