Find research datasets worth reusing

opencc-by-4.0Nov 2022View details →

Changing birth places to care for healthcare workers, lessons from the pandemic: a scoping review.

Abstract Background: Together with women giving birth, healthcare professionals involved in perinatal care faced significant challenges due to Covid-19 restrictions. The birth environment has been affected, influencing the quality and nature of interactions between care providers, women, and their families as well as the quality of care provided to women. Aim: To identify, categorize and reflect on the most relevant aspects of the experience of healthcare workers, especially obstetricians and gynecologists, involved in the peripartum period, after the first wave of the Covid-19 pandemic up till now. Methods: A scoping review was conducted. After conducting a literature search using a variety of online data- bases, 22 articles were included, and the main/recurrent themes were identified. Results: The following main themes were described: fear of the virus, changes in the way care is provided, increase in the workload, mental health, psychological distress, support strategies, university education, and perspectives of health managers. Discussion: Standard maternity departments appeared not appropriate to face the pandemic. Psychological distress on perinatal healthcare workers’, the majority of whom were women, led to the impairment of their mental health, affecting the quality of care provided to women.  A key role was played by healthcare managers support in shaping how doctors can cope and recover, and in reducing the mental health impact. Conclusion: It is very important to address some of the most relevant issues to acknowledge the role of healthcare workers and improve the health systems organization to face future pandemics.

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Data for: Coordination of care is facilitated by delayed feeding and collective arrivals in the long-tailed tit

When multiple carers invest in a shared brood, there is likely to be conflict among individuals over how much each carer invests. This conflict results in suboptimal investment to the detriment of all carers. It has been proposed that conditional cooperation, i.e. 'turn-taking' or 'alternation', may resolve this conflict by preventing exploitation. This contentious idea has received some empirical support, but distinguishing active alternation from that expected via passive processes has proved challenging. The aim of this study was to use detailed observations of provisioning to examine whether carers at biparental (parents only) and cooperative (parents and helpers) nests of the long-tailed tit Aegithalos caudatus behave in a context-dependent manner that enhances the level of alternation. First, we show that carers who had been the last to feed waited near the nest (loitering) for longer before feeding when they next arrived at the nest and allowed others to feed first, thus facilitating alternation. Secondly, we found that the arrival of carers near the nest and their subsequent feeds were tightly synchronised, with overlapping loitering periods, allowing them to monitor the effort of other carers. Finally, we show that measures of coordination were influenced by carers arriving in a status-dependent order, with breeding females consistently arriving first and helpers last. Together, these results show how patterns of alternation and synchrony arise in long-tailed tits and reveal the behavioural mechanisms underpinning coordination of care.

opencc-zeroFeb 2023View details →

opencc-by-4.0Jun 2023View details →

Coursera - Cybersecurity in Healthcare (Hospitals & Care Centres)

Coursera - Cybersecurity in Healthcare (Hospitals & Care Centres) M. Jofre The course "Cybersecurity in Healthcare" has been developed to raise awareness and understanding the role of cybersecurity in healthcare (e.g., hospitals, care centres, clinics, other medical or social care institutions and service organisations) and the challenges that surround it. In this course, we will cover both theoretical and practical aspects of cybersecurity. We look at both social aspects as technical aspects that come into play. Furthermore, we offer helpful resources that cover different aspects of cybersecurity. Even if you are not active in the healthcare domain, you will find helpful tips and insights to deal with cybersecurity challenges within any other organisation or in personal contexts as well. This course begins by introducing the opportunities and challenges that digitalisation of healthcare services has created. It explains how the rise of technologies and proliferation of (medical) data has become an attractive target to cybercriminals, which is essential in understanding  why  adequate cybersecurity measures are critical within the healthcare environment. In later modules, course contents cover the threats, both inside and outside of healthcare organisations like e.g. social engineering and hacking. Module 4 on Cyber Hygiene describes how to improve cybersecurity within healthcare organisations in practical ways.  Module 5 looks deeper into how organisational culture affects cybersecurity, the cybersecurity culture, focusing on the interaction between human behaviour and technology and how organisational factors can boost or diminish the level and attention to cybersecurity in healthcare. References: [1] M. Jofre, “Holistic View Of Healthcare Cybersecurity Ecosystem,” Zenodo, Jul. 2020. doi: 10.5281/zenodo.7999970. [2] M. Jofre, “Minimum Quality Standard For Cybersecurity Training In Healthcare,” Zenodo, Jun. 2020. doi: 10.5281/zenodo.8000029. [3] M. Jofre et al., “Cybersecurity and Privacy Risk Assessment of Point-of-Care Systems in Healthcare—A Use Case Approach,” Appl. Sci., vol. 11, no. 15, Art. no. 15, Jan. 2021, doi: 10.3390/app11156699.

