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Dataset results
91 results for “disease surveillance”
Data from: Validation and utilization of amended diagnostic criteria in Creutzfeldt-Jakob Disease surveillance
Objective: To validate an amended protocol for clinical diagnosis of sporadic Creutzfeldt-Jakob Disease (sCJD) including Real-Time Quaking-induced Conversion (RT-QuIC) and to observe its utilization in CJD surveillance. Methods: In the framework of a prospective epidemiological study, all neuropathological confirmed sCJD cases that received CSF RT-QuIC analysis during diagnostic work up (n=65) and a control group of non- CJD cases (n=118) were selected to investigate the accuracy of an amended diagnostic protocol. The patients had been referred to the German National Reference Center for Transmissible Spongiform Encephalopathies. The influence of the amended protocol on incidence figures was evaluated in the context of three years of surveillance activity (screened cases using 14-3-3 test: n=18.789, highly suspicious cases of CJD: n=704). Annual incidences were calculated using current criteria and the amended protocol. Results: The amended protocol showed a sensitivity of 97% and a specificity of 99%. When it was applied to all suspected cases that were referred to the reference center, the assessed incidence of CJD increased from 1.7 to 2.2 per million in 2016. Conclusion: CJD surveillance remains challenging as information from external healthcare institutions can be limited. RT-QuIC shows excellent diagnostic accuracy when applied in the clinical setting to symptomatic patients. Data for RT-QuIC alone, when applied as a general screening test, are not available yet. We propose an amended research protocol which improves early and accurate clinical diagnosis of sCJD during surveillance activities. The utilization of this protocol will probably lead to a significant increase of the incidence rate.
Sodium Risedronate Tablets - Special Drug Use Surveillance in Patients With Osseous Paget's Disease (All-case Surveillance) -48-week Surveillance -
ClinicalTrials.gov study NCT02106455. IPD Sharing: NO. Countries: 1. Publications: 0.
Vahelva Respimat Regulatory Post-marketing Surveillance in Korean Patients With Chronic Obstructive Pulmonary Disease
ClinicalTrials.gov study NCT02864407. IPD Sharing: YES. Countries: 1. Publications: 0.
Surveillance Program to Determine Product Specific Rates of Invasive Hib Disease
ClinicalTrials.gov study NCT00855855. IPD Sharing: YES. Countries: 1. Publications: 0.
Prospective Surveillance of Respiratory Syncytial Virus Disease in Infants and Toddlers
ClinicalTrials.gov study NCT05964582. IPD Sharing: YES. Countries: 7. Publications: 0.
JARDIANCE® Post Marketing Surveillance in Korean Patients With Chronic Kidney Disease (CKD)
ClinicalTrials.gov study NCT06287073. IPD Sharing: YES. Countries: 1. Publications: 0.
Data from: Validation and utilization of amended diagnostic criteria in Creutzfeldt-Jakob Disease surveillance
Open the record for dataset details and reuse information.
Data from: The ecology of wildlife disease surveillance: demographic and prevalence fluctuations undermine surveillance
Open the record for dataset details and reuse information.
Post-Marketing Surveillance of Humira in Korean Pediatric Crohn's Disease (CD) Patients Under the "New-Drug Re-examination"
ClinicalTrials.gov study NCT02578238. IPD Sharing: UNDECIDED. Countries: 0. Publications: 0.
Virtual Versus Dye-based Chromoendoscopy in Inflammatory Bowel Disease Surveillance Colonoscopy
ClinicalTrials.gov study NCT07089771. IPD Sharing: NO. Countries: 1. Publications: 0.
Post-marketing Surveillance on Long Term Use of Ofev Capsules in Systemic Scleroderma Associated Interstitial Lung Disease (SSc-ILD) in Japan
ClinicalTrials.gov study NCT04325217. IPD Sharing: YES. Countries: 1. Publications: 0.
Surveillance of Safety and Efficacy of Wilate in Patients With Von Willebrand Disease
ClinicalTrials.gov study NCT01602419. IPD Sharing: Not stated. Countries: 10. Publications: 0.
A Safety Surveillance Study in Subjects With Macular Degenerative Disease Treated With Human Embryonic Stem Cell-derived Retinal Pigment Epithelial Cell Therapy
ClinicalTrials.gov study NCT03167203. IPD Sharing: YES. Countries: 2. Publications: 0.
Multiparametric Magnetic Resonance Imaging of the Prostate to Assess Disease Progression and Genomics in Patients Undergoing Active Surveillance for Prostate Cancer
ClinicalTrials.gov study NCT04692675. IPD Sharing: YES. Countries: 1. Publications: 0.
Endomicroscopy in Primary Sclerosing Cholangitis Related Inflammatory Bowel Disease Surveillance
ClinicalTrials.gov study NCT01880606. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Digital Applications to Monitor Novel Coronavirus Disease and Response in Colombia - Syndromic and Vaccination Surveillance
ClinicalTrials.gov study NCT05764174. IPD Sharing: NO. Countries: 1. Publications: 0.
Use of Low-cost Molecular Diagnostic Techniques as a New Surveillance Model for Diseases Preventable by Vaccinations.
ClinicalTrials.gov study NCT06322277. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Post-marketing Surveillance of Bixalomer in Patients With Pre-dialysis Chronic Kidney Disease
ClinicalTrials.gov study NCT02805348. IPD Sharing: NO. Countries: 1. Publications: 0.
Post Marketing Surveillance of JARDIANCE in Chronic Kidney Disease
ClinicalTrials.gov study NCT06527846. IPD Sharing: YES. Countries: 1. Publications: 0.
Lansoprazole Tablets Special Drug Use Surveillance Gastroesophageal Reflux Disease With Dyspepsia Symptoms
ClinicalTrials.gov study NCT01990339. IPD Sharing: Not stated. Countries: 0. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.