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41
datasets available to search
ShareScore release 0.9.0
Dataset results
41 results for “porphyria”
Harvoni Treatment Porphyria Cutanea Tarda
ClinicalTrials.gov study NCT03118674. IPD Sharing: NO. Countries: 1. Publications: 1.
A Study to Evaluate Long-term Safety and Clinical Activity of Givosiran (ALN-AS1) in Patient With Acute Intermittent Porphyria (AIP)
ClinicalTrials.gov study NCT02949830. IPD Sharing: UNDECIDED. Countries: 3. Publications: 0.
ENVISION: A Study to Evaluate the Efficacy and Safety of Givosiran (ALN-AS1) in Patients With Acute Hepatic Porphyrias (AHP)
ClinicalTrials.gov study NCT03338816. IPD Sharing: YES. Countries: 18. Publications: 5.
Hydroxychloroquine and Phlebotomy for Treating Porphyria Cutanea Tarda
ClinicalTrials.gov study NCT01573754. IPD Sharing: NO. Countries: 1. Publications: 1.
Pilot Trial of Deferasirox in the Treatment of Porphyria Cutanea Tarda
ClinicalTrials.gov study NCT00599326. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Porphyria Palace
Constantinople building Source: Objaverse 1.0 / Sketchfab
Evidence-based Assessment of Medication Sensitivity in Acute Hepatic Porphyria
ClinicalTrials.gov study NCT03906214. IPD Sharing: Not stated. Countries: 1. Publications: 5.
Observational Study of Acute Intermittent Porphyria Patients
ClinicalTrials.gov study NCT02076763. IPD Sharing: Not stated. Countries: 1. Publications: 2.
Dental Health, Diet, Inflammation and Biomarkers in Patients With Acute Intermittent Porphyria(AIP)
ClinicalTrials.gov study NCT01617642. IPD Sharing: Not stated. Countries: 1. Publications: 5.
Phase I Gene Therapy Clinical Trial Using the Vector rAAV2/5-PBGD for the Treatment of Acute Intermittent Porphyria
ClinicalTrials.gov study NCT02082860. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Safety and Efficacy of Oral Deferasirox in Patients With Porphyria Cutanea Tarda
ClinicalTrials.gov study NCT01284946. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Longitudinal Study of the Porphyrias
ClinicalTrials.gov study NCT01561157. IPD Sharing: Not stated. Countries: 1. Publications: 4.
Evaluating the Prevalence of Acute Hepatic Porphyria in Postural Tachycardia Syndrome
ClinicalTrials.gov study NCT05344599. IPD Sharing: NO. Countries: 1. Publications: 5.
A Phase 1 Study of Givosiran (ALN-AS1) in Patients With Acute Intermittent Porphyria (AIP)
ClinicalTrials.gov study NCT02452372. IPD Sharing: Not stated. Countries: 3. Publications: 2.
Acute Intermittent Porphyria Related Abnormalities in Cardiovascular System
ClinicalTrials.gov study NCT05882136. IPD Sharing: UNDECIDED. Countries: 1. Publications: 1.
Controlled Trial of Panhematin in Treatment of Acute Attacks of Porphyria
ClinicalTrials.gov study NCT02180412. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Sorbent Therapy of the Cutaneous Porphyrias
ClinicalTrials.gov study NCT01422915. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Clinical Research on Acute Intermittent Porphyria and the Use of Carbohydrate-Rich Diet as a Treatment
ClinicalTrials.gov study NCT06273644. IPD Sharing: YES. Countries: 2. Publications: 0.
Study to Evaluate the Safety and Efficacy of Afamelanotide in Patients With Variegate Porphyria (VP)
ClinicalTrials.gov study NCT05854784. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Panhematin for Prevention of Acute Attacks of Porphyria
ClinicalTrials.gov study NCT02922413. IPD Sharing: Not stated. Countries: 1. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.