opencc-by-4.0Jun 2023View details →

Evaluation of Massive Education in Prison Health: a perspective of health care for the person deprived of freedom in Brazil

Dataset name: data_survey.xlsx  Version: 1.0  Dataset period: 03/23/2022 - 06/30/2022 Dataset Characteristics: Multivalued  Number of Instances: 270 Number of Attributes: 88 Missing Values: Yes Area(s): Health and education  Description: The data contained in the "data_survey.xlsx" dataset (Table 1, in the README) originate from a questionnaire (available in the download files section) composed of 37 questions administered to students who completed the course "Health Care for People Deprived of Freedom" from the learning path "Prison System." This course is a strategy for mass education in prison health in Brazil and is available in the Virtual Learning Environment of the Brazilian Health System (AVASUS) (Brasil, 2023). This dataset provides information about the course from the perspective of health professionals and other staff who work or wish to work in the Brazilian prison system. Note: The dataset's content is provided in Brazilian Portuguese (pt-br) from native speakers.

opencc-by-4.0May 2023View details →

Development of a national point-of-care ultrasound training course for physicians in Japan: A 3-year evaluation

Purpose: Point-of-care ultrasound (POCUS) allows bedside clinicians to acquire, interpret, and integrate ultrasound images into patient care. Although the availability of POCUS training courses has increased, the educational effectiveness of these courses is unclear. Methods: From 2017 to 2019, we investigated the educational effectiveness of a standardized 2-day hands-on POCUS training course and changes in pre- and post-course exam scores in relationship to participants’ (n = 571) clinical rank, years of POCUS experience, and frequency of POCUS use in clinical practice. Results: The mean pre- and post-course examination scores were 67.2 (standard deviation [SD] 12.3) and 79.7 (SD 9.7), respectively. Higher pre-course examination scores were associated with higher clinical rank, more years of POCUS experience, and more frequent POCUS use (p < 0.05). All participants showed significant changes in pre- to post-course exam scores. Though pre-course scores differed by clinical rank, POCUS experience, and frequency of POCUS use, differences in post-course scores according to participant baseline differences were non-significant. Conclusion: A standardized hands-on POCUS training course is effective for improving POCUS knowledge regardless of baseline differences in clinical rank, POCUS experience, or frequency of POCUS use. Future studies shall evaluate changes in POCUS use in clinical practice after POCUS training.

opencc-by-4.0Dec 2022View details →

Secondary data: Describing the Status Quo of Person-Centred Dementia Care within Different Types of Care Units in German Nursing Homes

This is the secondary data set and R-Code of R statistical software (version 4.2.1) to investigate the differences and commonalities in the existence of policies regarding person-centred dementia care (PCDC) measured with the Dementia Policy Questionnaire (DemPol-Q) in different care unit types in German nursing homes using a contingency table and Fisher’s exact test. The data from the secondary data analysis were collected in the “BeStaDem” Survey Study, funded by the German Research Foundation (DFG, project number: 430919791), and performed by Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., site Witten. This quantitative analysis is one part of the article “Describing the Status Quo of Person-Centred Dementia Care within Different Types of Care Units in German Nursing Homes – A Convergent Mixed Methods Study”.

