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Dataset results
2,538 results for “follow-up”
Bioimpedance phase angle as a prognostic tool in late-onset pompe disease: a single-centre prospective study with a 15-year follow-up
<p>We reported the long-term follow-up of a population of Late onset Pompe disease treated with enzyme replacement therapy. Among predictors of treatment effectiveness and prognosis, we include body composition assessment by bioelectrical vectorial impedance.</p> <p><strong>Methods. </strong>In this single Centre, prospective study, we evaluate the response to enzyme replacement therapy in 15 patients (7 males) with LOPD in different stages of disease, aged 49.4+16.1, followed-up for 15 years. Treatment response was measured by the six-minute walking test, vital capacity in supine and upright position, respiratory muscle strength, muscle MRI, manual muscle testing. We investigated the usefulness of Body Impedance Vectorial Analysis for serial body composition assessment.</p> <p><strong>Results (in brief). </strong>Although most patients with LOPD benefit from long-term treatment, some secondary decline may occur after the first 3-5 years. Some nutritional (lower body mass index, higher fat free mass, higher phase angle) and disease parameters (higher creatinine and shorter disease duration at the beginning of treatment) seem to predict a better motor outcome. Lower Phase Angle may reflect loss of integrity of skeletal muscle membranes, resulting from lysosomal and autophagosomal dysregulation; this leads to treatment mis-targeting, and thus to worse treatment response, and ultimately to whole cell damage. Indeed, the muscle is one of the tissue with the highest rate of autophagosome formation and degradation. </p>
Data from: GTC FOLLOW-UP OBSERVATIONS OF VERY METAL-POOR STAR CANDIDATES FROM DESI
<p>Data for plots in the paper. The dat folders include the spectra shown in Figures 1-2-3, and the file osiris/allende2023_desi_osiris_carbon.mrt gives the data points in Figure 4. The observed stellar spectra come from the Dark Energy Spectroscopic Instrument and the OSIRIS instrument on the 10.4-m Gran Telescopio Canarias. All data are in text files, in Machine Readable Table (MRT) format. See the included Readme.txt file for details.</p>
A Long-term Follow-up Study Of Multiple Sclerosis Patients Who Participated In Genzyme-sponsored Studies of GZ402668
ClinicalTrials.gov study NCT02313285. IPD Sharing: YES. Countries: 1. Publications: 1.
EASI Access II --- Follow-up Study to the EASI Access Trial
ClinicalTrials.gov study NCT00740727. IPD Sharing: Not stated. Countries: 1. Publications: 12.
An Long-term Follow-up Trial of Kidney Tx Patients Treated With Imlifidase or PE After an AMR
ClinicalTrials.gov study NCT04711850. IPD Sharing: NO. Countries: 3. Publications: 1.
Long-Term Follow-Up Studies at Year 6, 7, 8, 9, 10: 2 Formulations of Combined Hepatitis A/B Vaccine Compared in Subjects Aged 12-15 Years
ClinicalTrials.gov study NCT00197119. IPD Sharing: YES. Countries: 2. Publications: 1.
Long-term Follow-Up of Patients Who Participated in Study 27025 (REFLEX)
ClinicalTrials.gov study NCT00813709. IPD Sharing: Not stated. Countries: 24. Publications: 1.
A Long-term Follow-up Study of Botulinum Toxin Type A in Patients With Overactive Bladder as a Result of Spinal Injury or Multiple Sclerosis
ClinicalTrials.gov study NCT00876447. IPD Sharing: Not stated. Countries: 22. Publications: 1.
A Long-term Follow-up Study for Cardiac Safety in the Patients With HER2 (+) Breast Cancer Who Have Completed the SB3-G31-BC
ClinicalTrials.gov study NCT02771795. IPD Sharing: Not stated. Countries: 7. Publications: 2.
Long-term Safety and Tolerability of Atacicept (Long-term Follow-Up of Participant Who Participated in ADDRESS II)
ClinicalTrials.gov study NCT02070978. IPD Sharing: Not stated. Countries: 17. Publications: 1.
Long-Term Follow-up of Children for a 2-Year Period to Confirm the Safety and Immunogenicity of GSK 257049 Vaccine
ClinicalTrials.gov study NCT00323622. IPD Sharing: YES. Countries: 1. Publications: 3.
Long-term Follow-up of Subjects With Transfusion-Dependent β-Thalassemia (TDT) Treated With Ex Vivo Gene Therapy
ClinicalTrials.gov study NCT02633943. IPD Sharing: YES. Countries: 8. Publications: 3.
HAKA: Routine Follow-Up at 1 Year After Hip- or Knee Arthroplasty: Wasting Resources or Appropriate Healthcare?
ClinicalTrials.gov study NCT06971757. IPD Sharing: YES. Countries: 1. Publications: 0.
A Long-term Follow-up Study (ZOE-LTFU) of Two Studies 110390 (ZOSTER-006) and 113077 (ZOSTER-022) to Assess the Efficacy, Safety, and Immunogenicity Persistence of GSK Biologicals' Herpes Zoster Subun
ClinicalTrials.gov study NCT02723773. IPD Sharing: YES. Countries: 18. Publications: 3.
Clinical Follow-up of Anti-Carbamylated Antibody Status in Rheumatoid Arthritis
ClinicalTrials.gov study NCT02958319. IPD Sharing: UNDECIDED. Countries: 1. Publications: 5.
CLBP Single-Arm Long-Term Follow-up Study
ClinicalTrials.gov study NCT05207813. IPD Sharing: NO. Countries: 1. Publications: 2.
Longitudinal Follow-up of High School Athletes
ClinicalTrials.gov study NCT02432183. IPD Sharing: Not stated. Countries: 1. Publications: 3.
InterStim Micro Post Market Clinical Follow-up Study (ELITE)
ClinicalTrials.gov study NCT04506866. IPD Sharing: NO. Countries: 6. Publications: 1.
Autopsy Follow-up of Subjects Previously Imaged With Florbetapir F 18 (18F-AV-45) PET in Trial 18F-AV-45-A07
ClinicalTrials.gov study NCT01447719. IPD Sharing: Not stated. Countries: 1. Publications: 1.
Down Syndrome Memantine Follow-up Study
ClinicalTrials.gov study NCT02304302. IPD Sharing: Not stated. Countries: 2. Publications: 59.
ScienceDex guides
Understand access before you commit
These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.