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4 results for “common data elements”
Common Data Elements for Disorders of Consciousness - Version 1.1
<p>In 2020, the Neurocritical Care Society’s <em>Curing Coma Campaign</em> launched an international initiative to create common data elements (CDEs) for disorders of consciousness (DoC). This CDE initiative is motivated by the recognition that ongoing progress in our field depends on the development of harmonized and uniform data elements. We formed multidisciplinary Work Groups with expertise in 1) Behavioral Phenotyping; 2) Hospital Course/Confounders/Medications; 3) Neuroimaging; 4) Electrophysiology; 5) Biospecimens; 6) Physiologic Data/Big Data; 7) Therapeutic Interventions; 8) Outcomes/Endpoints; and 9) Goals of Care/Family Data. Here, we disseminate the initial recommendations of this CDE development process and version 1.0 of the case report forms (CRFs) with CDEs that can be used in DoC studies. We aim for these CDEs to support progress in the field of DoC research and to facilitate multi-institutional collaboration. </p> <p>We welcome feedback and are committed to revising the CDEs and CRFs to ensure that they reflect developments in our field. To provide feedback about the current CDEs and CRFs, and to make recommendations about updates for future versions, please email <a href="mailto:cde.curingcoma@gmail.com">cde.curingcoma@gmail.com</a>.</p>
A Phased-Implementation Feasibility and Proof-of-Concept Study to Assess Incorporating the NIDA CTN Common Data Elements (CDEs) Into the Electronic Health Record (EHR) in Large Primary Care Settings (
ClinicalTrials.gov study NCT02974335. IPD Sharing: Not stated. Countries: 1. Publications: 1.
A Phased-Implementation Feasibility and Proof-of-Concept Study to Assess Incorporating the NIDA CTN Common Data Elements (CDEs) Into the Electronic Health Record (EHR) in Large Primary Care Settings (
ClinicalTrials.gov study NCT02963948. IPD Sharing: Not stated. Countries: 1. Publications: 1.
A Phased-Implementation Feasibility and Proof-of-Concept Study to Assess Incorporating the NIDA CTN Common Data Elements (CDEs) Into the Electronic Health Record (EHR) in Large Primary Care Settings (
ClinicalTrials.gov study NCT02986841. IPD Sharing: Not stated. Countries: 1. Publications: 0.
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.