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316 results for “patient information”

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zenodo44/100

GERDAT010 Dataset for literature search linked to publication "Information needs of older patients newly diagnosed with cancer"

<p>Dataset of the literature search belonging to the publication&nbsp;&quot;Information needs of older patients newly diagnosed with cancer&quot;</p>

opencc-by-4.0Oct 2022View details →
zenodo40/100

Patient Representatives' Perspective on Informed Consent: Nominal Group Data

<p>For Task 1.6 of the i-CONSENT project, a one day workshop was organised with nine attendees from eight European patient groups. During the workshop, Nominal Group Technique (NGT) was used to explore issues that were considered pertinent within each of the four themes (comprehension, patient expectations, gender and assent), and to reach a consensus in terms of their significance. During this exercise, the workshop facilitator presented a short introduction to the theme, before each participant was given sticky notes and instructed to write down as many individual issues as possible using a separate sticky note for each idea. There was no limit to the number of ideas the participants could generate. This stage was conducted in silence and repeated for each of the four themes. The attached documents include the list of all the ideas collected on sticky notes notes during this stage and the ranking of the items done by the participants.</p>

opencc-by-4.0Jul 2021View details →
zenodo40/100

Raw Counts: A protocol for low-input RNA-sequencing of patients with febrile neutropenia captures relevant immunological information

<p>Raw counts for scientific article:&nbsp;</p> <p><em>&quot;A protocol for low-input RNA-sequencing of patients with febrile neutropenia captures relevant immunological information&quot;</em></p> <p>Victoria Probst*<sup>1</sup>, Lotte M&oslash;ller Smedegaard*<sup>2</sup>, Arman Simonyan<sup>1</sup>, Yuliu Guo<sup>1</sup>, Olga &Oslash;strup<sup>1</sup>, Kia Hee Schultz Dungu<sup>2</sup><sub>, </sub>Nadja Hawwa Vissing<sup>2</sup><sub>, </sub>Ulrikka Nygaard<sup>2</sup><sub> </sub>and<sub> </sub>Frederik Otzen Bagger<sup>1</sup></p> <p><sup>*Shared first authorship</sup></p> <p>Data description:&nbsp;</p> <p>The raw counts are from 88 samples of&nbsp;22 patients with leukaemia and suspected infection&nbsp;sequenced by a&nbsp;low-input protocol (Takara SMART-seq HT) (96% succeeded) and 15 of these were also processed by the standard protocol (Truseq).</p> <p>&nbsp;</p> <p><sup>CLI.CSV: Raw counts of control samples processed using a low input RNA sequencing protocol. 15 samples processed by the low-input protocol.&nbsp;&nbsp;</sup></p> <p><sup>CRNA.CSV: Raw counts of control samples processed using a standard RNA sequencing protocol. 15 samples processed by the standard protocol.&nbsp;</sup></p> <p><sup>FEB.CSV: Raw gene&nbsp;counts from patients. 88&nbsp;samples processed by the low input protocol. 4 samples failed sequencing.</sup></p> <p>&nbsp;</p> <p>&nbsp;</p> <p>&nbsp;</p>

opencc-by-4.0May 2023View details →
zenodo36/100

Expression of CDCA2 in hepatocellular carcinoma by immunohistochemistry and patients' information

<p>Cohort of hepatocellular carcinoma patients enrolled in the study entitled &quot;Cell division cycle associated 2 (CDCA2) upregulation promotes the progression of hepatocellular carcinoma in a p53-dependant mannar&quot;. CDCA2 expression in paraffin-embedded liver cancer tissue sections was evaluated by immunohistochemistry. Patients&#39; clinicopathological information was collected.</p>

opencc-by-4.0Jan 2022View details →
zenodo36/100

Multishell Diffusion MR Tractography Yields Morphological and Microstructural Information of the Anterior Optic Pathway: A Proof-of-Concept Study in Patients with Leber's Hereditary Optic Neuropathy. RAW DATA

<p>Raw data used to prepare Figures and Tables in article &quot;Multishell Diffusion MR Tractography Yields Morphological and Microstructural Information of the Anterior Optic&nbsp;Pathway: A Proof-of-Concept Study in Patients with Leber&rsquo;s Hereditary Optic Neuropathy&quot;, accepted for publication at International Journal of Environmental Research and Public Health, 27 May 2022.</p>

opencc-by-4.0Jun 2022View details →
zenodo36/100

Machine learning methods detect arm movement impairments in a patient with parieto-occipital lesion using only early kinematic information.

