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41
datasets available to search
ShareScore release 0.9.0
Dataset results
41 results for “porphyria”
Clinical Diagnosis of Acute Porphyria
ClinicalTrials.gov study NCT01568554. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Studies in Porphyria IV: Gonadotropin-Releasing Hormone (GnRH) Analogues for Prevention of Cyclic Attacks
ClinicalTrials.gov study NCT00004330. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Acute Porphyria Biomarkers for Disease Activity
ClinicalTrials.gov study NCT02935400. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Colombia National Porphyria Registry
ClinicalTrials.gov study NCT05496933. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Identification of Acute Intermittent Porphyria Modifying Genes
ClinicalTrials.gov study NCT05502133. IPD Sharing: NO. Countries: 1. Publications: 0.
Studies in Porphyria III: Heme and Tin Mesoporphyrin in Acute Porphyrias
ClinicalTrials.gov study NCT00004396. IPD Sharing: Not stated. Countries: 1. Publications: 0.
INSIGHT-AHP: A Study to Characterize the Prevalence of Acute Hepatic Porphyria (AHP) in Patients With Clinical Presentation and History Consistent With AHP
ClinicalTrials.gov study NCT03547297. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
A Study to Investigate the Interaction Between Givosiran and a 5-probe Drug Cocktail in Patients With Acute Intermittent Porphyria (AIP)
ClinicalTrials.gov study NCT03505853. IPD Sharing: UNDECIDED. Countries: 1. Publications: 0.
Mitoferrin-1 Expression in Erythropoietic Protoporphyria (Porphyria Rare Disease Clinical Research Consortium (RDCRC))
ClinicalTrials.gov study NCT01880983. IPD Sharing: Not stated. Countries: 1. Publications: 0.
ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
ClinicalTrials.gov study NCT04883905. IPD Sharing: NO. Countries: 10. Publications: 0.
EXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)
ClinicalTrials.gov study NCT02240784. IPD Sharing: NO. Countries: 20. Publications: 0.
Prevalence of Acute Hepatic Porphyria
ClinicalTrials.gov study NCT04923516. IPD Sharing: NO. Countries: 1. Publications: 0.
Severe hydroxymethylbilane synthase deficiency causes depression-like behavior and mitochondrial dysfunction in a mouse model of homozygous dominant acute intermittent porphyria
GEO Series GSE146212. Mus musculus. 12 samples. Type: Expression profiling by high throughput sequencing.
Studies in Porphyria I: Characterization of Enzyme Defects
ClinicalTrials.gov study NCT00004331. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Phase I/II Study of Heme Arginate and Tin Mesoporphyrin for Acute Porphyria
ClinicalTrials.gov study NCT00004789. IPD Sharing: Not stated. Countries: 0. Publications: 0.
Study of the Pathogenesis of Porphyria Cutanea Tarda
ClinicalTrials.gov study NCT00005103. IPD Sharing: Not stated. Countries: 1. Publications: 0.
Risk Factors of Porphyria Cutanea Tarda (PCT)
ClinicalTrials.gov study NCT00213772. IPD Sharing: Not stated. Countries: 0. Publications: 0.
Phase I Study of Heme Arginate With or Without Tin Mesoporphyrin in Patients With Acute Attacks of Porphyria
ClinicalTrials.gov study NCT00004398. IPD Sharing: Not stated. Countries: 0. Publications: 0.
Phase I Study of Tin Mesoporphyrin in Patients on Long Term Heme Therapy for Prevention of Acute Attacks of Porphyria
ClinicalTrials.gov study NCT00004397. IPD Sharing: Not stated. Countries: 0. Publications: 0.
Study of Nutritional Factors in Porphyria
ClinicalTrials.gov study NCT00004788. IPD Sharing: Not stated. Countries: 0. Publications: 0.
ScienceDex guides
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These curated guides explain access requirements, typical timelines, costs, and reuse considerations for widely used research datasets.
Allen Brain Atlas
Allen Brain Atlas is an Allen Institute collection of brain map atlases, datasets, APIs, and analysis tools covering mouse, human, and non-human primate brain resources.
Annotated Behaviour and Observability Dataset (ABODe)
ABODe is a University of Edinburgh DataShare dataset for behavior classification in group-housed mice using home-cage video, identities, bounding boxes, ground-plate positions, and annotator labels.
DANDI Archive for NWB datasets
DANDI is a BRAIN Initiative archive for publishing and sharing neurophysiology data, including electrophysiology, optophysiology, and behavioral data packaged as NWB and related standards.
International Brain Laboratory public data
The International Brain Laboratory public data releases expose standardized mouse decision-making experiments, including Neuropixels recordings, widefield calcium imaging, behavior, and session metadata accessed through the ONE API.
OpenNeuro
OpenNeuro is a free, open platform for sharing neuroimaging datasets, with public search, dataset pages, and download paths for web, S3, DataLad, and the OpenNeuro CLI.