opencc-by-4.0Jul 2023View details →

Database and Syntax for Analysis of the Paper: "Effects of introducing the WHO Labour Care Guide on Caesarean section: a pragmatic, stepped-wedge, cluster randomized trial in India"

The following files contains the information used to analyze the trial “Implementing the WHO Labour Care Guide to reduce the use of Caesarean section in four hospitals in India: a pragmatic, stepped wedge, cluster randomized pilot trial” in which it was hypothesized that the intervention would promote correct LCG use by these providers, changing their labour monitoring and management practices to align with WHO’s intrapartum recommendations. In turn, this could reduce overuse of Caesarean section, improve maternal and newborn outcomes, and enhance women’s care experiences.   Two datafiles with extension “csv” are uploaded. The databased named “LCG Trial Women Database (transition period included).csv” is the database which contains the data of the recruited women in the trial. There is one row per women. The databased named “LCG Trial Neonates Database (transition period included).csv” is the database which contains the data of the neonates born from the recruited women. There is one row per neonate. The excel file “Data Dictionary LCG to Share.xlsx” is the data dictionary of the two databases. In the sheet named “Maternal Variables” a list and description of the variables included in the maternal database is included and, in the sheet, named “Neonatal Variables” a list and description of the variables included in the neonatal database is included. Three files of “R” extension and one “rmd” are included. The file named “RunningModelsFunctions.R” is the one use to run the models that are included in the analyses, the file named “2. Final Analysis LCG Trial.R” is the one in which the tables are prepared, and the file named “3. LCG Results Output Final.rmd” is used to export the tables with results. The R file named “funciones.tablas.R” is used in the analyses.

opencc-by-4.0Jul 2023View details →

Can we collect health-related quality of life information from anticoagulated atrial fibrillation participants who have recently experienced a bleed? An observational feasibility study in primary, and secondary care and through an online forum

The purpose of the study was to evaluate the feasibility of recruiting participants diagnosed with atrial fibrillation (AF) taking oral anticoagulation therapies (OACs) and recently experiencing a bleed to collect health-related quality of life (HRQoL) information. Design Observational feasibility study.  The study aimed to determine the feasibility of recruiting participants with minor and major bleeds, the most appropriate route for recruitment and the appropriateness of the Patient Reported Outcome Measures (PROMs) selected for collecting  HRQoL information in AF patients, and the preferred format of the surveys. Setting Primary care, secondary care, and via an online patient forum. Participants The study population was adult patients (≥ 18) with Atrial Fibrillation (AF) taking oral anticoagulation therapies (OATs) who had experienced a recent major or minor bleed within the last four weeks. Primary and Secondary outcome measures Primary outcome: Patient reported outcome measures (PROMs): EuroQol 5 dimensions-5 levels (EQ-5D-5L); Perception of anticoagulant treatment questionnaire, part 2 only (PACT-Q, part 2); Atrial fibrillation effect on quality of life (AFEQT) Secondary outcomes: Location of bleed; bleed severity; current treatment; patient perceptions of HRQoLin relation to bleeding events. Results We received initial expressions of interest from 103 participants.  We subsequently recruited 32 participants to the study- 14 from primary care and 18 through the AF forum.  No participants were recruited through secondary care.  Despite 32 participants consenting, only 26 initial surveys were completed.  We received follow-up surveys from 11 participants (8 primary care and 3 AF forum).  COVID-19 had a major impact on the study.  Conclusions Primary care was the most successful route for recruitment. Most participants recruited to the study experienced a minor bleed.  Further ways to recruit in secondary care should be explored, especially to capture more serious bleeds.  Registration The study was adopted onto the NIHR Portfolio (I.D. #47771) and registered with www.ClinicalTrials.gov (#NCT04921176) in February 2021. Dataset contains all anonymised data for the participants who completed the survey including demographics, details of bleeds, co-morbidities and completed patient reported outcomes

opencc-by-4.0Jul 2023View details →

The Relationship between Nursing Job Satisfaction and Missed Nursing Care in Critical Care Units

