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162
datasets available to search
ShareScore release 0.9.0
Dataset results
162 results for “health information”
Exploring Whether Self-affirmation Promotes Reduced Alcohol Consumption in Response to Narrative Health Information
ClinicalTrials.gov study NCT02681900. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Effects of Web-Based Health Information on Risk Behavior for Youth With Type 1 Diabetes in College
ClinicalTrials.gov study NCT02883829. IPD Sharing: UNDECIDED. Countries: 1. Publications: 2.
Health Information Technology in Heart Failure Care
ClinicalTrials.gov study NCT02858674. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Efficacy of a Health Empowerment Theory Based Health Information Literacy Promotion Intervention in Individuals With Metabolic Syndrome
ClinicalTrials.gov study NCT07096102. IPD Sharing: NO. Countries: 1. Publications: 5.
Swiss Cohort of Health Professionals and Informal Caregivers
ClinicalTrials.gov study NCT05571488. IPD Sharing: YES. Countries: 1. Publications: 5.
Using a Tailored Health Information Technology Driven Intervention to Improve Health Literacy and Medication Adherence
ClinicalTrials.gov study NCT02354040. IPD Sharing: Not stated. Countries: 1. Publications: 3.
Role of Information and Communication Technologies for Health Support in Inflammatory Bowel Diseases: The DAMASCO Trial
ClinicalTrials.gov study NCT04893928. IPD Sharing: NO. Countries: 1. Publications: 25.
Self-management EdUcation and SuPport to Promote PsychOsocial Health Among StRoke Survivors and Informal Caregivers in a VirTual Stroke Community (SUPPORT)
ClinicalTrials.gov study NCT05487144. IPD Sharing: NO. Countries: 1. Publications: 1.
Data-Informed Platform for Health (DIPH)
ClinicalTrials.gov study NCT05310682. IPD Sharing: YES. Countries: 1. Publications: 6.
Interactive Mobile Health Information to Enhance Patient Care at a Cystic Fibrosis Center
ClinicalTrials.gov study NCT03052231. IPD Sharing: NO. Countries: 1. Publications: 3.
Consumer Access to Personal Health Information for Asthma Self-Management
ClinicalTrials.gov study NCT01964469. IPD Sharing: Not stated. Countries: 1. Publications: 1.
An Automated, Tailored Information Application for Medication Health Literacy
ClinicalTrials.gov study NCT01304186. IPD Sharing: Not stated. Countries: 1. Publications: 3.
The Genetics and Vascular Health Check Study (GENVASC) Aims to Help Determine Whether Gathering Genetic Information Can Improve the Prediction of Risk of Coronary Artery Disease (CAD)
ClinicalTrials.gov study NCT04417387. IPD Sharing: YES. Countries: 1. Publications: 1.
ART uptake and early retention among pregnant women screened HIV infected in informal health centers in Cameroon
Open the record for dataset details and reuse information.
Assessing the Immunization Information System and Electronic Health Record interface accuracy for COVID-19 vaccinations
Open the record for dataset details and reuse information.
