The notices it replaced
Its page was not saved, so the notices it replaced are not known.
Who won it before
15 competing awards (new and renewals) from FY2014 to FY2025 under this notice and the notices it replaced: $25,598,029 in first-year total cost, median $1,757,145.
Most frequent study sections
- Special Emphasis Panel[ZTR1 RD-4 (02)]8
- Special Emphasis Panel[ZTR1 RD-9 (02)]7
Most frequent institutions
- CHILDREN'S HOSP OF PHILADELPHIA4
- BAYLOR COLLEGE OF MEDICINE2
- BOSTON CHILDREN'S HOSPITAL2
- EMORY UNIVERSITY1
- GEORGE WASHINGTON UNIVERSITY1
| FY | Project | PIs | Institution | First-year cost | Study section |
|---|---|---|---|---|---|
| 2025 | Pediatric Fungal Network STudy of Rare Invasive Fungal DisEases in Immunocompromised Pediatric Patients (PFN-STRIDE)1U54AI198184-01 | FISHER, BRIAN TSTEINBACH, WILLIAM J | CHILDREN'S HOSP OF PHILADELPHIA, PA | $1,927,578 | ZTR1 |
| 2025 | Developmental Synaptopathies Associated with TSC, PTEN, SHANK3 and SynGAP1 Pathogenic Variants2U54NS092090-11 | SAHIN, MUSTAFA | BOSTON CHILDREN'S HOSPITAL, MA | $1,868,548 | ZTR1 |
| 2025 | ARDVARC-Advancing Rare Disorders: Vascular mAlformation Research Network with CaNVAS1U54HL185006-01 | ADAMS, DENISE MARTINJENG, MICHAEL RAYMOND | CHILDREN'S HOSP OF PHILADELPHIA, PA | $1,859,228 | ZTR1 |
| 2025 | Rare Organic Acidemias Research (ROAR) Consortium1U54HD121579-01 | BURRAGE, LINDSAY CSUTTON, VERNON R | BAYLOR COLLEGE OF MEDICINE, TX | $1,821,778 | ZTR1 |
| 2025 | Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe)2U54NS092091-11 | BENATAR, MICHAEL | UNIVERSITY OF MIAMI SCHOOL OF MEDICINE, FL | $1,804,011 | ZTR1 |
| 2025 | Spastic Paraplegia Centers of Excellence Research Network (SP-CERN) - RDCRC1U54NS148312-01 | EBRAHIMI-FAKHARI, DARIUSSHY, MICHAEL E.ZUCHNER, STEPHAN | BOSTON CHILDREN'S HOSPITAL, MA | $1,793,539 | ZTR1 |
| 2025 | Batten Disease Clinical Research Consortium1U54HD122210-01 | AUGUSTINE, ERIKA | HUGO W. MOSER RES INST KENNEDY KRIEGER, MD | $1,788,368 | ZTR1 |
| 2025 | Network for Advancing Sex Chromosome Aneuploidy Research Readiness (NASCARR)1U54HD121580-01 | TARTAGLIA, NICOLE RENEE | UNIVERSITY OF COLORADO DENVER, CO | $1,757,145 | ZTR1 |
| 2025 | Global Leukodystrophy Initiative Clinical Trials Network (GLIA- CTN)2U54NS115052-06 | ADANG, LAURA ANNEICHLER, FLORIAN SFATEMI, S. ALIGRUNDMEIER, ROBERT WVANDERVER, ADELINE LUCIE | CHILDREN'S HOSP OF PHILADELPHIA, PA | $1,753,747 | ZTR1 |
| 2025 | ARISEN (Autoimmunity, Rasmussen’s, Inflammation & Status Epilepticus research Network)1U54HD122209-01 | GOMBOLAY, GRACE YOONHEEKIMMURRAY, KRISTY | EMORY UNIVERSITY, GA | $1,630,887 | ZTR1 |
| 2025 | Brittle Bone Disorders Consortium of the Rare Disease Clinical Research Network2U54AR068069-11 | LEE, BRENDAN | BAYLOR COLLEGE OF MEDICINE, TX | $1,602,789 | ZTR1 |
| 2025 | Initiation of a cohort to define pathogenic Mechanisms, Precision diagnosis And Complications of Thrombotic Microangiopathies: The IMPACT Study1U54HL185004-01 | BRODSKY, ROBERT ACATALAND, SPERO R.CHATURVEDI, SHRUTIMAZEPA, MARSHALL | JOHNS HOPKINS UNIVERSITY, MD | $1,580,963 | ZTR1 |
| 2025 | Advancing Craniosynostosis Treatment (ACT)Rare Diseases Consortium1U54DE035976-01 | HUANG, JINGLIAO, ERIC CHIEN-WEITAYLOR, JESSEURATA, MARK M | CHILDREN'S HOSP OF PHILADELPHIA, PA | $1,530,000 | ZTR1 |
| 2025 | Rare Disease Network for Myasthenia Gravis2U54NS115054-06 | KAMINSKI, HENRY J | GEORGE WASHINGTON UNIVERSITY, DC | $1,454,144 | ZTR1 |
| 2025 | Rare Bronchiectatic Diseases Consortium1U54HL185005-01 | BOUCHER, RICHARD CHARLESOLIVIER, KENNETH N. | UNIV OF NORTH CAROLINA CHAPEL HILL, NC | $1,425,304 | ZTR1 |
Data: Grants.gov's daily extract and NIH's notice pages and award files, in ScienceGraph release conductgrants-2026-11-09-0.1.0. An award is listed only where NIH's own record names the notice, and a PI only by NIH's profile ID. Grants.gov and NIH do not endorse ScienceDex.