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datasets available to search
ShareScore release 0.9.0
Dataset results
52 results for “rare tumors”
Diagnostic performance of LI-RADS in adult patients with rare hepatic tumors.
<p>We uploadedthe images of the manuscript "Diagnostic performance of LI-RADS in adult patients with rare hepatic tumors" pubished on European Review for Medical and Pharmacological Sciences 2021.</p>
Agnostic Therapy in Rare Solid Tumors
ClinicalTrials.gov study NCT06638931. IPD Sharing: NO. Countries: 1. Publications: 8.
Pembrolizumab in Treating Patients With Rare Tumors That Cannot Be Removed by Surgery or Are Metastatic
ClinicalTrials.gov study NCT02721732. IPD Sharing: Not stated. Countries: 1. Publications: 15.
Cabozantinib-S-Malate in Treating Younger Patients With Recurrent, Refractory, or Newly Diagnosed Sarcomas, Wilms Tumor, or Other Rare Tumors
ClinicalTrials.gov study NCT02867592. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Generalizable EHR-R-REDCap pipeline for a national multi-institutional rare tumor patient registry
<p><strong>Objective</strong>: To develop a clinical informatics pipeline designed to capture large-scale structured EHR data for a national patient registry.</p> <p><strong>Materials and Methods</strong>: The EHR-R-REDCap pipeline is implemented using R-statistical software to remap and import structured EHR data into the REDCap-based multi-institutional Merkel Cell Carcinoma (MCC) Patient Registry using an adaptable data dictionary.</p> <p><strong>Results</strong>: Clinical laboratory data were extracted from EPIC Clarity across several participating institutions. Labs were transformed, remapped and imported into the MCC registry using the EHR labs abstraction (eLAB) pipeline. Forty-nine clinical tests encompassing 482,450 results were imported into the registry for 1,109 enrolled MCC patients. Data-quality assessment revealed highly accurate, valid labs. Univariate modeling was performed for labs at baseline on overall survival (N=176) using this clinical informatics pipeline.</p> <p><strong>Conclusion</strong>: We demonstrate feasibility of the facile eLAB workflow. EHR data is successfully transformed, and bulk-loaded/imported into a REDCap-based national registry to execute real-world data analysis and interoperability.</p>
SIMPLIFication of Care Pathways for Patients with Rare Brain Tumors Through Artificial Intelligence
ClinicalTrials.gov study NCT06878469. IPD Sharing: NO. Countries: 1. Publications: 10.
Nivolumab Combined With Ipilimumab for Patients With Advanced Rare Genitourinary Tumors
ClinicalTrials.gov study NCT03333616. IPD Sharing: NO. Countries: 1. Publications: 1.
Rare CNS Tumors Outcomes &Risk
ClinicalTrials.gov study NCT03251989. IPD Sharing: YES. Countries: 1. Publications: 4.
Enfortumab Vedotin With or Without Pembrolizumab in Rare Genitourinary Tumors (E-VIRTUE)
ClinicalTrials.gov study NCT06041503. IPD Sharing: YES. Countries: 1. Publications: 1.
An International Study on Pediatric Patients With Rare Tumors.
ClinicalTrials.gov study NCT07072143. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Testing the Effectiveness of Two Immunotherapy Drugs (Nivolumab and Ipilimumab) With One Anti-cancer Targeted Drug (Cabozantinib) for Rare Genitourinary Tumors
ClinicalTrials.gov study NCT03866382. IPD Sharing: YES. Countries: 2. Publications: 1.
Atezolizumab and Bevacizumab in Treating Patients With Rare Solid Tumors
ClinicalTrials.gov study NCT03074513. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Rapid Analysis and Response Evaluation of Combination Anti-Neoplastic Agents in Rare Tumors (RARE CANCER) Trial: RARE 1 Nilotinib and Paclitaxel
ClinicalTrials.gov study NCT04449549. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Sacituzumab Govitecan With or Without Atezolizumab Immunotherapy in Rare Genitourinary Tumors (SMART) Such as High Grade Neuroendocrine Carcinomas, Adenocarcinoma, and Squamous Cell Bladder/Urinary Tr
ClinicalTrials.gov study NCT06161532. IPD Sharing: YES. Countries: 1. Publications: 1.
Durvalumab in Combination With Tremelimumab in Subjects With Advanced Rare Solid Tumors
ClinicalTrials.gov study NCT02938793. IPD Sharing: NO. Countries: 1. Publications: 1.
A Study Evaluating the Efficacy and Safety of Biomarker-Driven Therapies in Patients With Persistent or Recurrent Rare Epithelial Ovarian Tumors
ClinicalTrials.gov study NCT04931342. IPD Sharing: YES. Countries: 13. Publications: 0.
Nivolumab and Ipilimumab in Treating Patients With Rare Tumors
ClinicalTrials.gov study NCT02834013. IPD Sharing: Not stated. Countries: 2. Publications: 11.
PLATFORM Study of Precision Medicine for Rare Tumors
ClinicalTrials.gov study NCT04423185. IPD Sharing: NO. Countries: 1. Publications: 1.
Generalizable EHR-R-REDCap pipeline for a national multi-institutional rare tumor patient registry
Open the record for dataset details and reuse information.
Study of Pasireotide in Patients With Rare Tumors of Neuroendocrine Origin
ClinicalTrials.gov study NCT00958841. IPD Sharing: Not stated. Countries: 12. Publications: 0.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.