Assessing the choice of sources of information on sexual and reproductive health issues among adolescents
<p class="MsoNoSpacing"><b>Background: </b>Access to the right information from credible sources on sexual and reproductive health (SRH) issues is germane to smooth and healthy transition from childhood to adulthood among adolescents with or without disabilities. Despite the large amount of research focused on adolescents aged 15-19 years, adolescents with disabilities, particularly those with visual impairment have received little attention. This study aims to assess the sources of information on SRH issues among adolescents with visually impairment (AVI) and adolescents without visual impairments (AWVI).</p> <p class="MsoNoSpacing"><b>Methods: </b>A multi-stage sampling technique was used to select 394 AVI and AWVI in-school adolescents aged 15-19 years from two government boarding schools in Owo local government area of Ondo state, Nigeria. Quantitative Data were collected using the Open Data Kit (ODK). Data analyses were done using descriptive and Binary Logistics regression.</p> <p class="MsoNoSpacing"><b>Results: </b>The available sources of information on SRH issues among in-school adolescents include school teachers, parents, siblings and other family members among others. Of all the available sources of information, the most important and the most preferred sources of information were school teachers, parents, siblings and other family members. However, the AVI preferred to receive more information on puberty and Sexual and Reproductive (SR) system from their most important sources (school teachers and parents); while the AWVI preferred getting more information on puberty from parents and more information on SR system from school teachers. While most of the AVI preferred to receive more information on boy/girlfriend relationship from school teachers and parents, majority of the AWVI preferred to receive more of such information from their parents. Significant difference exists only in the most preferred source of information on boy/girlfriend relationship between the AVI and AWVI (p<0.05). Furthermore, results from the binary Logistics regression showed that, AWVI were significantly less likely to have received information on SRH issues from their preferred sources than their AVI counterparts (OR:0.460; CI:0.273-0.777). Female adolescents were significantly more likely to have received information from their preferred sources than their male counterparts (OR:1.592; CI:1.016-2.496). Also, adolescents having mothers aged 40-49 were more than twice as likely as those whose mothers were younger to have received information from their preferred sources (OR:2.220; CI:1.150-4.286).</p> <p class="MsoNoSpacing"><b>Conclusion: </b>Making information on SRH issues available and accessible to adolescents generally and those with visual impairment in particular in formats that take their disabilities into account, will go a long way to ensuring their smooth and healthy transition to adulthood.</p>
Data from: Health IT, hacking, and cybersecurity: national trends in data breaches of protected health information
Objective: The rapid adoption of health information technology (IT) coupled with growing reports of ransomware, and hacking has made cybersecurity a priority in health care. This study leverages federal data in order to better understand current cybersecurity threats in the context of health IT. Materials and Methods: Retrospective observational study of all available reported data breaches in the United States from 2013 to 2017, downloaded from a publicly available federal regulatory database. Results: There were 1512 data breaches affecting 154 415 257 patient records from a heterogeneous distribution of covered entities (P < .001). There were 128 electronic medical record-related breaches of 4 867 920 patient records, while 363 hacking incidents affected 130 702 378 records. Discussion and Conclusion: Despite making up less than 25% of all breaches, hacking was responsible for nearly 85% of all affected patient records. As medicine becomes increasingly interconnected and informatics-driven, significant improvements to cybersecurity must be made so our health IT infrastructure is simultaneously effective, safe, and secure.
Modernizing health information technology: lessons from healthcare delivery systems
<p>Abstract Objective To identify recurrent themes, insights, and process recommendations from stakeholders in US organizations during the health information technology (HIT) modernization of an existing electronic health record (EHR) to a commercial-off-the-shelf product in both resource-plentiful settings and in a resource-constrained environment, the US Indian Health Service. Materials and Methods Thirteen qualitative interviews with stakeholders in various organizations were conducted about HIT modernization efforts. Using a Theory of Change framework, recurring themes were identified and analyzed. Results The interviewees emphasized the importance of organizational and process revision during modernization, converting historical data, and clinical and leadership involvement. HIT implementation required technological and infrastructure redesign, additional training, and workflow reconfiguration. Motivations for modernization included EHR usability dissatisfaction, revenue enhancements, and improved clinical operations. Decision-making strategies, primarily during HIT selection, included meetings with stakeholders. Successful modernization resulted in improvements in clinical operations, patient experience, and financial outlay. Discussion Existing implementation frameworks fail to provide experiential feedback, such as implementation challenges, like data conversion, regulatory, functionality, and interoperability requirements. Regardless of the healthcare environment, HIT modernization requires the engagement of leadership and end-users during HIT selection and through all stages of the implementation to prepare people, processes, and technology. Organizations must iteratively define the technological, infrastructure, organizational, and workflow changes required for a successful HIT modernization effort. Conclusions HIT modernization is an opportunity for organizational and technological change. Successful modernization requires a comprehensive, intentional, well-communicated, and multidisciplinary approach. Resource-constrained environments have the additional challenges of financial burdens, limited staffing, and unstable infrastructure.</p>
Survivor-Sleep Health Information Program
ClinicalTrials.gov study NCT04863157. IPD Sharing: YES. Countries: 1. Publications: 0.
Health Information Technology (HIT) Enhanced Family History Documentation and Management in Primary Care
ClinicalTrials.gov study NCT01468675. IPD Sharing: NO. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
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DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.