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NIH funding notice RFA-TR-13-002

Rare Diseases Clinical Research Consortia (RDCRC) for Rare Diseases Clinical Research Network (U54)

Closed on November 7, 2013.

Posted
August 13, 2013
Close date
November 7, 2013
Activity codes
Not stated on the notice page
Institutes taking part
Not stated on the notice page

Read the notice on Grants.gov · NIH Guide page

The notices it replaced

Its page was not saved, so the notices it replaced are not known.

Who won it before

21 competing awards (new and renewals) from FY2014 to FY2025 under this notice and the notices it replaced: $23,555,542 in first-year total cost, median $1,250,000.

Most frequent study sections

  1. Special Emphasis Panel[ZTR1 CI-8 (01)]21

Most frequent institutions

  1. UNIVERSITY OF CALIFORNIA, SAN FRANCISCO3
  2. CINCINNATI CHILDRENS HOSP MED CTR2
  3. BAYLOR COLLEGE OF MEDICINE1
  4. BOSTON CHILDREN'S HOSPITAL1
  5. CHILDREN'S RESEARCH INSTITUTE1
Competing awards under RFA-TR-13-002 and the notices it replaced
FYProjectPIsInstitutionFirst-year costStudy section
2014Brittle Bone Disorders Consortium of the Rare Disease Clinical Research Network1U54AR068069-01LEE, BRENDANBAYLOR COLLEGE OF MEDICINE, TX$1,258,097ZTR1
2014Vasculitis Clinical Research Consortium (VCRC)2U54AR057319-12MERKEL, PETER AUNIVERSITY OF PENNSYLVANIA, PA$1,250,000ZTR1
2014Rett syndrome, MECP2 Duplications, and Rett-related Disorders Natural History2U54HD061222-11PERCY, ALAN KENNETHUNIVERSITY OF ALABAMA AT BIRMINGHAM, AL$1,250,000ZTR1
2014NAMDC: Overall Research Plan2U54NS078059-04HIRANO, MICHIOCOLUMBIA UNIVERSITY HEALTH SCIENCES, NY$1,250,000ZTR1
2014Nephrotic Syndrome Rare Disease Clinical Research Network2U54DK083912-06KRETZLER, MATTHIASUNIVERSITY OF MICHIGAN AT ANN ARBOR, MI$1,250,000ZTR1
2014Consortium of Eosinophilic Gastrointestinal Disease Researchers1U54AI117804-01ROTHENBERG, MARC E.CINCINNATI CHILDRENS HOSP MED CTR, OH$1,250,000ZTR1
2014The Frontotemporal Lobar Degeneration Clinical Research Consortium1U54NS092089-01BOXER, ADAM L.UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, CA$1,250,000ZTR1
2014Brain Vascular Malformation Consortium: Predictors of clinical course2U54NS065705-06LAWTON, MICHAEL TUNIVERSITY OF CALIFORNIA, SAN FRANCISCO, CA$1,250,000ZTR1
2014Nephrolithiasis and Kidney Failure: the Rare Kidney Stone Consortium2U54DK083908-06MILLINER, DAWN SCHMAUTZMAYO CLINIC ROCHESTER, MN$1,250,000ZTR1
2014Porphyria Rare Disease Clinical Research Consortium (RDCRC)2U54DK083909-06DESNICK, ROBERT JICAHN SCHOOL OF MEDICINE AT MOUNT SINAI, NY$1,250,000ZTR1
2014Rare Diseases Clinical Research Consortia (RDCRC) for the RDCR Network2U54HD061221-11BATSHAW, MARK L.CHILDREN'S RESEARCH INSTITUTE, DC$1,250,000ZTR1
2014Genetic Disorder of Mucocilary Clearance2U54HL096458-11KNOWLES, MICHAEL RUNIV OF NORTH CAROLINA CHAPEL HILL, NC$1,249,998ZTR1
2014Lysosomal Disease Network2U54NS065768-06WHITLEY, CHESTER B.UNIVERSITY OF MINNESOTA, MN$1,249,987ZTR1
2014Primary Immune Deficiency Treatment Consortium2U54AI082973-06COWAN, MORTONUNIVERSITY OF CALIFORNIA, SAN FRANCISCO, CA$1,249,464ZTR1
2014Developmental Synaptopathies Associated with TSC, PTEN and SHANK3 Mutations1U54NS092090-01SAHIN, MUSTAFABOSTON CHILDREN'S HOSPITAL, MA$1,248,867ZTR1
2014Clinical Research in ALS & related disorders for Therapeutic Development (CREATE)1U54NS092091-01BENATAR, MICHAELUNIVERSITY OF MIAMI SCHOOL OF MEDICINE, FL$1,235,166ZTR1
2014RLDC: Molecular Pathway-Driven Diagnostics & Therapeutics for Rare Lung Diseases1U54HL127672-01TRAPNELL, BRUCE CCINCINNATI CHILDRENS HOSP MED CTR, OH$937,500ZTR1
2014Sterol and Isoprenoid Diseases Consortium2U54HD061939-06RIZZO, WILLIAM B.UNIVERSITY OF NEBRASKA MEDICAL CENTER, NE$900,000ZTR1
2014Inherited Neurophathies Consortium (RDCRC)2U54NS065712-07SHY, MICHAEL E.UNIVERSITY OF IOWA, IA$900,000ZTR1
2014Dystonia Coalition2U54NS065701-06JINNAH, HYDER AEMORY UNIVERSITY, GA$616,976ZTR1
2014Autonomic Rare Diseases Clinical Research Consortium2U54NS065736-06ROBERTSON, DAVID HERLIEVANDERBILT UNIVERSITY, TN$209,487ZTR1

Data: Grants.gov's daily extract and NIH's notice pages and award files, in ScienceGraph release conductgrants-2026-11-10-0.1.1. An award is listed only where NIH's own record names the notice, and a PI only by NIH's profile ID. Grants.gov and NIH do not endorse ScienceDex.

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