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39
datasets available to search
ShareScore release 0.9.0
Dataset results
39 results for “Huntington's disease','HD”
PRidopidine's Outcome On Function in Huntington Disease, PROOF- HD
ClinicalTrials.gov study NCT04556656. IPD Sharing: NO. Countries: 11. Publications: 1.
A Study to Evaluate the Safety and Efficacy of PTC518 in Participants With Huntington's Disease (HD)
ClinicalTrials.gov study NCT05358717. IPD Sharing: Not stated. Countries: 11. Publications: 2.
Coenzyme Q10 in Huntington's Disease (HD)
ClinicalTrials.gov study NCT00608881. IPD Sharing: Not stated. Countries: 3. Publications: 64.
Dose-response Evaluation of the Cellavita HD Product in Patients With Huntington's Disease
ClinicalTrials.gov study NCT03252535. IPD Sharing: UNDECIDED. Countries: 1. Publications: 13.
A Clinical Study in Participants With Huntington's Disease (HD) to Assess Efficacy and Safety of Three Oral Doses of Laquinimod
ClinicalTrials.gov study NCT02215616. IPD Sharing: Not stated. Countries: 10. Publications: 2.
Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease Cohort
ClinicalTrials.gov study NCT01574053. IPD Sharing: Not stated. Countries: 20. Publications: 3.
TREND-HD - A Trial of Ethyl-EPA (Miraxion™) in Treating Mild to Moderate Huntington's Disease
ClinicalTrials.gov study NCT00146211. IPD Sharing: Not stated. Countries: 2. Publications: 1.
Safety Evaluation of Cellavita HD Administered Intravenously in Participants With Huntington's Disease
ClinicalTrials.gov study NCT02728115. IPD Sharing: UNDECIDED. Countries: 1. Publications: 8.
Neurobiological Predictors of Huntington's Disease (PREDICT-HD)
ClinicalTrials.gov study NCT00051324. IPD Sharing: YES. Countries: 1. Publications: 4.
Deep Brain Stimulation (DBS) of the Globus Pallidus (GP) in Huntington's Disease (HD)
ClinicalTrials.gov study NCT02535884. IPD Sharing: YES. Countries: 4. Publications: 7.
Beta Testing of a New Assessment in Huntington's Disease (HD)
ClinicalTrials.gov study NCT03119246. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Individuals Patterns of Disclosure About Huntington s Disease (HD) and the Association With Adaptation to HD
ClinicalTrials.gov study NCT00491842. IPD Sharing: NO. Countries: 1. Publications: 3.
Melatonin for Huntington's Disease (HD) Gene Carriers With HD Related Sleep Disturbance - a Pilot Study
ClinicalTrials.gov study NCT04421339. IPD Sharing: NO. Countries: 1. Publications: 1.
MIG-HD: Multicentric Intracerebral Grafting in Huntington's Disease
ClinicalTrials.gov study NCT00190450. IPD Sharing: Not stated. Countries: 1. Publications: 6.
PRISM-HD: Patient-Reported Impact of Symptoms in Huntington Disease
OBJECTIVE: <p>To determine the frequency and relative importance of symptoms experienced by adults with Huntington disease (HD) and to identify factors associated with a higher disease burden.</p> METHODS: <p>We performed 40 qualitative interviews (n = 20 with HD, n = 20 caregivers) and analyzed 2,082 quotes regarding the symptomatic burden of HD. We subsequently performed a cross-sectional study with 389 participants (n = 156 with HD [60 of whom were prodromal], n = 233 caregivers) to assess the prevalence and relative importance (scale 0-4) of 216 symptoms and 15 symptomatic themes in HD. Cross-correlation analysis was performed based on sex, disease duration, age, number of CAG repeats, disease burden, Total Functional Capacity score, employment status, disease status, and ambulatory status.</p> RESULTS: <p>The symptomatic themes with the highest prevalence in HD were emotional issues (83.0%), fatigue (82.5%), and difficulty thinking (77.0%). The symptomatic themes with the highest relative importance to participants were difficulty thinking (1.91), impaired sleep or daytime sleepiness (1.90), and emotional issues (1.81). High Total Functional Capacity scores, being employed, and having prodromal HD were associated with a lower prevalence of symptomatic themes. Despite reporting no clinical features of the disease, prodromal individuals demonstrated high rates of emotional issues (71.2%) and fatigue (69.5%). There was concordance between the prevalence of symptoms reported by manifest individuals and caregivers.</p> CONCLUSIONS: <p>Many symptomatic themes affect the lives of those with HD. These themes have a variable level of importance to the HD population and are identified both by those with HD and by their caregivers.</p>
Transcranial Static Magnetic Stimulation (tSMS) in Huntington's Disease (HD)
ClinicalTrials.gov study NCT06976983. IPD Sharing: Not stated. Countries: 0. Publications: 16.
A Study to Evaluate the Effect of SAGE-718 on Cognitive Function in Participants With Huntington's Disease (HD)
ClinicalTrials.gov study NCT05107128. IPD Sharing: NO. Countries: 4. Publications: 0.
Preparing for Prevention of Huntington's Disease (PREVENT-HD)
ClinicalTrials.gov study NCT04818060. IPD Sharing: YES. Countries: 1. Publications: 0.
An Extension Study to Evaluate the Long-Term Safety and Efficacy of Votoplam in Participants With Huntington's Disease (HD)
ClinicalTrials.gov study NCT06254482. IPD Sharing: YES. Countries: 10. Publications: 0.
PRISM-HD: Patient-Reported Impact of Symptoms in Huntington Disease
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OpenNeuro
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