Data set for The Relationship between Nursing Job Satisfaction and Missed Nursing Care in Critical Care Units

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Data for: Experimental variation of perceived predation risk does not influence coordination of parental care in the long-tailed tit

To maximise fitness, parents should optimise their investment in each breeding attempt. When there are multiple carers, the fitness of each individual may also depend on the relative timing of their investment, with coordination of care hypothesised to maximise its efficiency and reduce predation risk. The aim of this study was to test the hypothesis that carers coordinate provisioning as an antipredator measure that reduces the time that a brood's location is advertised to predators ('predation hypothesis'). We presented predatory and non-predatory model birds to provisioning long-tailed tit Aegithalos caudatus parents and helpers, predicting that coordination would increase, and carer activity near the nest would decrease following predator presentation, relative to controls. First, carers reduced provisioning rates and took longer to resume provisioning following the predator presentation. Second, contrary to predictions, we found no significant change in any metric of coordination following predator presentations, relative to controls. Moreover, following predator presentation carers spent more time near the nest, resulting in greater near-nest activity compared to controls. In conclusion, although provisioning long-tailed tits are sensitive to perceived predation risk, our findings do not support the prediction of the predation hypothesis that carers adjust coordination behaviour in response to that threat.

opencc-zeroAug 2023View details →

Effects of Code Sepsis Implementation on Emergency Department (ED) Sepsis Care

ClinicalTrials.gov study NCT04148989. IPD Sharing: YES. Countries: 1. Publications: 1.

Hepatitis C Treatment in PWIDs: MAT or Syringe Exchange Assisted-therapy vs Standard of Care

ClinicalTrials.gov study NCT03093415. IPD Sharing: YES. Countries: 1. Publications: 7.

Early Palliative Care in Advanced Lung and Gastrointestinal Malignancies

ClinicalTrials.gov study NCT01401907. IPD Sharing: YES. Countries: 1. Publications: 2.

Study in Primary Care Evaluating Inclisiran Delivery Implementation + Enhanced Support

ClinicalTrials.gov study NCT04807400. IPD Sharing: YES. Countries: 1. Publications: 2.

Collaborating to Heal Addiction and Mental Health in Primary Care

ClinicalTrials.gov study NCT04600414. IPD Sharing: YES. Countries: 1. Publications: 1.

A Stigma Reduction Intervention at Time of Entry Into Antenatal Care to Improve PMTCT Services in Tanzania

ClinicalTrials.gov study NCT03600142. IPD Sharing: YES. Countries: 1. Publications: 4.

Partners at Meals - Respite Care and Home (PAM)

ClinicalTrials.gov study NCT03622814. IPD Sharing: YES. Countries: 1. Publications: 1.

Everolimus Plus Best Supportive Care vs Placebo Plus Best Supportive Care in the Treatment of Patients With Advanced Neuroendocrine Tumors (GI or Lung Origin)

ClinicalTrials.gov study NCT01524783. IPD Sharing: YES. Countries: 25. Publications: 5.

restrictedIPD-UNDECIDEDFeb 2026View details →

Study of Efficacy and Safety of QAW039 in Patients With Severe Asthma Inadequately Controlled With Standard of Care Asthma Treatment.

ClinicalTrials.gov study NCT02563067. IPD Sharing: UNDECIDED. Countries: 19. Publications: 1.

Palliative Care for Persons With Late-stage Alzheimer's and Related Dementias and Their Caregivers

ClinicalTrials.gov study NCT04948866. IPD Sharing: YES. Countries: 1. Publications: 1.