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455
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ShareScore release 0.9.0
Dataset results
455 results for “long-term outcomes”
Dataset for the intervention effects and long-term changes in physical activity and cardiometabolic outcomes among children at risk of noncommunicable diseases in South Africa
<p>Dataset used to evaluate the short-term effects of the physical and health <em>KaziKidz</em> intervention on cardiometabolic risk factors and the long-term changes thereof among school-aged children at risk of NCDs from disadvantaged communities in South Africa.</p> <p>It encompasses anonymized, unique, identification numbers, anthropometric and clinical measures, such as blood pressure, blood sugar and blood lipids, and Actigraphy-measured physical activity levels. Assigned categories to each cardiovascular risk factor and the overall classification as at risk or not is available too.</p>
An Extension Study of HGT-HIT-045 Evaluating Long-Term Safety and Clinical Outcomes of Idursulfase-IT in Conjunction With Elaprase in Pediatric Participants With Hunter Syndrome and Cognitive Impairme
ClinicalTrials.gov study NCT01506141. IPD Sharing: YES. Countries: 3. Publications: 3.
Datset related to article: "ACTB gene mutation in combined Dystonia-Deafness syndrome with parkinsonism: Expanding the phenotype and highlighting the long-term GPi DBS outcome"
<p>Sanger sequences (.abi files) validating variants found with whole exome sequencing</p>
An Extension of Study Fx-005 Evaluating Long-Term Safety And Clinical Outcomes Of Fx-1006A In Patients With Transthyretin Amyloid Polyneuropathy
ClinicalTrials.gov study NCT00791492. IPD Sharing: Not stated. Countries: 6. Publications: 5.
Extension of Study TKT024 Evaluating Long-Term Safety and Clinical Outcomes in MPS II Patients Receiving Idursulfase
ClinicalTrials.gov study NCT00630747. IPD Sharing: Not stated. Countries: 10. Publications: 4.
Vitamin D to Improve Outcomes by Leveraging Early Treatment: Long-term Brain Outcomes in Vitamin D Deficient Patients
ClinicalTrials.gov study NCT03733418. IPD Sharing: YES. Countries: 1. Publications: 1.
Effects of Temperature Control Liner Materials on Long-Term Outcomes of Prothesis Use
ClinicalTrials.gov study NCT03428815. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
A Study to Compare the Long-term Outcomes After Two Different Anaesthetics
ClinicalTrials.gov study NCT03089905. IPD Sharing: YES. Countries: 4. Publications: 0.
Post-market Multi-Center RETRO-Prospective Study to Assess Long-term Clinical Outcomes NMSC Patients Treated With eBx
ClinicalTrials.gov study NCT05257486. IPD Sharing: NO. Countries: 1. Publications: 1.
The Effect of Physical Activity Promotion on Short and Long-term Outcomes in COPD
ClinicalTrials.gov study NCT02099799. IPD Sharing: NO. Countries: 1. Publications: 12.
Study Assessing Long-teRm Outcomes of dupiluMAb (DUPIXENT®) Treatment in Adult Patients With Chronic Rhinosinusitis With Nasal Polyposis (CRSwNP)
ClinicalTrials.gov study NCT04959448. IPD Sharing: YES. Countries: 6. Publications: 1.
Long-Term Outcomes and Durability of Effect Following Treatment With Cladribine Tablets for MS (CLASSIC-MS)
ClinicalTrials.gov study NCT03961204. IPD Sharing: YES. Countries: 29. Publications: 1.
Long-Term Outcomes for Lumbar Spinal Stenosis Patients Treated With X STOP®
ClinicalTrials.gov study NCT00534092. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Trial to Evaluate Cardiovascular and Other Long-term Outcomes With Semaglutide in Subjects With Type 2 Diabetes
ClinicalTrials.gov study NCT01720446. IPD Sharing: Not stated. Countries: 21. Publications: 21.
Long-Term Outcomes of Ataluren in Duchenne Muscular Dystrophy
ClinicalTrials.gov study NCT03179631. IPD Sharing: NO. Countries: 18. Publications: 0.
APOL1 Long-term Kidney Transplantation Outcomes Network (APOLLO)
ClinicalTrials.gov study NCT03615235. IPD Sharing: YES. Countries: 1. Publications: 11.
Long-term Outcomes of Conical Tapered Stems in Cementless Total Hip Arthroplasty Due to Congenital Hip Pathologies
ClinicalTrials.gov study NCT04748458. IPD Sharing: NO. Countries: 1. Publications: 5.
Data from: Comparison of long-term outcomes between enteral nutrition via gastrostomy and total parenteral nutrition in older persons with dysphagia: A propensity-matched cohort study
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Supplementary tables from: Long-term outcomes of patients diagnosed with differentiated thyroid cancer in childhood and young adulthood
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Data from: Long-term outcome in neuroZika: when biological diagnosis matters
Objectives: To characterize the full spectrum, relative frequency and prognosis of the neurological manifestations in Zika virus (ZIKV) postnatal infection. Methods: We conducted an observational study in consecutive ZIKV-infected patients presenting with neurological manifestations during the French West Indies 2016 outbreak. Results: Eighty-seven patients, including 6 children, were enrolled. Ninety-five percent of all cases required hospitalization. Guillain-Barré syndrome was the most frequent manifestation (46.0%) followed by encephalitis or encephalomyelitis (20.7%), isolated single or multiple cranial nerve palsies (9.2%), other peripheral manifestations (6.9%), and stroke (1.1%). Fourteen patients (16.1%) including one child, developed a mixed disorder involving both the central and peripheral nervous system. Mechanical ventilation was required in 21 cases all of whom had ZIKV RNA in at least one biological fluid. Two adult patients died due to neuroZika. Clinical follow-up (median 14 months; interquartile range, 13-17) was available for 76 patients. Residual disability (modified Rankin scale ≥2) was identified in 19 (25.0%) patients, in 6 cases (7.9%), disability was severe (modified Rankin scale ≥4). Amongst patients with ZIKV RNA detected in one biological fluid, the risk of residual disability or death was higher (odd ratio 9.19; CI 1.12-75.22; p = 0.039). Conclusions: NeuroZika spectrum represents a heterogenous group of clinical neurological manifestations. During an outbreak, clinicians should consider neuroZika in patients presenting with cranial nerve palsies and a mixed neurological disorder. Long-term sequelae are frequent in NeuroZika. ZIKV reverse-transcription PCR status at admission can inform prognosis and should therefore be taken into consideration in the management of hospitalised patients.
ScienceDex guides
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.