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77 results for “Primary brain tumor”
Longitudinal observational study of pediatric patients with primary brain tumors: establishment of a hospital-based registry.
<p>Although tumors of the central nervous system (CNS) represent 2 % of all malignancies in general, they cause a disproportionately large morbidity and mortality and are the second most common form of cancer in children and the major solid tumor in childhood in the U.S., occurring in 21.3% of all children with malignant disease. The treatment of brain tumors in children and adolescents has evolved significantly in recent decades. Nowadays, most children with a diagnosis of brain tumor are treated properly and achieve prolonged survival. In order to obtain an overview of the impact of brain tumors, specialized registries, which provide information on all types of brain tumors, have emerged in several countries. Following on the pioneering Japanese and American experiences of specialized national records of brain tumors, other specialized registries were opened in European countries. This project aims to initiate a registry of the epidemiological profile of patients treated for CNS tumors in the Pediatric Cancer Center (CPC) of our hospital from January 2000 to December 2013, at diagnosis and during follow-up, updating information periodically. This data will be recorded in an electronic database capable of storing, retrieving and presenting information of interest. Prospectively recorded epidemiological data of patients diagnosed from January 2014 will be accrued, maintaining the database active to continuously record information on patients with CNS tumors treated in the CPC HIAS. Thus, creating a hospital registry of pediatric patients with CNS tumors. To this end, an instrument of data collection will be created using Google Apps (Google Inc., 2014), a digital platform with capacity for storage, creation and editing of documents and collaboration in real time over the cloud.</p>
Immersive Virtual Reality (VR) at the Time of Clinical Evaluation to Improve Psychological Distress and Anxiety in Primary Brain Tumor (PBT) Patients
ClinicalTrials.gov study NCT04301089. IPD Sharing: YES. Countries: 1. Publications: 7.
Proton Versus Photon Radiotherapy in Adults With Primary Brain Tumors
ClinicalTrials.gov study NCT06831461. IPD Sharing: NO. Countries: 1. Publications: 0.
A Study of Pomalidomide Monotherapy for Children and Young Adults With Recurrent or Progressive Primary Brain Tumors
ClinicalTrials.gov study NCT03257631. IPD Sharing: Not stated. Countries: 5. Publications: 2.
Managing Cancer and Living Meaningfully (CALM) Therapy in Individuals Diagnosed With a Primary Brain Tumor
ClinicalTrials.gov study NCT04852302. IPD Sharing: YES. Countries: 1. Publications: 1.
PET/CT Evaluation of Primary and Metastatic Brain Tumors With a Novel Radioiodinated Phospholipid Ether Analogue I-NM404
ClinicalTrials.gov study NCT01540513. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Topotecan by Intracerebral Clysis for Recurrent Primary Malignant Brain Tumors
ClinicalTrials.gov study NCT00308165. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Assessing Sleep and Circadian Rhythms in Primary Brain Tumors Patients
ClinicalTrials.gov study NCT04669574. IPD Sharing: YES. Countries: 1. Publications: 3.
Executive and Socio-cognitive Functions in Survivors of Primary Brain Tumor: Impact on Patients' Quality of Life
ClinicalTrials.gov study NCT02693405. IPD Sharing: NO. Countries: 1. Publications: 9.
Neuropharmacokinetics of Eribulin Mesylate in Treating Patients With Primary or Metastatic Brain Tumors
ClinicalTrials.gov study NCT02338037. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Antineoplaston Therapy in Treating Children With Primary Malignant Brain Tumors
ClinicalTrials.gov study NCT00003476. IPD Sharing: NO. Countries: 1. Publications: 0.
Abemaciclib (LY2835219) in Patients With Recurrent Primary Brain Tumors
ClinicalTrials.gov study NCT03220646. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Vorinostat and Temozolomide in Treating Young Patients With Relapsed or Refractory Primary Brain Tumors or Spinal Cord Tumors
ClinicalTrials.gov study NCT01076530. IPD Sharing: Not stated. Countries: 2. Publications: 1.
Study of the IDO Pathway Inhibitor, Indoximod, and Temozolomide for Pediatric Patients With Progressive Primary Malignant Brain Tumors
ClinicalTrials.gov study NCT02502708. IPD Sharing: Not stated. Countries: 1. Publications: 1.
MR Guided Laser Interstitial Thermal Therapy for the "Minimal Invasive" Treatment of Brain Metastasis and Primary Brain Tumors
ClinicalTrials.gov study NCT00392119. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Pilot Study of a Metabolic Nutritional Therapy for the Management of Primary Brain Tumors
ClinicalTrials.gov study NCT01535911. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Antineoplaston Therapy in Treating Patients With Primary Malignant Brain Tumors
ClinicalTrials.gov study NCT00003475. IPD Sharing: NO. Countries: 1. Publications: 0.
VNP40101M in Treating Young Patients With Recurrent, Progressive, or Refractory Primary Brain Tumors
ClinicalTrials.gov study NCT00098761. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Trial of Levetiracetam in Patients With Primary Brain Tumors and Symptomatic Seizures Who Undergo Surgery
ClinicalTrials.gov study NCT00571155. IPD Sharing: Not stated. Countries: 1. Publications: 1.
A Pilot Study of 1H-Nuclear Magnetic Resonance Spectroscopic Imaging in Pediatric Patients With Primary and Metastatic Brain Tumors
ClinicalTrials.gov study NCT00001574. IPD Sharing: Not stated. Countries: 1. Publications: 3.
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
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DANDI Archive for NWB datasets
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International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.