<p>This depository contains the data and codes of the paper:&nbsp;</p> <p>Bosco, A.,&nbsp;Bertini C., Filippini M., Foglino C., Fattori P (2022).&nbsp;Machine learning methods detect arm movement impairments in a patient with parieto-occipital lesion using only early kinematic information.&nbsp;<em>Journal of Vision</em>, in press.&nbsp;</p> <p>Data are provided in mat-file, codes is provided in m-files (Matlab).</p>

opencc-by-4.0Jul 2022View details →
ClinicalTrials.gov36/100

Enhancing Patient Ability to Understand and Utilize Complex Information Concerning Medication Self-management

ClinicalTrials.gov study NCT02820038. IPD Sharing: YES. Countries: 1. Publications: 1.

controlledIPD-YESFeb 2026View details →
ClinicalTrials.gov36/100

Personalized Experiences to Inform Improved Communication for Patients With Life Limiting Illness

ClinicalTrials.gov study NCT04118569. IPD Sharing: YES. Countries: 1. Publications: 2.

controlledIPD-YESFeb 2026View details →
ClinicalTrials.gov36/100

Patient-Reported Outcomes Measurement Information System Integration Into Rheumatology Clinical Practice

ClinicalTrials.gov study NCT05026853. IPD Sharing: NO. Countries: 1. Publications: 1.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov36/100

Information Visualizations to Facilitate HIV-related Patient-provider Communication in New York City (Info Viz: HIV-NYC)

ClinicalTrials.gov study NCT04102540. IPD Sharing: YES. Countries: 1. Publications: 50.

controlledIPD-YESFeb 2026View details →
ClinicalTrials.gov36/100

Discharge Information and Support for Patients Receiving Outpatient Care in the Emergency Department

ClinicalTrials.gov study NCT01717976. IPD Sharing: NO. Countries: 1. Publications: 4.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov36/100

Study to Gather Information About the Proper Dosing of the Oral FXIa Inhibitor BAY 2433334 and to Compare the Safety of the Study Drug to Apixaban, a Non-vitamin K Oral Anticoagulant (NOAC) in Patient

ClinicalTrials.gov study NCT04218266. IPD Sharing: NO. Countries: 14. Publications: 1.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov36/100

Health Literacy Intervention for Informed Consent of Cancer Patients Considering Clinical Trial Participation

ClinicalTrials.gov study NCT01964222. IPD Sharing: Not stated. Countries: 1. Publications: 19.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov36/100

Information Visualizations to Facilitate HIV-related Patient-provider Communication (Info Viz: HIV)

ClinicalTrials.gov study NCT03616106. IPD Sharing: YES. Countries: 1. Publications: 27.

controlledIPD-YESFeb 2026View details →
ClinicalTrials.gov36/100

Feasibility Testing of Patient Reported Outcomes - Informed Symptom Management System (PRISMS)

ClinicalTrials.gov study NCT04492007. IPD Sharing: NO. Countries: 1. Publications: 1.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov36/100

Study to Gather Information About the Proper Dosing and Safety of the Oral FXIa Inhibitor BAY 2433334 in Patients Following an Acute Heart Attack

ClinicalTrials.gov study NCT04304534. IPD Sharing: UNDECIDED. Countries: 14. Publications: 2.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov36/100

Study to Gather Information About Proper Dosing and Safety of the Oral FXIa Inhibitor BAY 2433334 in Patients Following a Recent Non Cardioembolic Ischemic Stroke Which Occurs When a Blood Clot Has Fo

ClinicalTrials.gov study NCT04304508. IPD Sharing: UNDECIDED. Countries: 23. Publications: 5.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov36/100

Model-informed Patient-specific Rehabilitation Using Robotics and Neuromuscular Modeling

ClinicalTrials.gov study NCT06008743. IPD Sharing: NO. Countries: 1. Publications: 1.

closedIPD-NOFeb 2026View details →
ClinicalTrials.gov36/100

PARTNERS HF: Program to Access and Review Trending Information and Evaluate Correlation to Symptoms in Patients With Heart Failure

ClinicalTrials.gov study NCT00279955. IPD Sharing: Not stated. Countries: 1. Publications: 2.

restrictedIPD-UNDECIDEDFeb 2026View details →
ClinicalTrials.gov36/100

Educational CD-ROM Compared With Standard Informed Consent for Patients With Colorectal Cancer or a Family History of Colorectal Cancer

ClinicalTrials.gov study NCT00450424. IPD Sharing: Not stated. Countries: 1. Publications: 2.

restrictedIPD-UNDECIDEDFeb 2026View details →

ScienceDex guides

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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.

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Allen Brain Atlas

Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.

allen-brain-atlas
neuroscienceopenDocumentation, web resources, and API references are available online.
Last verified 2026-04-30Open record

Annotated Behaviour and Observability Dataset (ABODe)

ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.

abode-home-cage
behavioral-neuroscienceopenThe DataShare record exposes download links for annotations, documentation, license text, and the zipped per-snippet data directory.
Last verified 2026-04-30Open record

DANDI Archive for NWB datasets

DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.

dandi-nwb
electrophysiologyopenPublished Dandiset metadata and archive endpoints are available through the production DANDI API.
Last verified 2026-04-30Open record

International Brain Laboratory public data

The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.

ibl
behavioral-neuroscienceopenPublic sessions can be searched and loaded from the IBL public data server through ONE.
Last verified 2026-04-29Open record

OpenNeuro

OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.

openneuro
neuroscienceopenPublished datasets are available on demand over the internet.
Last verified 2026-04-29Open record

ScienceDex for faculty

Your academic CV and NIH biosketch

Make your CV in your school's format and your NIH biosketch from it, then download both as Word files.