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NIH funding notice RFA-TR-18-020

Rare Diseases Clinical Research Consortia (RDCRC) for Rare Diseases Clinical Research Network (U54 Clinical Trials Optional)

Closed on October 9, 2018.

Posted
June 8, 2018
Close date
October 9, 2018
Activity codes
Not stated on the notice page
Institutes taking part
Not stated on the notice page

Read the notice on Grants.gov · NIH Guide page

The notices it replaced

Its page was not saved, so the notices it replaced are not known.

Who won it before

19 competing awards (new and renewals) from FY2014 to FY2025 under this notice and the notices it replaced: $30,172,661 in first-year total cost, median $1,626,009.

Most frequent study sections

  1. Special Emphasis Panel[ZTR1 RD-8 (01)]19

Most frequent institutions

  1. UNIVERSITY OF CALIFORNIA, SAN FRANCISCO2
  2. BAYLOR COLLEGE OF MEDICINE1
  3. BOSTON CHILDREN'S HOSPITAL1
  4. CHILDREN'S HOSP OF PHILADELPHIA1
  5. CHILDREN'S RESEARCH INSTITUTE1
Competing awards under RFA-TR-18-020 and the notices it replaced
FYProjectPIsInstitutionFirst-year costStudy section
2019Congenital and Perinatal Infections Rare Diseases Clinical Research Consortium (RDCRC)1U54AI150225-01KIMBERLIN, DAVID WUNIVERSITY OF ALABAMA AT BIRMINGHAM, AL$2,055,558ZTR1
2019Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (RDCRN) (U54 Clinical Trial Optional)2U54HD061221-16GROPMAN, ANDREA LYNNELE MONS, CYNTHIANAGAMANI, SANDESH CHAKRAVARTHY SREENATHCHILDREN'S RESEARCH INSTITUTE, DC$1,887,573ZTR1
2019Frontiers in Congenital Disorders of Glycosylation1U54NS115198-01MORAVA-KOZICZ, EVAMAYO CLINIC ROCHESTER, MN$1,805,072ZTR1
2019Consortium of Eosinophilic Gastrointestinal Disease Researchers2U54AI117804-06ROTHENBERG, MARC E.CINCINNATI CHILDRENS HOSP MED CTR, OH$1,770,730ZTR1
2019Brain Vascular Malformation Consortium: Predictor's of Clinical Course2U54NS065705-11KIM, HELENUNIVERSITY OF CALIFORNIA, SAN FRANCISCO, CA$1,759,941ZTR1
2019The North American Mitochondrial Disease Consortium (NAMDC)2U54NS078059-09HIRANO, MICHIOCOLUMBIA UNIVERSITY HEALTH SCIENCES, NY$1,746,884ZTR1
2019Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe)2U54NS092091-06BENATAR, MICHAELUNIVERSITY OF MIAMI SCHOOL OF MEDICINE, FL$1,725,519ZTR1
2019Hyperphenylalaninemia Disorders Consortium of the Rare Disease Clinical Research Network1U54HD100982-01HARDING, CARY O.OREGON HEALTH & SCIENCE UNIVERSITY, OR$1,707,037ZTR1
2019Developmental Synaptopathies Associated with TSC, PTEN and SHANK3 Mutations2U54NS092090-06SAHIN, MUSTAFABOSTON CHILDREN'S HOSPITAL, MA$1,697,268ZTR1
2019Genetic Disorders of Mucociliary Clearance2U54HL096458-16DAVIS, STEPHANIE DUGGINSFERKOL, THOMAS WUNIV OF NORTH CAROLINA CHAPEL HILL, NC$1,626,009ZTR1
2019Rare Disease Network for Myasthenia Gravis1U54NS115054-01KAMINSKI, HENRY JGEORGE WASHINGTON UNIVERSITY, DC$1,610,173ZTR1
2019Nephrotic Syndrome Rare Disease Clinical Research Network III2U54DK083912-11KRETZLER, MATTHIASUNIVERSITY OF MICHIGAN AT ANN ARBOR, MI$1,609,672ZTR1
2019Primary Immune Deficiency Treatment Consortium2U54AI082973-11KOHN, DONALD BPUCK, JENNIFER M.UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, CA$1,604,571ZTR1
2019The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN)1U54NS115052-01EICHLER, FLORIAN SFATEMI, S. ALIVANDERVER, ADELINE LUCIECHILDREN'S HOSP OF PHILADELPHIA, PA$1,582,885ZTR1
2019BRITTLE BONE DISORDERS CONSORTIUM OF THE RARE DISEASE CLINICAL RESEARCH NETWORK2U54AR068069-06LEE, BRENDANBAYLOR COLLEGE OF MEDICINE, TX$1,470,655ZTR1
2019The Inherited Neuropathy Consortium (INC) RDCRC- Overall2U54NS065712-12SHY, MICHAEL E.UNIVERSITY OF IOWA, IA$1,468,942ZTR1
2019Porphyrias Consortium2U54DK083909-11DESNICK, ROBERT JICAHN SCHOOL OF MEDICINE AT MOUNT SINAI, NY$1,404,961ZTR1
2019Lysosomal Disease Network2U54NS065768-11WHITLEY, CHESTER B.UNIVERSITY OF MINNESOTA, MN$1,239,211ZTR1
2019Vasculitis Clinical Research Consortium (VCRC)2U54AR057319-17MERKEL, PETER AUNIVERSITY OF PENNSYLVANIA, PA$400,000ZTR1

Data: Grants.gov's daily extract and NIH's notice pages and award files, in ScienceGraph release conductgrants-2026-11-11-0.1.2. An award is listed only where NIH's own record names the notice, and a PI only by NIH's profile ID. Grants.gov and NIH do not endorse ScienceDex.

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